Whether you’re in Chilliwack Canada, Luxembourg, Croatia, Peru, Scotland, Australia, or Butler County Pennsylvania - whether you’ve been living with IH for decades or just received your diagnosis - we see you. You are not alone. Thank you for being part of this global community.

Idiopathic Hypersomnia is a chronic neurological sleep/wake disorder that often doesn’t respond well to current treatments. Many people continue to struggle with debilitating symptoms. People with IH deserve better understanding, more effective treatments, and improved outcomes.

When I said this back in 2014, I had no idea how many people around the world felt the same way... it is deeply frustrating that, even now, there’s still no medication that effectively treats this distressing & debilitating aspect of IH." - Michelle Chadwick, creator of @IHAWeek

Despite having extraordinary amounts of good quality sleep people with IH are in a constant state of sleepiness. But IH is much more than that. IH can cause a range of debilitating symptoms including cognitive dysfunction (brain fog) Learn more: hypersomnolenceaustralia.org…

Two of the often debilitating symptoms of IH include: 📍 Cognitive Dysfunction. 📍 Automatic Behavior. These symptoms can affect work, relationships, and safety and are often misunderstood or dismissed. What is #IdiopathicHypersomnia? bit.ly/IHFacts

"Being judgmental of us doesn’t help our situation; in fact it only makes it worse. We feel bad enough about what we can’t achieve and what we miss out on." Read More: hypersomnolenceaustralia.org… #IdiopathicHypersomnia #LivingwithIH

One of the worst things someone with #IdiopathicHypersomnia (IH) can hear is "I'm tired too". IH is a lot more than just feeling 'tired'. Learn more > hypersomnolenceaustralia.org… IH FACTSEET > bit.ly/IHFacts #LivingwithIH #IdiopathicHypersomnia

Imagine spending as much as 50 of your 75 years asleep and the remaining 25 years fighting to wake up and struggling to stay awake! For many people with Idiopathic Hypersomnia this is their reality. What is #IdiopathicHypersomnia? > hypersomnolenceaustralia.org… #LivingwithIH

We asked people with IH to describe it in one word & this is what they said. Exhausting, isolating, debilitating & misunderstood say it all. IH isn’t just being tired. It’s a serious, life-altering neurological disorder. What is IDIOPATHIC HYPERSOMNIA? bit.ly/IHFacts

What is IDIOPATHIC HYPERSOMNIA? Learn more: hypersomnolenceaustralia.org… IH Factsheet: bit.ly/IHFacts #IdiopathicHypersomnia

13th annual Idiopathic Hypersomnia Awareness Week starts tomorrow! Join us 😃 To make participation in the IHAW as simple as possible we have prepared a social media toolkit. bit.ly/3wdysR2 Idiopathic Hypersomnia Awareness Week, June 1-7 #IdiopathicHypersomnia

Where in the world are you? People with #IdiopathicHypersomnia often say they feel isolated so we’ve created a global map to show just how connected we are. Drop your state/county & country in the comments & we’ll add your location. Let’s fill the map by the end of #IHAW

Hi, Im Jacquie from Adelaide, Australia. I am #MoreThanIH. Im a lawyer, who loves binge watching shows, my two cats & looking after my succulents. What is IDIOPATHIC HYPERSOMNIA? bit.ly/IHFacts #IdiopathicHypersomnia Awareness Week 1-7 June: hypersomnolenceaustralia.org…

To make participation as simple as possible we have prepared a social media toolkit. Here you will find information about the IH Awareness Week and various graphics and suggested words for your posts. bit.ly/3wdysR2 IH Awareness Week, June 1-7 #IdiopathicHypersomnia

If you had to sum up Idiopathic Hypersomnia in just ONE word what would it be? We know IH is more than just “tired.” Comment below, & we’ll feature your words in a special word cloud during IH Awareness Week! 1-7 June #MoreThanIH Learn more about the IHAW bit.ly/3TQYF0K

Ways to help raise awareness - TELL YOUR STORY Send your story to ihaweek@gmail.com by 1st May & we will share it during the Idiopathic Hypersomnia Awareness Week June 1-7 Check out other perspectives from people living with IH: hypersomnolenceaustralia.org… #IdiopathicHypersomnia