Establish a Care Plan Having conversations about your wishes early can help ensure you, your family and health care team understand what matters most to you. For more information visits our website - Planning Ahead - Irish Lung Fibrosis Association

Planning ahead for physical and mental wellbeing with lung fibrosis ILFA has many resources available to help you navigate your way through the challenges you might face. Visit our website for more information - Planning Ahead - Irish Lung Fibrosis Association

Special thanks to our advocates, @cathcallaghan1 (Catherine Callaghan TD), and @JohnLahart (John Lahart TD) for sponsoring our AV Room presentation on September 23rd. Thank you to everyone who advocated for our #Budget2027 priorities. #ILFA #YourVoiceMatters #ILFAAdvocacy

#Budget2027 must provide the staffing and resources (€140,500) needed to lead the ILD Pathway Framework implementation across the HSE

Ahead of #Budget2027, we are highlighting Key Priority 3: Resource the ILD Pathway Framework Implementation. Budget 2026 funded this vital HSE National Framework to improve care nationwide. These recommendations will transform lung fibrosis care—but they must be implemented

We want to make your voice heard! 🗣️ The Irish Lung Fibrosis Association is calling on members to complete the EU-PFF Access Index Patient Survey. Your insights will help improve care and advocacy in Ireland. Deadline: 15th Nov.👉Take the survey: advisoryenvironment.surveysp…

As one patient shared: "I have been declined disability & invalidity payments... My life savings are now almost zero and having to rely on my partner's wage." We need urgent action to relieve this high cost of care. Read our full affordability data: [LINK] #ILFA #Budget2027

#Budget2027 - Key Priority 2: Medical cards & utility cost relief for lung fibrosis patients. Our recent survey shows 1 in 3 patients face severe financial difficulty due to their condition. Routine medical cards & oxygen utility grants are vital.

Budget 2027 Priority 1: Continued ILFA funding to support critical services (€315,000) Budget 2026 Delivered: ILD Nurse Advice line Virtual Pulmonary Rehabilitation Daily exercise and wellbeing programmes. Psychological counselling Budget 2027 must fund these services

Huge thanks to @JohnLahart and the @fiannafailparty comms team for giving @ILFA_Ireland this platform and to @MDMacAuley for sharing his compelling story. ILFA's #Budget2027 Fianna Fáil: In Our Own Words Podcast - Living with Lung Fibrosis | Free Listening on Podbean App

Budget 2027 must deliver for the lung fibrosis community. ILFA is calling on the government to prioritize: Continued ILFA funding to support critical services (€315,000) Medical cards and utility cost relief for patients Resource the ILD Pathway Framework (€140,500)

Ahead of #Budget2027, lung fibrosis patients across Ireland need delivery on our core Leinster House asks: 🔹 €315k for critical ILFA services 🔹 Medical cards & utility relief 🔹 €140.5k to resource the ILD Pathway Framework

Understanding your diagnosis and treatment plan When receiving a diagnosis of lung fibrosis, it is important to understand more about the diagnosis and treatment plan. For more information visit our website - Planning Ahead - Irish Lung Fibrosis Association

ILFA proudly held our first Patient Summit this week, with 100 members registered, expert led panels and patient sharing experiences. We would like to Thank our sponsors @Boehringer for making this event possible.

Light up in Blue Campaign ! Today buildings and landmarks across Ireland will be lit up to show support for lung (pulmonary) fibrosis patients. To learn more contact [email protected] #ILFA #WorldLungDay #PulmonaryFibrosisAwarenessMonth #LightUpBlueILFA2026 #BlueUp4PF

ILFA is proudly supporting World Lung Day today for pulmonary fibrosis patients in Ireland and across the world. To learn more visit ilfa.ie and follow us on social media. #ILFA #WorldLungDay #LungFibrosis #PulmonaryFibrosis #PulmonaryFibrosisAwarenessMonth

Pulmonary Fibrosis Awareness Month starts with a focus on early diagnosis. On average, it takes 18 months to receive an accurate diagnosis of lung fibrosis. Early detection and specialist care can make a significant difference. Visit - ilfa.ie/awareness-month-2026…

ILFA is looking forward to today's Lunchtime Live programme on Newstalk (@newstalkfm), where our CEO, Maureen O'Donnell, will discuss the importance of lung transplantation and the significant decline in transplant rates, which have yet to recover to pre-Covid levels.

For Immediate Release -Following new research showing Ireland's heart and lung transplant rates remain below pre-Covid levels, ILFA calls for urgent action. Full statement here: Urgent Action Required - Transplants Remain Below Pre-Covid Levels - Irish Lung Fibrosis Association

"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around." Leo Buscaglia