Raise awareness of Inflammatory Breast Cancer (IBC) Promote and fund IBC research in the UK Support IBC patients and their families @ibcnetworkuk.bsky.social

England, United Kingdom
Joined August 2016
Curious to know how our charity was formed and what we do ? Take a look at our video and contact us for more information on how we offer support and fund IBC research 🧡youtube.com/watch?v=A5I-7Sca…
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The Inflammatory Breast Cancer Network UK retweeted
Secondaries On The 2nd. We want you to know about the signs and symptoms of #MetastaticBreastCancer so we are sharing our infographics that highlight what you should be aware of if you have had a primary breast cancer diagnosis. These infographics are signposted by NHS England and used worldwide. They are translated into 12 languages. We know that it can be hard to even think about a recurrence and MBC, but knowledge is power, and if you have any of these symptoms please speak to your medical team. Advocating for yourself is the most important thing you can do for yourself. As we are focusing on awareness one of METUPUK's key aims, we'd be interested to start seeing your stories on how your #secondarybreastcancer was diagnosed and what signs you think people ought to be looking for. Use the #2ndsonthe2nd and we'll share your posts. Here's the link to the infographics buff.ly/4gd5T7t #METUPUK #DarkerPink #BusyLivingWithMets #IAmThe31 #waitingroomfeet #BreastCancer #BreastCancerCommunity #BreastCancerJourney #BreastCancerSupport #DyingForACure #EarlyDetectionSavesLives #MetastaticBreastCancerAwareness #SecondaryBreastCancer #SecondarySisters #Stage4NeedsMore #StageIVNeedsMore #AdvancedBreastCancer
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The Inflammatory Breast Cancer Network UK retweeted
I am happy that we have been funded to understand the impact of race and ethnicity on Inflammatory Breast Cancer (IBC) by dissecting the tumor microenvironment from @NIH @theNCI. Excited that we can contribute to understanding why Native Hawaiians have a high incidence of IBC.
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The Inflammatory Breast Cancer Network UK retweeted
Please join me in #WearItOrange today for #inflammatorybreastcancer awareness. We have chosen orange because one of the symptoms of this rare and aggressive breast cancer is peau d'orange, where the skin on your breast is dimpled like orange peel.
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Bookmark this for an inspiring lunch break read - ibcnetworkuk.org/s/IBCNewsle… Thank you to our supporters, fundraisers and volunteers for everything you do! #HopeAlways
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A potential opportunity for inflammatory breast cancer patients employed during cancer treatment in the UK #inflammatorybreastcancer #workingwithcancer
Am writing an article about what it's like working with cancer. I'm specifically looking to interview someone who was employed during cancer treatment (not self-employed/an entrepreneur). Can anyone help please?
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A fantastic day for our devoted fundraising crew to complete their ultra challenge. More power to their footsteps! Follow along on Insta🤩 instagram.com/p/C7Uod1WNl154…
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The Inflammatory Breast Cancer Network UK retweeted
Hello Liverpool!#RCMConf24
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Midwives! Student midwives! Come along and see us at stand 42 at the #RCMConf24 and we will share with you how knowledge about #InflammatoryBreastCancer is relevant to your practice p.s. we also have chocolate 🤫🍊😋 #IBC #NoLumpStillCancer #HopeAlways
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We wish we didn’t have to know this news. Kris will always be remembered as an absolute powerhouse and a force for change. Her legacy is with all the breast checks because of her and every earlier diagnosis. Shine bright diamond girl #coppafeel
We share the sad news that our founder, boob chief, colleague, friend and queen of glittering turds, Kris, has died. Kris approached life in a creative, fun and fearless way, showing us that it is possible to live life to the full with cancer. Statement at coppafeel.org
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The Inflammatory Breast Cancer Network UK retweeted
Replying to @ThanksCancer
And sometimes you have no lump but it's still cancer #inflammatorybreastcancer
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Will you nominate THE INFLAMMATORY BREAST CANCER NETWORK UK to be in with a chance to win £5,000? Enough to cover costs for 1-month of our #birminghamuniversity research programme or 2 volunteers to attend #SABCS health.movementforgood.com/i…
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The Inflammatory Breast Cancer Network UK retweeted
Inflammatory breast cancer accounts for a disproportionate number of breast cancer-related deaths each year, says our Dr. Wendy Woodward. Here, she answers common questions about this rare and aggressive disease: brnw.ch/21wIVcY @IBCradiation #EndCancer
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#SABCS friends! Inflammatory and lobular breast cancer patient advocates meet again at #EBCC14 We continue to bring attention from the medical community to these rare and underrepresented disease subtypes #inflammatorybreastcancer #lobularbreastcancer #RareDisease #hopealways – at Milan, Lombardy
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We've joined with @BreastCancerNow to call on @NICEComms, @NHSEngland, @ASTRAZENECAUK and @DaiichiSankyoUK to make the life-extending drug, Enhertu available on the NHS. Will you join us? Sign the petition #EnhertuEmergency action.breastcancernow.org/e…
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An excellent #UKIBCS24 session following on from evidence shared at #SABCS delivering some difficult truths regarding exercise during and after treatment for #breastcancer ⁉️Take home… regular exercise planned around side effects improves outcomes AND side effects! #hopealways
Nine months of supervised exercise improved quality of life, fatigue, pain, social functioning, and other symptoms among patients with metastatic breast cancer. #SABCS23 @UTHealthSAMDA @AACR
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A great start for day-2 at #UKIBCS24 attending a plenary lecture discussing neoadjuvant chemotherapy #NACT Chemo first is essential before mastectomy surgery in the treatment of #inflammatorybreastcancer #IBC
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