@HDSA_SF

Updates and news from the Huntington's Disease Society of America San Francisco Bay Area Chapter. #LetsTalkAboutHD. Recommendations? email [email protected]

San Francisco Bay Area
Joined December 2020
Join us for the 20th Annual Team Hope Walk and support HDSA’s mission to improve the lives of individuals and families affected by Huntington’s disease. Registration is free! Walk with a purpose and help make a difference. buff.ly/HQB991r
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Join us for the 20th Annual Team Hope Walk, HDSA’s nationwide fundraising event bringing together families, friends, and communities to support those affected by Huntington’s disease. Registration is free! Walk with purpose, and help make a difference. buff.ly/qZTDNnc
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August was a busy month for HD research. We explored lessons from disappointing clinical trials, new studies, innovative approaches to lowering huntingtin, and highlights from a major HD research conference. Here’s what we learned this month. buff.ly/mc8TmAy
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The first participant has now been dosed in the Phase 3 PRECISE-HD trial of pridopidine for HD. The study will test whether the drug can slow disease progression in people most likely to benefit. Read the details here: buff.ly/mc8TmAy
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Day 3 of #HD2026 put HTT under the microscope. Researchers shared new insights into HTT1a, next-generation HTT-lowering approaches, somatic expansion, brain circuitry, and why boosting healthy HTT might help. Read the roundup here. buff.ly/3GvagbR
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Day 2 of #HD2026 brought us updates on the mechanics of somatic instability, new ways to track HD in people, AI tools to help drive research forward, and developments in our understanding of the HTT protein. Catch up right here. buff.ly/0isoh86
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A new Phase 1 study is testing SRP-1005, a huntingtin-lowering therapy given by injection under the skin. It’s early days, but this approach could add an important new arrow to the HD drug development quiver. buff.ly/WP98QFJ
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Celebrate the 20th anniversary of the 2026 HDSA SF Team Hope Walk & 5K Timed Run, scheduled for Saturday, October 3rd, at the Sports Basement Presidio, 610 Old Mason St, San Francisco, CA. Raise $100+ to receive the official 2026 Team Hope Walk T-shirt! buff.ly/SPidpz5
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Join us for a special LA Dodgers Awareness Game in support of the Huntington’s Disease Society of America (HDSA) at Dodger Stadium on Sunday, September 20, 2026, from 1–5 PM (first pitch at 1:10 PM). buff.ly/Zl0oLHQ
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New treatments for HD are being tested around the world, but we still lack objective, sensitive ways to measure whether they're working. This talk explores how wearable sensors used at home can capture changes in movement, including walking and chorea. buff.ly/bqGPFPi
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Day1 of HD2026 is a wrap! From what human brains can teach us about HD, to HTT1a, somatic CAG expansion and the normal biology of HTT, today’s talks spanned the spectrum from fundamental biology to potential treatments. buff.ly/ttbWILK
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Recorded at the HDSA Annual Convention, this session explores the unique challenges caregivers may face and provides practical strategies for managing stress, setting boundaries, asking for help, and prioritizing personal well-being. Click here to watch: buff.ly/BCIcaJ5
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HDSA is hosting a webinar featuring Novartis’ clinical development team,who will share the latest updates on the INVEST-HD Phase 3 trial of votoplam for HD.The first study sites are now open in North America,with additional sites expected to open. Register:buff.ly/54zSZuP
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The HDSA Podcast connects listeners with members of the HD community and offers a behind-the-scenes look at HDSA. New episodes are released monthly. Have a topic idea? Submit it today! buff.ly/MCIJCUn buff.ly/kb0trx4
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HDSA is investing in bold research programs that strengthen our understanding of HD and bring us closer to a future of effective treatments. Check the Marker here for details: buff.ly/yxZh5v0
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Join us for the 2026 HDSA Team Hope Walk on Saturday, October 3rd at the Sports Basement Presidio, 610 Old Mason St, SF, CA.Your participation helps fund lifesaving research, family services, and advocacy efforts, all while spreading hope for a cure. buff.ly/Sx62ECY
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Everything done at HDSA begins with the HD community. Feedback from a variety of HDSA stakeholders has helped identify several important themes There are no right or wrong answers,only your honest feedback based on your experiences and hopes for the future.buff.ly/s9WBxHK
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July was a hard month for Huntington’s disease research, with Roche ending two HD programs. But the month also brought promising new tools, a new player in somatic expansion, and important work on eating and self-awareness in HD. buff.ly/tpZjJgb
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Clinical trial data can drive discovery long after a study ends. Prilenia donated placebo-arm data from 2 HD clinical trials to CHDI, a valuable resource for researchers to better understand placebo effects, HD progression and future trial design. buff.ly/ERFLFoC
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Join us for the 2026 HDSA Team Hope Walk on Saturday, October 3rd at the Sports Basement Presidio,610 Old Mason St,San Francisco,CA.Your participation helps fund lifesaving research, family services, and advocacy efforts,all while spreading hope for a cure.buff.ly/Sx62ECY
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