Helping patients living with #rarediseases through innovation. Support @takeheartlive, On the Road for Rare š https://xitter.cf/t.co/E15TwYvvid.
New York, NY
Joined September 2018
- Tweets389
- Following1K
- Followers246
- Likes937
Honeycomb Health retweeted
In the latest Health Design Podcast, patient advocate Rebecca Trahan and Elizabeth Apelles, founder of Honeycomb Health, talk with Moyez Jiwa, MD, to discuss rare diseases, data privacy, and the power of peer communities. soundcloud.com/user-49949442ā¦ #SCADHeart #FMD #rarediseases
ALT Rebecca Trahan and Elizabeth Apelles
Honeycomb Health retweeted
Physical activity and exercise in patients with spontaneous coronary artery dissection and fibromuscular dysplasia
academic.oup.com/eurheartj/aā¦
Honeycomb Health retweeted
.@GMA health alert: Rare condition āSCADā can affect young, healthy women. Thanks ā¦@washingtonpostā©ās @ErinatThePostā© for going public with your personal health story to raise awareness of #SCAD. Iām trying to do same. ā¦@SCADallianceā© goodmorningamerica.com/wellnā¦
Honeycomb Health retweeted
Important thread about spontaneous coronary artery dissection which we are studying in a large registry @iSCADregistry
Honeycomb Health retweeted
Spontaneous Coronary Artery Dissection and It's Relation to Fibromuscula... youtu.be/hRhsA8HjMq4 via @YouTube
Honeycomb Health retweeted
Get to know #DC area #nonprofits making a difference during the @YourDCTV #GivingTuesday Event. #SCADALLIANCE is a proud #DCTV grantee. Look for us! youtu.be/XJQE7RMcDoU via @YouTube
Honeycomb Health retweeted
Spontaneous coronary artery dissection (SCAD) is an important cause of acute coronary syndrome (ACS) in predominantly young females. Treatment guidelines advocate conservative treatment of SCAD.
Read the full article: hubs.la/H0_4bmh0
#coronary #artery #cardiology
Honeycomb Health retweeted
November is #MenkesDisease awareness month. I encourage you to watch the documentary my friend, Daniel DeFabio, created about his son Lucas and two other families with #menkessyndrome
You can find it on The @DisorderRare Channel. Free on your Roku or FireTV.
#RareDisease
Honeycomb Health retweeted
NEW reports from #SCAD registries in Canada and Spain presented at #TCT2021. Link: summary of the studies conducted by Dr. Jacqueline Saw and Dr. Marcos GarcĆa-GuimarĆ£es:
tctmd.com/news/conservative-ā¦
#SCADheart #ResearchMatters
Honeycomb Health retweeted
Nominated by @mirvatalasnag, today's #ACCWIC Spotlight is @SharonneHayes!
@Forbes recognized her work on SCAD, she founded the largest research program in the world to optimize the diagnosis and treatment of spontaneous coronary artery dissection, which impacts younger women.
Honeycomb Health retweeted
Congratulations to ā¦@AliMoranVascMedā© on her amazing #bostonmarathon race today! We are so grateful for her run on behalf of #SCADsurvivors. To donate to our #aliruns4me campaign:
scadalliance.networkforgood.ā¦
#scadheart cc ā¦@VUMC_heartā©
Honeycomb Health retweeted
We can and need to do better for our female patients with structural heart disease. Better representation improves recognition and treatment of disease processes and can help enrollment of female pts in clinical trials. The struggle is real. @scaiwin @WomenAs1 @CardiologyLahey
Honeycomb Health retweeted
Cardiac arrest strikes suddenly and without warning, and what happens in the first few minutes can mean the difference between life and death. Dispatchers can and should be trained to provide CPR instructions to bystanders. Send ur letter 2 Lawmakers now act.yourethecure.org/S6REWQk!
Honeycomb Health retweeted
MEN WITH #SCAD, Friday, Oct 1st at 2 ET. Our Ask the Experts panel will discuss this important topic and the need for more research. Do you have questions? Post below and pls RT! us02web.zoom.us/j/8468564449ā¦
#SCADheart #MenWithSCAD #iSCADregistry #SCADALLIANCE
Honeycomb Health retweeted
We want to hear real stories. All stories matter, all stories can help others and sharing them can be liberating. If you suffer from a rare disease or you are a friend, family member or caregiver of someone who does, tell us your story by DM. #RareDisease
Honeycomb Health retweeted
Honeycomb HealthĀ launched a cross country road trip to raise money for the rare disease cause. Rare disease survivor Rebecca TrahanĀ began her trip on 8/9 to raise money for non-profit @HCombHealth. lnkd.in/ebVdPk5b #RareDisease #SCAD @takeheartlive gofund.me/f1a33127
Honeycomb Health retweeted
Nine months post-heart attack! Grateful to attend UMass 2021 š graduation, many adventure walks, peloton rides, and quiet moments. #gratefulheart #scadheart #heartattacksurvivor
Honeycomb Health retweeted
so here we go! off to denver to begin my road trip to put #scad & #RareDisease and @HCombHealth on the map šŗ! follow me here, please share and donate if you can. every little bit helps. and if you know any #RareDisease survivors iād love ā¤ļø to meet them. gofund.me/91bfd684
Honeycomb Health retweeted
T4 100% i place almost all the marbles on this. after surviving a #scad of my left main coronary artery i fired one of the best cardios in houston because he put his hand up when i walked into a post bypass visit crying as i couldn't cope with what had happened. #fired #hcldr
Time for T4: What value do you personally place on empathy and Emotional Intelligence? Are these critical for success or not? #hcldr @JoeBabaian
Honeycomb Health retweeted
A BIG shout out to our friends at @RareRevolutionM for all their hard work helping spread #raredisease messages along with us & our many co-hosts! #Dazzle4Rare
ALT 400 million people need you #dazzle4rare