The Global Heart Hub is an alliance of Heart Patient Organisations uniting the patient voice across the spectrum of Cardiovascular Diseases. Join us!

Galway, Ireland
Joined September 2015
Huge congratulations to Global Heart Hub’s Founder and Executive Director Neil Johnson on receiving the World Heart Federation’s Advocacy Award in Cardiovascular Health. Recognising three decades of leadership, this award celebrates Neil’s dedication to people living with and affected by cardiovascular disease. From community action in Ireland to a global patient network reaching more than 28 million people worldwide, Neil has helped build a community where people feel heard, connected and empowered. So well deserved, Neil. Thank you for the heart you bring to this work and for all you continue to make possible. 💜 Read more: globalhearthub.org/world-hea…
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The people who matter most are worth showing up for. ❤️ Many health risks can be present even when we feel well. EU Screening Week is a reminder to make prevention part of everyday life — and to have a conversation with a health professional about your heart and metabolic health. A little awareness today can help us make more time for tomorrow. See how you can get a health check in your country: health.ec.europa.eu/know-you… @EU_Commission #KnowYourNumbers #EUScreeningWeek
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Look Beyond the Usual. ❤️ This World Heart Day, the @EUCVHAlliance is launching Look Beyond the Usual, a new campaign aiming to raise awareness of cardiovascular disease in younger people and ultimately improve its recognition. Young people can have cardiovascular disease too. This campaign encourages frontline healthcare professionals to look beyond age and appearances when symptoms call for a closer look. Pause. Reconsider. Reassess. 👉 Explore the campaign: cardiovascular-alliance.eu/o… 📰 Read the press release: cardiovascular-alliance.eu/p… #LookBeyondTheUsual #WorldHeartDay #YoungEACH
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Think you’d always know if something was wrong with your heart? 👀 So, what can we do? ✅ Learn the signs ✅ Know your numbers ✅ Seek advice if something feels wrong. ❤️ Don’t miss a beat. Protect your heart. 👉 Learn more: world-heart-federation.org/w… #WorldHeartDay #DontMissABeat
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Patient leadership is already happening across Asia-Pacific. Now it’s time to amplify it. 🙌 Global Heart Hub’s new report sets out how stronger patient engagement and partnership can help shape more responsive, connected and person-centred cardiovascular systems across the region. Access the report and explore the Patient Leadership Roadmap: globalhearthub.org/APAC-repo… #CardiovascularHealth #GHHAPAC
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Heart disease can hide in plain sight. Don’t miss a beat. ❤️ Daily movement can be a simple way to support your heart health. A walk, a cycle, a dance with friends or any activity you enjoy can all add up. This World Heart Day, let’s make movement part of our everyday lives and take simple steps to protect our hearts. Recognise early signs, speak with a health professional if you have any heart concerns. Knowing your numbers can help you understand your risk. Learn more about protecting your heart: world-heart-federation.org/w… @worldheartfed #WorldHeartDay #DontMissABeat #KnowYourNumbers
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More moments together start with looking after your health. ❤️ EU Screening Week starts today. From 28 September to 4 October, join the conversation around prevention, early detection and taking action for your heart health. Know your blood pressure, cholesterol and blood sugar, and speak with a health professional about what these numbers mean for you. See how you can get a health check in your country: health.ec.europa.eu/know-you… #KnowYourNumbers #EUScreeningWeek
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This FH Awareness Day, Global Heart Hub stands with the FH community. 🫀 Familial hypercholesterolaemia (FH) is an inherited condition that causes lifelong high LDL cholesterol. Early diagnosis and care can help reduce cardiovascular risk. On 24 September, let’s raise awareness, talk about family heart health and help more people know their numbers. To know more, visit this link: fhef.org/fh-awareness-day/ @fhpatienteurope #FHAwarenessDay #KnowYourNumbers #PreventThePreventable
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The challenges are shared. So is the opportunity to act. ✅ The Asia-Pacific Cardiovascular Patient Leadership Roadmap sets out a phased pathway to strengthen patient organisations and embed lived experience in cardiovascular policy, programmes and health-system decision-making. At Global Heart Hub, we support this shared vision for stronger patient leadership across Asia-Pacific. Explore the roadmap: globalhearthub.org/APAC-repo… #CardiovascularHealth #GHHAPAC
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Patient organisations bring lived experience, community reach, trust & practical insight into what people need from cardiovascular care.​💯 ​ ​ Yet their contribution is too often limited to awareness-raising alone, with inconsistent opportunities to shape policy, research and service design. ​ ​ Global Heart Hub calls for meaningful and sustained patient participation in the decisions that affect our communities. ​ ​ Read our newly launched report and roadmap: globalhearthub.org/APAC-repo…​ ​ #CardiovascularHealth #GHHAPAC
