@ISMRD

ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. #RareDisease https://xitter.cf/t.co/LceSHQvRoT

ismrd.org
Joined October 2011
  • Tweets18.4K
  • Following1.3K
  • Followers1.8K
172Media
ISMRD-Join Our Fight retweeted
The Figen
@TheFigen_Aug 12
A woman hit record to take a video of herself, but her phone dropped into the ocean… and she later shared the surprising clips that resulted.
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HAPPY EASTER! ❤️
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Here is a BIG HUG for anyone who needs one! ❤️
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Even when we are down, struggling, hurting...we can be kind and loving and caring. #ISMRD
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Sending out our love, from our family, to yours! #ISMRD
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As a kindness to me, would just one person Like this Tweet. It would make me smile. Pretty please with sugar!
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Any kind hearts out there?
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When someone is hurting and you don’t know what to say, the words I love you are a beautiful, compassionate response.
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Goodnight. Sending out BIG HUGS for anyone who needs them. ❤️
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ISMRD-Join Our Fight retweeted
Dustin Pari@dustinpari9 Mar 2023
If you are struggling and having thoughts of suicide, remember that there is hope. There is help. Make it through the darkness. Call 988 or text TALK to 741741. @afspnational #NeverGiveUp @988Lifeline
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I have lost 50lbs in 4 months.
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If you have an extra hug, I could use one.
ISMRD-Join Our Fight retweeted
Tommy Norman
@OfficerNorman22 Mar 2022
I just received word from my cardiologist that I did suffer a major heart attack with 90-95% blockage. I’ll receive an additional stent in 2 weeks called the “widow maker.” I’ll be honest I’m a little scared. Please keep me in your prayers. Thank you🙏🏼 – at North Little Rock, AR
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Took my family to our first Comic Con. What a wonderful, fun time! Have you ever been to one?
ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. #RareDisease
Hey @AHS_Warranty We were wondering if you could help out our good friend @Kburr00a They have had multiple people come and work on fridge. Been without a working fridge for over 6 weeks. They have a mini fridge for the babies milk. Can you help rectify this quickly? Thanks ❤️
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I need a hug.
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If you are reading this, I hope you are able to relax some this weekend. Take care.
Hope you are having a smooth running Friday. ❤️
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