VP Registries/Partnerships @AliraHealth. Co-founder @FreezeHealth. Health Innovation lover. President of 2 non-profit boards. MPH student @JohnsHopkinsSPH.

Miami, FL
Joined September 2013
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Last night we went around the table and shared our highlights from the conference…. For me, it was seeing how close we are to so many new therapeutics in phase 3 - it’s an exciting time for lupus!! - and putting faces (and personalities!) to the authors that I have read a ton
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Closed a great EULAR with a great meal and an even better team. (And getting excited for 2025 in Barcelona…!!!) #EULAR2024
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Loved the talk! I also loved the SLE CT Outcome Measures article in Lupus Science & Medicine and have tons of questions for you! If you have a few minutes at EULAR it would be great to connect - send me a DM?
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Replying to @MiaRodziewicz
Loving this talk! Would love to connect later in the conference and ask you a few questions - like how exactly patients were recruited / enrolled? (Send me a DM? :))
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Replying to @Lupusreference
This is a fabulous article, thanks so much for submitting! For those who are doing real-world data studies, what do you think of prediction models for outcome measures not typically gathered outside of an RCT environment - e.g. rmdopen.bmj.com/content/7/2/…
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It's #WorldLupusDay! I'm blessed to be able to spend most of my working time these days working on the FORWARD Lupus Registry with @ndb_org. Tagging some folks I follow who are passionate about lupus research - who else should I follow?! @Dr_K @Lupusreference @vksandhumd etc.!
📣Today’s #WorldLupusDay is dedicated to raising awareness and generating change for the 5 million people affected worldwide. ❓ Did you know? #Lupus can strike anyone at any time, but 90 percent of the people living with lupus are women. More Lupus facts below. #makelupusvisible
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