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Our day is full of sounds, but there are some important sounds that you cannot hear yourself. Like the sound of a heart murmur. It’s not something you can hear yourself, but your doctor can with a simple stethoscope check… the first step in detecting heart valve disease. 🩺 Heart valve disease can develop quietly. Symptoms like breathlessness, fatigue or dizziness may not appear for years… or may not appear at all. Sometimes, the first sign is a heart murmur — a subtle change in the sound of blood flowing through the heart. Learn more 🔗 globalhearthub.org/valveweek… #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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Early detection of heart valve disease is important because it could save your life. Know the symptoms: ➔ Breathlessness ➔ Dizziness ➔ Fatigue Heart valve disease can affect anyone. It can be congenital or acquired - in part related to ageing - but it can also affect younger people, for example, in countries with a prevalence of rheumatic heart disease. 🔍The key is early detection. 🩺 A simple stethoscope check could save your life. Heart valve disease is common, serious, but treatable. Learn more today 🔗 globalhearthub.org/valveweek… #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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💔 Despite its growing prevalence, heart valve disease remains underrecognised, under-diagnosed, and undertreated, especially in women. Too many women have their symptoms dismissed as anxiety, menopause or stress. We must change this. It’s time to ensure women have timely access to diagnosis, treatment and care. It’s time to take women’s heart health seriously. 💬 Join us and share this important message to improve detection, diagnosis and treatment of heart valve disease for everyone around the world. Learn more 🔗 globalhearthub.org/valveweek… #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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Heart valve disease is a medical condition that occurs when one or more of the four valves in our heart don’t work properly. It is common, serious, but treatable, and a heart murmur may be the first sign. So if you feel breathless, dizzy, or more tired than usual, ask your doctor for a stethoscope check. That’s all it takes to hear the warning sound of heart valve disease. Learn more 🔗 globalhearthub.org/valveweek… #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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There are many signal sounds that we can hear ourselves, but heart valve disease isn’t one of them. Sometimes, a heart murmur can be an early sign of heart valve disease. You can’t hear a heart murmur yourself, but your doctor can with a simple stethoscope check. 🩺 A heart murmur is caused by turbulent blood flow through the heart valves. There are many kinds of heart murmurs – it can sound like a “whoosh”, “swish” or other unusual sound. Listen to your heart. Listen for the murmur. Learn more 🔗 globalhearthub.org/valveweek… #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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In Asia-Pacific, too many people living with cardiovascular disease navigate a fragmented care journey, from diagnosis to treatment, rehabilitation and long-term follow-up. 🛡️ 🩺 💊​ ​ Global Heart Hub’s Asia Pacific Cardiovascular Roundtable participants identified fragmented pathways, weak follow-up and rehabilitation and limited public awareness as shared challenges across very different health systems. ​ Our call to action is clear: Cardiovascular care must support the whole person across the whole journey. ​ Explore the findings in GHH's new report, Driving Cardiovascular Action in Asia-Pacific: Patient Partnership and Collaborative Leadership: globalhearthub.org/APAC-repo…​ ​ #CardiovascularHealth #GHHAPAC
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Life is full of important sounds. For people living with heart valve disease, one sound that might stand out is the sound of a heart murmur… like a “whoosh”, “swish” or other unusual sound. Watch now to hear from the Global Heart Hub community on what it means to be living with heart valve disease. Heart valve disease is common, serious, but treatable. With early detection and diagnosis, people can live better and longer. Learn more 🔗 globalhearthub.org/valveweek… #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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💜 What does it mean to live with Heart Valve Disease? Fabiane shares her experience. For Fabiane, it has been part of her life since she was young. She remembers feeling extremely tired and having to adapt to what her body could manage. Years later, she has gone through several heart surgeries — experiences that have shaped how she sees her health and her life. In our latest Patient Voices story, Fabiane shares what living with Heart Valve Disease has looked like for her, and the importance of having the right care and support along the way. 🔗 Read Fabiane’s story: globalhearthub.org/global-he… Special thanks to our friends at Instituto Lado a Lado pela Vida for helping share Fabiane’s story. 💜 #HeartValveDisease #ValveWeek26 #ListenToYourHeart
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【9/14~9/20は心臓弁膜症啓発ウィーク】 本日より@GlobalHeartHubが世界中で啓発キャンペーンをスタート! 心臓弁膜症は、よくある、しかし深刻な病気ですが、治療可能な病気です。 ▼特設ページ heartvalvevoice.jp/news/2026… #あなたの心臓の声を聴こう #ListenToYourHeart
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【9/14~9/20は心臓弁膜症啓発ウィーク】 本日より@GlobalHeartHubが世界中で啓発キャンペーンを開始! 心臓弁膜症は4つある心臓弁のうちいずれかが正常に機能しなくなった場合に生じる病気です。心雑音は聴診で発見できます。 #あなたの心臓の声を聴こう #ListenToYourHeart
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