HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. We are dedicated to improving the lives of people with HAE.
Global
Joined June 2011
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HAE International (HAEi) retweeted
Delayed #HAE diagnosis increases risk of death from the illness! Key publication attached. Our primary role for us in LMICs is to diagnose new patients to save lives. Going to keep working on growing our #Angioedema hotline in South Africa @HAEDAY jacionline.org/article/S0091…
HAE International (HAEi) retweeted
I'm beyond excited to be TOGETHER AGAIN and serve as RPA for countries in SEE region for HAE International @HAEDAY
Happy to contribute with my picture book stories for children, as our children need to stay our priority for better quality of life
#haei #glw22 #patientadvocate
HAE International (HAEi) retweeted
Did you know that HAEi, offers a quarterly magazine called Global Perspectives that showcase HAE news from around the world?
If you would like to view the HAEi Global Perspectives magazine, you can read it HERE:
haei.org/news-events/magazin…
#HAEA #HereditaryAngioedema #HAE
HAE International (HAEi) retweeted
@hae_international ha compartido en de su página web todos los resúmenes y las presentaciones virtuales de la parte científica de la Conferencia Global Virtual 2020 HAE.
17 grabaciones presentaciones interesantes. Puedes encontrarlas en: 👉🏼👉🏼haei.org/gc2020/#scientific
# HAEGC20
HAE International (HAEi) retweeted
In Press! #Life #expectancy in #Italian #patients with #hereditary #angioedema due to #C1 #inhibitor #deficiency buff.ly/2NJTRI8
HAE International (HAEi) retweeted
From HAEi Regional Patient Advocate Patricia Karani:
A doctor has been identified in Ethiopia willing to work with the Regional Patient Advocate on awareness programs.
HAE International (HAEi) retweeted
In this randomized trial, lanadelumab—a human monoclonal antibody that selectively inhibits active plasma kallikrein—reduced angioedema attack in patients with types I and II hereditary angioedema. ja.ma/2FRNiBs
HAE International (HAEi) retweeted
Pharming Group will also be attending the HAEi Global Conference in Frankfurt.
HAE International Board of Directors and staff members having a look at the venue for the 2020 HAE Global Conference that will be taking place in Frankfurt, Germany 14-17 May 2020.
Not registered for the conference yet? Have a look at haegc20.haei.org/registratio…
HAE International (HAEi) retweeted
Evaluation of retinal microvascular perfusion in hereditary angioedema: a case-control study. ift.tt/3as5qgz
HAE International (HAEi) retweeted
sgp120 and the contact system in hereditary angioedema: A diagnostic tool in HAE with normal C1 inhibitor. dlvr.it/RNNxCg
HAE International (HAEi) retweeted
KalVista Pharmaceuticals Provides Update on Oral Hereditary Angioedema Franchise dlvr.it/RMxd4P
HAE International (HAEi) retweeted
Patricia Karani has a rare disease that makes her more prone to sporadic swellings. She has Hereditary Angioedema..
“Any swelling in the throat is an emergency,”
Stress or anxiety at work or socially can trigger swellings
youtube.com/watch?v=hz2Yc-sN…
HAE International (HAEi) retweeted
I understand because I have a rare blood disease called Hereditary Angioedema, which presents with swelling, sometimes life threatening if it is in throat. It is a blood disease, not allergy. I appear healthy, but feel bad a lot. Never know when I am going to have an issue.❤️
HAE International (HAEi) retweeted
New Research: Caregivers’ Sensemaking of Children’s Hereditary Angioedema: A Semiotic Narrative Analysis of the Sense of Grip on the Disease frontiersin.org/articles/10.… #Psychology #Psych
HAE International (HAEi) retweeted
#SMC acepta uso restringido de #lanadelumab (Takhzyro®) en pacientes >12 años para la prevención de ataques recurrentes de #angioedema hereditario tipo I o II
bit.ly/2ZTD360
HAE International (HAEi) retweeted
The NCPE are seeking input from Patient Organisations for our appraisal of lanadelumab for the prevention of recurrent attacks of hereditary angioedema in patients aged 12 and over. See our website for more details ncpe.ie/for-patients
HAE International (HAEi) retweeted
Today, #healthcare is changing rapidly with new possibilities across medicine, science & technology. We’re educating our clients on potentially high-cost diagnoses and their treatments. View our latest white paper on Hereditary Angioedema (HAE): bit.ly/2XGzNdu #education
HAE International (HAEi) retweeted
What happens when emergency room doctors don't know much about a #raredisease, like hereditary angioedema (#HAE)? HAE International @HAEDAY created a wallet card in many languages to help patients get the right care fast. spr.ly/60131pmtz
HAE International (HAEi) retweeted
Timothy Craig, DO of Milton S. Hershey Medical Center describes some of the symptoms that may warrant testing for Hereditary angioedema #HAE @know_HAE @HAEDAY @HAE_UK Hereditary Angioedema Association - HAEA HAE India All About HAE
checkrare.com/testing-for-he…