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ICUsteps is run by ex-patients, relatives and intensive care staff to support patients and families through the long road to recovery from critical illness.

United Kingdom
Joined February 2011
Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)Photo by ICUsteps (@ICUsteps)
In intensive care, haloperidol, a calming drug, did not clearly help patients with delirium (sudden confusion over hours or days). The AID-ICU trial (New England Journal of Medicine, 2022) gave 1,000 intensive care patients with delirium haloperidol or placebo (a dummy drug), chosen by chance. The main measure was the number of days, out of the next 90, that patients were alive and out of hospital. The two groups did not differ clearly. A second measure was deaths within 90 days: 36 in every 100 patients on haloperidol, against 43 in every 100 on placebo. The trial was not mainly designed to test this, so it is weaker evidence. Intensive care colleagues: has this trial changed how often haloperidol is used in your unit? pubmed.ncbi.nlm.nih.gov/3628…
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Planning a summer holiday this year? More and more holiday providers are recognising the needs and preferences of disabled travellers - but a little forward planning can still make all the difference. Have you travelled after a brain injury? We’d love to hear what worked for you (or what you wish you’d known). Share your experiences in the comments.
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How to cut your risk of dementia, from head to toe inews.co.uk/inews-lifestyle/… #Alzheimers #dementia #health #wellness
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Our Family & Friends Drop-in is today @ 8pm We're here to help you whenever you feel you need it most We're a friendly group who'll listen without judgement & share the benefit of our experiences with you - we sometimes even laugh too Email info@cc-sn.org for more details
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Useful facts on Alzheimer's Disease. Note especially the huge contribution that carers make.
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🧸 What does child-centred care look like after PICU discharge? When children leave PICU, care does not end at discharge. Parents’ experiences reveal what partnership truly means. 🔗 doi.org/10.1111/nicc.70300 #ChildCentredCare #PaediatricICU
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We are looking into provision of #braininjury services in #Coventry and #Warwick and would be grateful if you would share this post to help us gather information/opinions. @leamobs @covobservernews @live_coventry
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Melatonin and delirium in the intensive care units: a systematic review and meta-analysis of randomized controlled trials tinyurl.com/mrj485k6 #icurehab #A2Fbundle
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💬 "We need more neurodivergent people taking part. That's not just as participants, but also involved in designing, developing and delivering the research." Social media influencer @neuro_lou is a co-investigator on the NIHR-funded ORIGIN programme. The programme is designing an online arts and culture platform to support mental health in underrepresented 16- to 24-year-olds, including neurodivergent young people. Now she is encouraging more neurodivergent people to get involved in research - as both participants and by helping to design, develop and deliver studies. Read a Q&A with Lou about her experiences at bepartofresearch.nihr.ac.uk/…
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As the government looks to crack down on phone use in schools, this may be worrying for students who rely on their phone to check that the person they care for is ok. This video, made by a young carer, explains why having access to a phone to contact home if needed can be so important.
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If you're thinking of taking up a new sport but are looking for inspiration, why not check out our top tips! The series currently includes #Football #Swimming #RugbyLeague #Golf #Running and #Hiking and they can all be viewed via our A to Z page: colostomyuk.org/information/…
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We all should be using tools to detect #delirium. But not all tools perform well in practice - some show much lower rates of detection in the real-world than in practice. -- check tool performance -- it's not enough to implement & achieve good completion rates.
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Wood burning produces fine particulate air pollution (PM2.5), which enters your bloodstream when inhaled and can cause lung and heart disease, as well as increasing your risk of diabetes and dementia. This #CleanAirNight (22 January), share the facts about wood burning. Visit cleanairhub.org.uk to find out more.
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Our first episode of 2026 is now live! To kick off the year, we interviewed actor Mark Heap about his role in the new @BBCOne sitcom Can You Keep a Secret? Mark plays a dad with early stage #Parkinsons. He tells us what he learnt from the experience. Listen now!
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Don't miss UK research training & development opportunities in the SW & central regions from the National Institute for Health and Care Research @NIHRresearch lnkd.in/eKabPZz3
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Therapeutic walks beyond the ICU: a safe strategy to enhance emotional well-being in critically ill patients with prolonged hospitalization tinyurl.com/2resrc37 #icurehab #A2Fbundle
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In 120 English vs Spanish speaking caregivers of ICU patients in delirium, English-speaking caregivers reported higher satisfaction scores than Spanish-speaking caregivers, but engagement with FAM-CAM improved satisfaction across language groups link.springer.com/article/10…
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