Non-Profit Educational Org dedicated to creating patient education tools related to Sickle Cell Disease using research based best practices for Adult Learners
Raleigh, NC
Joined March 2014
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#WorldSickleCellDay- it affects more people than you think! Pass it on. facebook.com/story.php?story…
HOPE for SCD retweeted
@HOPEforSCD “Mobile Health Technology App Development Survey for Sickle Cell Disease Adolescents and Young Adults.”
surveymonkey.com/r/YHKHS8L
HOPE for SCD retweeted
September is #SickleCellAwarenessMonth. We’re proud to partner with the #SickleCell community and amplify their voices. Learn more about our commitment to #SickleCellDisease through the inspiring video and song created by #SickleCell warrior, DeMitrious. ow.ly/QlTS50G6s8Y
Our last Talking Tuesday read aloud is tomorrow at 2:00pm EST! Our ED Lisa Rose will be reading her book, “Sickle What?” The focus will Be on Chapter 2- genetics and “gene shopping”! This book was medically reviewed… instagram.com/p/CAWtpZpDle9/…
Our last Talking Tuesday read aloud is tomorrow at 2:00pm EST! Our ED Lisa Rose will be reading her book, “Sickle What?” The focus will Be on Chapter 2- genetics and “gene shopping”! This book was medically reviewed… instagram.com/p/CAWthAKjYAH/…
HOPE for SCD retweeted
@KingsCollegeLon @lifecourse_KCL @KingsGHP new lancet paper on transition from paediatrics to adults in @HOPEforSCD
HOPE for SCD retweeted
Random thought...the only thing more agonizing than watching someone in a #SickleCell crisis is being the patient who is experiencing it. Truthfully, there is nothing like it.
HOPE for SCD retweeted
"We now have a therapy that significantly improves hemoglobin levels, has a favorable safety profile and reduces the anemia and hemolysis," states Elliott Vichinsky, M.D.
Oxbryta will be available to patients in the U.S.
#oxbryta #FDA #sicklecell #sicklecell101
HOPE for SCD retweeted
It's #GivingTuesday Eve! Tomorrow's the day and we are so excited to officially join the movement. Give a little, save a life! Donate here to help our #TraitWarriors asonefoundation.org/giving-t…
HOPE for SCD retweeted
… and stronger than most. Don’t forget it.
Tag someone who needs this.
#teamsicklecell #sicklecellanemia #sicklecell #sicklecell101
Learn more about #ClinicalTrials. We can't expect a cure without our own participation! #sicklecell #educationiskey facebook.com/hopeforscd/post…
Calling all caregivers. Simple online research study for $50! your child must be 6 or older. Patients 16 and older can also participate!
Contact- Elisa at (469) 422-8174 (text is easier for her) or you can email her at elisa@murrayhillnational.com
The last Warrior U was amazing. Check out this series on FDA. How can we as patients engage them? Sign up below! #sicklecell #clinicaltrials #FDA #WarriorU facebook.com/hopeforscd/post…
HOPE for SCD retweeted
There have been a lot of questions about genetics and the punnet square. Here is a video we made to help you understand! youtube.com/watch?v=4KD8N2ha… youtube.com/watch?v=4KD8N2ha…
grant funding opportunity through @gbtpharma for CBOs. Deadline 5/1/2019, check it out! gbt.com/patients/accel-grant… gbt.com/patients/accel-grant…
There have been a lot of questions about genetics and the punnet square. Here is a video we made to help you understand! youtube.com/watch?v=4KD8N2ha… youtube.com/watch?v=4KD8N2ha…
This is a fantastic idea. Blood saves a person living with #sicklecell more often than we know. Thank you donors! facebook.com/story.php?story…