@HDSA

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.

 U.S.A.
HDSA.org
Joined April 2009
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  • Followers5.8K
6.9KMedia
I’m grateful for the opportunity to have met with Christine Freund, President of the Wisconsin Chapter of @HDSA HDSA is a leading national organization committed to advancing care and finding a cure for Huntington’s disease (HD). During our discussion, we discussed the profound impact HD has on patients and their families, as well as collaborative resources to enhance support and improve quality of life for those affected.
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Referee crews wearing blue wristbands and blue polos this month in honor of Terry Vaughn and in support of HD awareness! #LetsTalkAboutHD #HDAwareness #HuntingtonsDisease
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@HawleyMO highlights all the reasons we are urging Congress to protect #Medicaid. Read our latest statement here for more. modernmedicaid.org/pressrele…

Modern Medicaid Alliance Statement on Proposed Medicaid Cuts - Modern Medicaid Alliance

Washington, D.C. – Following the release of newly proposed cuts to Medicaid coverage and benefits for Americans, the Modern Medicaid Alliance issued the following statement:  “There is no denying...

modernmedicaid.org
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Tonight in #MLS, #NWSL, #USL, and plenty of other soccer fields across the country, Referees are wearing black armbands in honor of #TerryVaughn. They are also wearing blue "HD" wristbands. Our goal - and Terry's - every May is to bring more awareness to #HuntingtonsDisease.
PSRA Officials
@PSRAofficials6 May 2023
In honor of our brother #TerryVaughn who battled Huntington’s Disease for years, the referee community has started a fundraiser for his daughter's college. Terry's contributions to us all are immeasurable and will never be forgotten. gofund.me/383358f3 #LetsTalkAboutHD

Donate to Terry Vaughn family college fundraiser, organized by Jonathan Johnson

The soccer community has rallied behind Terry's battle against Huntington's Di… Jonathan Johnson needs your support for Terry Vaughn family college fundraiser

gofundme.com
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We’re excited to share the last participant in our global Phase 3 PROOF-HD study has completed the last planned visit of the blinded treatment period. We're working to bring topline results to the #HD community as soon as possible.  Learn more: bit.ly/3JQHPZx
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In Episode #2 of The HDSA Podcast, Louise Vetter chats with Chris Cosentino (HDSA's Director of Marketing & Communications) and Robi Blumenstein (CHDI President). Click here to listen to the Episode #2: buff.ly/3HoYbrb
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We will work together to ensure that, from your very first visit to our center, you will never feel alone. #huntingtonsdisease #hdsa #ucsd #ucsdhdcrc
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HDSA 2023 San Jose Team Hope 10K Timed Run and 5K Walk indybay.org/newsitems/2023/0… #therese #crutcher #TalkwalkerAlerts via @talkwalker

HDSA 2023 San Jose Team Hope 10K Timed Run and 5K Walk : Indybay

Campbell Park at the Los Gatos Creek Trail Campbell, California

indybay.org
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Join the @HDSA for the Celebration of Hope Gala on March 31st! Dr. Adys Mendizabal @mendizabal_md will be honored for her work researching health disparities in #HuntingtonsDisease. Register here: pacificwest.hdsa.org/events/…
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The @hdsa has confirmed our continued designation as an HDSA Center of Excellence for 2023! Barrow is one of 56 institutions around the country, & the only institution in #Arizona, to receive this distinction this year. Learn more: BarrowNeuro.org/Parkinsons #huntingtonsdisease
Huntington's Disease Society of America Center of Excellence Barrow Neurological Institute logo

ALT Huntington's Disease Society of America Center of Excellence Barrow Neurological Institute logo

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It’s time! Get ready and join @FixelInstitute and @HDSA - south Florida chapter for the Team Hope Walk in 2 DAYS (3/11) in Gainesville, FL, at Depot Park! For more information and registration, visit southflorida.hdsa.org/events…
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We’re -1 week from the Team Hope Walk in Gainesville, FL, at Depot Park! Join the @FixelInstitute and @HDSA - south Florida chapter on March 11th! For more information and registration, visit southflorida.hdsa.org/events…
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Episode 4 is here! 🎧 💻 🧠 Featuring #ABrainCoMember @HDSA! 🧠 Listen today: bit.ly/3IJhgoq #ABrainCo #ABrainCoProud #ABrainCoAdvocacy #AdvocacyChampions #VoicesForTheBrain
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The @HDSA announces the renewal of the @FixelInstitute at @UFHealth as a HDSA Center of Excellence (CoE), making it one of three CoEs in the state of Florida and one of 56 nationwide. 🧵(1/4)
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Great kid & cause
Tom Seravalli@SeravalliTom26 Jan 2023
As a coach, when times seem dark, we preach to our players to get back up and fight. To persevere, to not let tragedy silence us. Giving up could have been easy but Jack cooper is doing something about it. Please come out, donate, and bid for our gifts. All donations go to HDSA!
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Join us on Saturday for the UCF-Advent Health #Huntington’s Disease Clinic's Team Hope Walk on Saturday, January 14 at UCF. Proceeds will support the mission and services of the @HDSA . To make a donation or join the team, please visit: ow.ly/E6CE50MqfPZ
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MIH | (NEWS) King’s Men’s Ice Hockey To Hold Huntington's Disease Awareness Night on January 27 #MonarchNation // #EarnTheCrown // @KingsMIH // @HDSA bit.ly/3QnXti5
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Replying to @HDSA
@HDSA has a variety of volunteer opportunities. Join the #HDSA family❤️: #ABrainCo #ABrainCoProud #ABrainCoAdvocacy
HDSA@HDSA4 Jan 2023
Join the #HDSAFamily! With more than 50 volunteer led Chapters & Affiliates across the country, HDSA volunteers provide much-needed support and resources to their local community. Learn more at HDSA.org/volunteer #LetsTalkAboutHD #HuntingtonsDisease
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#12DaysofNYA Day 11!! Thank you to Natalie for supporting the fight against #HuntingtonsDisease! Watch here: youtu.be/jHDPbVnTaXw Donate here: app.donorview.com/pJnq #HDSA #NYA #LetsTalkAboutHD #NYA #NationalYouthAlliance #Fundraiser
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The end of the Huntington's Reign of Yerrpr would be a great Christmas gift, right @HDSA? youtu.be/C4CcUGrXtog – at Richmond, VA
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