@HaystackProject

We are committed to the Ultra Rare Disease Community. Bringing together all stakeholders to educate & advocate for reimbursement policies.

 Washington, DC
haystackproject.org
Joined October 2017
  • Tweets129
  • Following253
  • Followers168
46Media
CheckOrphan.org xitter.cf/HaystackProject/status… – at Dishman, WA
Haystack Project@HaystackProject5 Oct 2017
New Treatment May Help People with Rare Immune Cancers — CheckOrphan checkorphan.org/news/new-tre…
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Calling all #warriors, we need you to get involved with #haystackproject to protect your rights to insurance! #RareDiseasesUnite xitter.cf/HaystackProject/status… – at Dishman, WA
Haystack Project@HaystackProject5 Oct 2017
Great initiative! Congrats @LaskerFDN
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Check this out folks. Ty @RareAdvocates Newborn Screening is an awesome tool to have available. Thank you @HaystackProject @joeygiggles xitter.cf/HaystackProject/status… – at Dishman, WA
Haystack Project@HaystackProject5 Oct 2017
TY @RareAdvocates for leading efforts on Newborn Screening! Parents Lobby States To Expand Newborn Screening Test npr.org/programs/all-things-…
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#haystackproject #RareDiseasesUnite xitter.cf/HaystackProject/status… – at Dishman, WA
Haystack Project@HaystackProject5 Oct 2017
How EURORDIS - European Rare Diseases Organisation is tackling the Patient Access Problem eurordis.org/news/improve-co…
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#Warriors Needed! Want your voice to count? Join us @HaystackProject where our #RareDiseasesUnite to create lasting change #haystackproject xitter.cf/HaystackProject/status… – at Dishman, WA
Haystack Project@HaystackProject5 Oct 2017
To find out more about the Haystack Project.. check out our website. haystackproject.org/
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