Grace Goldstein (@GraceGoldstein) header
Grace Goldstein (@GraceGoldstein) profile picture

Past president international rare cancer alliance, retired COO rare cancer foundation, social media devotee, exercise enthusiast(esp spinning), book & map lover

Westchester County, NY
Joined January 2010
Photo by Grace Goldstein (@GraceGoldstein)Photo by Grace Goldstein (@GraceGoldstein)Photo by Grace Goldstein (@GraceGoldstein)Photo by Grace Goldstein (@GraceGoldstein)
Grace Goldstein retweeted
Getting more magnesium from foods was linked to a bigger drop in blood pressure. Here are some of the best sources: wb.md/3MXnSTt
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Grace Goldstein retweeted
Neuroendocrine cancer is challenging to diagnose. 👉We would like to help all #oncologists to gain better understanding of NETs. ✅Download #NETInfo on different NETs in your language to be aware: incalliance.org/net-info-pac… #LetsTalkAboutNETs #OncTwitter #OncoTwitter #MedTwitter
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.@BonnieGarmus, Lessons in Chemistry is one of the best books I've ever read and I read a lot! Incredible main character, courage, truth, grit, poignancy, laugh-out-loud moments. Loved the dog too! When is your next book coming out? I can't wait!! bonniegarmus.com/
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Grace Goldstein retweeted
5/7 ➡️bit.ly/3z52iEu Glad to see a clinical trial testing Lutathera for adolescents with #pheo #para!
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Grace Goldstein retweeted
3/7 ➡️bit.ly/3voxr4K Thanks @JaydiraDelRivero @kimberlyPerez @CamiloJimenez @NadineMallak for taking the time to participate in this important upcoming #NETs #pheo #para webinar & @NANETS1 for organizing!
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Grace Goldstein retweeted
According to #SCAN, NET patients do not have sufficient access globally to NET experts and multidisciplinary teams - crucial for the right treatment. Let’s inform the medical community! #NETInfo in your language: bit.ly/3yTnBJh #LetsTalkAboutNETs #MedTwitter #MedEd
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If you have a #variant of uncertain significance (#VUS) in an #inheritedcancer gene, you may be eligible to participate in a focused #research effort conducted through #ICARE that aims to improve #geneticservices & #care. Learn more or enroll online at inheritedcancer.net
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Grace Goldstein retweeted
Stomach or duodenal irritation is a common symptom for neuroendocrine cancer of the stomach. GPs & gastroenterologists have to suspect it. Download #NETInfo in your language: bit.ly/3c3L0Qs #LetsTalkAboutNETs #GITwitter #GPTwitter
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Grace Goldstein retweeted
Thank you @IrinaBancos for covering such an important topic. Pregnancy and #pheo #para need to be managed by an experienced team. ➡️Check out our pregnancy page: bit.ly/3alKgp1 @adina_turcu @DrJunYang @TheEndoSociety @acog @aafp @SocietyGIM @ACPinternists #ENDO2022
Happening now - Maternal and fetal outcomes in PPGL by @IrinaBancos #ENDO2022 - Endocrine HTN session moderated by @adina_turcu @DrJunYang @TheEndoSociety
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Grace Goldstein retweeted
Experts on #pheo #para covering important topics patients ask us about every day. Thank you for sharing your time and expertise at the @NANETS1 conference in Portland OR yesterday! @HKennecke @ErikMittraMD @JaydiDelRivero @LMFendo @NadineMallak @GuillaumePegna
Great session and panel on Para/Pheo reviewing genetics 🧬, imaging 🖥, surgery 🔪 and trials for advanced disease 💊 @NANETS1 @PheoPara
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Grace Goldstein retweeted
According to #SCAN the clinicians most actively involved in monitoring of a NET patient are oncologists (60%) and GPs (44%). Improved NET awareness in primary care is vital. Share #NETInfo in your language: incalliance.org/net-info-pac… #LetsTalkAboutNETs #GPTwitter #tumorneundocrini
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Grace Goldstein retweeted
We are now enrolling in two new Phase I studies @UKMarkey DLL3 Targeted BiTE+Checkpoint study for SCLC NCT04885998 and Oncolytic Virus Phase I NCT03954067. Glad to share this moment with my SCLC mentor @SusanneArnoldMD and our excellent Phase I research staff. #DrugDevelopment
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Grace Goldstein retweeted
DYK? There has been a case of a #paraganglioma in a thumb! 😲👉🏼 dx.doi.org/10.1016%2Fj.jhsa.… #rarebutreal #para #pheoparaphearless
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Grace Goldstein retweeted
If you are diagnosed with NET Cancer in an emerging and developing economy your out-of-pocket annual expenses are 3 times more than those in other countries. The cost of NET Cancer care is high. We need to change this. #wescan #letstalkaboutnets

Jacques was absolutely unique. Had the honor and pleasure of working with him when he was Dean of Dance. Condolences to his family, friends and colleagues.
Purchase College honors the life of Jacques d'Amboise, former Dean of the Conservatory of Dance. While his time at Purchase was brief, he remained an enthusiastic supporter of the college, regularly attending concerts and events.
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Grace Goldstein retweeted
INCA’s first-of-its-kind review of the role patient support groups play in NENs, co-authored by @TeodoraINCA and Catherine Bouvier has been published as an open-access article in the prestigious Current Oncology Reports journal. #LetsTalkAboutNETs link.springer.com/article/10…
Grace Goldstein retweeted
The INCA/ENETS Symposium will take place on 26 February at 16:15 CET as part of the 18th Annual ENETS Conference. All interested in ways to maximize patient impact on improving time to NET diagnosis and research outcomes for NET patients are most welcome. incalliance.org/the-inca-ene…
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Congratulations to Professor David Grill and Ben Green ’15 on their Emmy Nominations! Hint, if you watched the Super Bowl or the Oscars, you've seen their stellar lighting design and direction. purchase.edu/live/news/4940-…
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Grace Goldstein retweeted
Neuroendocrine tumors (NETs) is a term for a group of relatively uncommon cancers. They can be slow-growing and symptoms so are often incorrectly attributed to more common conditions such as irritable bowel syndrome, Crohn’s disease, peptic ulcer disease, gastritis, asthma.
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