@GreyGenetics

Provider of independent genetic counseling and consulting services using #telehealth. No longer active on social media!

 US and Abroad
greygenetics.com
Joined September 2017
  • Tweets1.2K
  • Following607
  • Followers839
275Media
Patient Stories will finally be back with a third season in 2023! We are looking for an intern who would like to help with podcast planning and light editing. Interested? Email [email protected] #GeneChat (1/2)
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If anyone wants a quick link to a petition for a call to NSGC to start taking Requests for Proposals from new firms to lobby the US Government for CMS recognition so that we might be able to turn our attention to lobbying for our patients, it's right here: chng.it/rPSbkmc2WD
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Please join us to welcome Janice Berliner, MS, CGC. As the Program Director of the Bay Path Genetic Counseling program, she will talk about Genetic Counseling programs and what factors to consider when applying to and ranking different programs. Registration in Bio! #GeneChat
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Grey Genetics retweeted
Heather Hampel@HHampel13 Mar 2022
If you have a parent, sibling or child with colorectal cancer, you are at least 2-3 times more likely to get colorectal cancer yourself. Your risk may be higher if there is a hereditary cancer syndrome - more on that later this month. #ColorectalCancerAwarenessMonth
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We are thrilled about the new White House #CancerMoonshot and The President’s Cancer Panel report on screening. The Panel’s recommendations align with the goals of #AcesstoGC’s Act. Read our full statement here: bit.ly/3APuagw #GCChat #GeneChat
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“Our approach to communicating uncertainty is simple…discuss what is known & be transparent about what is not known and why.” @CheneryLowe, @Liesl_CGC & Laynie Dratch share how genetic counseling can serve as a model for public health comms: bit.ly/3qZoNYO #GeneChat

What genetic counselors can teach the CDC about communicating uncertainty

In learning to coexist with SARS-CoV-2, we can no longer banish scientific uncertainty. Instead, we must learn to talk about it and live with it.

statnews.com
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Grey Genetics retweeted
Turna Ray@TurnaRay23 Jan 2022
"In our experience providing patients with genetic counseling, acknowledging and directly addressing scientific uncertainty is both possible and beneficial." statnews.com/2022/01/21/what…

What genetic counselors can teach the CDC about communicating uncertainty

In learning to coexist with SARS-CoV-2, we can no longer banish scientific uncertainty. Instead, we must learn to talk about it and live with it.

statnews.com
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Grey Genetics retweeted
Eric Green@NHGRI_Director21 Jan 2022
The field of genomics requires deep mental flexibility to solve some of biology’s most challenging questions. A diverse, inclusive genomics workforce is critical so that we gain different perspectives and experiences.
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Claire Barrow, a 14-year-old from Tampa, has developed an app to connect people who have been diagnosed with a #RareDisease. We are thrilled to see innovation to strength our community. #TogetherWeAreStrong Read more: bit.ly/3r5EpbT

Young Tampa entrepreneur develops app to help those living with rare diseases

After being diagnosed with a rare blood disorder, a Tampa teen began working to make the future a brighter place through technology, developing an app for others with rare diseases to connect.

fox13news.com
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Grey Genetics retweeted
BHarrison@Barb_DNA_GC7 Jan 2022
Are you a Black/Indigenous/POC '21 GC grad or '22 GC student? We want to hear YOUR thoughts on cultural comp/humility& anti-racism curriculum in GC training. Short 5 min survey, and 45-60 min interview w/$30 gift card if selected: northwestern.az1.qualtrics.c… @minoritygenetic #GCchat
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Do you have a personal story related to NIPS / NIPT or other related genetic testing you’d like to share? Send an e-mail to [email protected]
Grey Genetics@GreyGenetics2 Jan 2022
If you can get past the use of the word “wrong” in the context of a screening test… (try subbing “false positive)- this is good article on some of the problems with NIPS tests and their misleading marketing in our profit-driven healthcare system. nytimes.com/2022/01/01/upsho…
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What's the best way to use information about an inherited cancer risk? Genetic counselors can guide patients and help them understand their family history and testing options. Read more: bit.ly/3st4vrR #GCChat
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NSGC Ancestry Expert @GCBrianne was included in @thenibs about direct-to-consumer #DNA testing, how it can reveal family secrets and what you should know before pursuing these tests. Read more: bit.ly/3Fs3zYc #GCchat

It’s All Relatives

How direct-to-consumer DNA testing may mean the end to family secrets.

thenib.com
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Listen to NSGC Treasurer @CCampbell49 discuss how important it is to pass the #AccesstoGCs Act (#HR2144 and #S1450) in order to expand access to genetic counselors and alleviate disparities patients face with @ACCCBuzz. Find the podcast here: bit.ly/3IKTzLI #GCChat

ACCC | [MINI-PODCAST] Ep 72: Genetic Counseling Advocacy

Hear from Colleen Campbell, PhD, MS, LGC, as she explains policy changes that can help patients access genetic counseling services, while also benefiting those who provide these services.

accc-cancer.org
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Listen to @shivaninaz read her personal story about using her own resources to uncover her mother’s genetic disorder. She also discusses the importance of fully integrating genetic medicine into clinical practice and passing the #AccesstoGCs Act: bit.ly/3mrOEWG #GCChat
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Genetic testing is growing exponentially and impacting every area of medicine. That's the good news. The bad news is that genetic testing is complex, and results are often misinterpreted. GCs can help! #GCchat
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Grey Genetics retweeted
Eric Green@NHGRI_Director14 Dec 2021
The field of genomics requires deep mental flexibility to solve some of biology’s most challenging questions. A diverse, inclusive genomics workforce is critical so as to gain different perspectives and experiences.
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Thank you @shivaninaz for sharing your personal family story. We urge everyone to read her powerful firsthand experience with helping a loved one navigate genetic testing and the importance of fully integrating genetic medicine into clinical practice. #GCchat #AccesstoGCs
Shivani Nazareth@shivaninaz7 Dec 2021
My VERY personal story: "I would not have anticipated being on this side of the risk equation, but it only furthers my resolve that #genetic medicine needs to be fully integrated into clinical practice." @Health_Affairs #gcchat healthaffairs.org/doi/10.137…

To Uncover My Mother’s Genetic Disorder, I Had To Lead The Way | Health Affairs Journal

A genetic counselor uses her own resources to identify the root cause of her mother’s changing personality.

healthaffairs.org
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Grey Genetics retweeted
Kirsten Boggs@KirniGC2 Dec 2021
A great article with a family’s perspective on disability and informed choice in genetic counselling. This is what it’s about, helping people make the right decision for them #GCchat #AusGC apple.news/ARH5ZPPknQPuQf7Sl…
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We encourage genetic counselors to reach out to their members of Congress to explain the impact of restrictive abortion legislation on the ability to provide quality patient care. Find your members of Congress here: bit.ly/31de0Qf #DobbsvJackson #GCchat #SCOTUS
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