@HCLFoundation

Official Twitter profile for the Hairy Cell Leukemia Foundation, a nonprofit dedicated to patient education and research in HCL. https://xitter.cf/t.co/jOwrcRSFER

New York, NY, USA
Joined July 2021
☝️ TOMORROW It's not too late to register! Join us for a free, peer-led Zoom roundtable offering support and connection for people with HCL, HCL variants, and their families. REGISTER >> hairycellleukemia.org/calend… You don't have to face HCL alone. We hope to see you there.
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Join us for a free, peer-led Zoom roundtable offering support and connection for people with HCL, HCL variants, and their families. Anyone affected by HCL is welcome, no matter where you live. ➡️➡️ REGISTER >> hairycellleukemia.org/calend…
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Join the HCL Variant (HCLv) Community Roundtable tomorrow! Whether you're newly diagnosed or years into your journey with HCLv, you're welcome here. 📅 Thursday, September 24, 2026 🕐 1:00 PM – 2:00 PM ET (10 AM PT / 12 PM CT) 👉 Register: hairycellleukemia.org/calend…
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Join Our HCL Variant (HCLv) Community Roundtable! 📅 Thursday, September 24, 2026 🕐 1:00 PM – 2:00 PM ET (10 am PT / 12 pm CT) Whether you're newly diagnosed or years into your journey, you're welcome here. 👉 Register now to save your spot: hairycellleukemia.org/calend…
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☝️ In our 'Understanding Hairy Cell Leukemia' webinar, Dr. Blachly from Ohio State discussed that not everyone needs repeated bone marrow biopsies or MRD testing post-treatment—monitoring should be personalized. Watch here: hairycellleukemia.org/june-2…
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🟢 Don’t miss the HCL Women’s Group Roundtable this Wednesday, September 16th at 1 p.m. Eastern! Join us for an insightful discussion and a chance to connect with others affected by hairy cell leukemia. Your participation matters. REGISTER: hairycellleukemia.org/calend…
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If you are living with Hairy Cell Leukemia or supporting someone who is, you know staying informed matters. The HCLF newsletter is an easy way to stay up to date. No spam, no daily inbox clutter, just the updates that matter when they matter. 👉 lp.constantcontactpages.com/…
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🟢 Join us for our next HCL Women's Group Roundtable on Wednesday, September 16th, at 1 p.m. Eastern. These free, peer-led Zoom meetings offer a space for women with HCL and HCL variants to connect, share, and support one another. REGISTER: hairycellleukemia.org/calend…
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🟢 Únase a nuestra Mesa Redonda en Español el miércoles 9 de septiembre. Apoyo gratuito para personas con leucemia de células peludas y sus familias, facilitado por HCLF. INSCRÍBASE AQUÍ >> hairycellleukemia.org/calend…
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🟢 Many with HCL worry about infection risk, but Dr. Blachly emphasizes that it doesn't stop you from living fully. Stay updated on vaccines and keep in touch with your care team while engaging in activities that uplift you! 🔗 Watch the webinar at hairycellleukemia.org/june-2…
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⏰ Reminder! Join our HCL Community Roundtable tomorrow, August 26th, at 10 a.m. PT / 1 p.m. ET. Connect with others affected by HCL in small breakout groups via Zoom. Everyone is welcome! Hope to see you there: hairycellleukemia.org/calend…
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Some people with HCL are asymptomatic, while others experience anemia leading to fatigue. If you're unusually fatigued, share your symptoms with your medical team. 🔗 Watch our June 2026 webinar for more: hairycellleukemia.org/june-2…
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📬 Stay updated with the Hairy Cell Leukemia Foundation's newsletter! Get exclusive updates and inspiring stories. Each month includes info on events, expert insights, patient resources, and research. Join our community today: lp.constantcontactpages.com/…
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🟢 Why do some people with HCL get unusual infections? Low monocytes can raise infection risk in untreated HCL. But patients should avoid unnecessary isolation; instead prioritize vaccines and staying connected with their care team. Full webinar: hairycellleukemia.org/june-2…
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📢 Join our HCL Community Roundtable on Wednesday, Aug 26 at 10 a.m. PT / 1 p.m. ET. Connect with others affected by HCL in small breakout groups via Zoom. Everyone impacted is welcome! Register: hairycellleukemia.org/calend…
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🟢 Living with Hairy Cell Leukemia can be tough due to limited info and few specialists. At hairycellleukemia.org, we offer: 🔹 Patient stories 🔹 Webinars & research 🔹 A supportive forum 🔹 Specialist guidance Join us for support.
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An HCL diagnosis doesn't always require immediate treatment. Doctors use these thresholds to make decisions: ☝️1,000 – 100 – 10 🔹 Neutrophils <1,000 🔹 Platelets <100,000 🔹 Hemoglobin <10 g/dL Watch a recording of our June webinar for more: hairycellleukemia.org/june-2…
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🟢 HCL Research Momentum in 2025 In 2025, our HCL research initiative saw major advancements. Read the full annual report here: hairycellleukemia.org/2025re…
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🟢 You can't change what's happening, but you can choose your response. An HCL community member advises staying informed and asking questions during a diagnosis. Our team is here to support you. If you've been diagnosed with HCL, visit our support page: hairycellleukemia.org/suppor…
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🟢 Your HCL journey can help others! Roundtables allow patients and families to share experiences. Participants value insights from those with years of experience. Join our next roundtable on August 26th! hairycellleukemia.org/roundt…
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