A Global Citizens’ Assembly on Genome Editing. Connecting Citizens, Science and Governance at a Global Level.
Joined October 2019
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📢From our national partners in France 🇫🇷
The full report from @EspaceEthique Ile-de-France on their citizens' workshops with high school students, to deliberate the ethics of #genomeediting.
Summary report to come 🙌🏾
💡Nous avons le plaisir de rendre public les comptes rendus complets des ateliers citoyens sur les enjeux éthiques de l'édition du génome avec les lycéens.
👉 Nous travaillons au rapport de synthèse qui sera bientôt rendu @GlobalCitzAssem @Inserm
espace-ethique.org/sites/def…
Call for abstracts for the upcoming Bioethics X Philosophy of Science conference @Filoz_Prakt! Aim is to explore practical, theoretical & regulatory issues in biomedical research...
Keynote from @ankeny_rachel, one of the Aus Citizens' Jury on #GenomeEditing expert witnesses.
"Genomic imaginaries" grapple with & help to construct notions of citizenship, humanity and belonging informed by #genomics.
@ELSIhub have what sounds like a fascinating panel coming up, with Lara Choksey and @lalarkin, moderated by Rebecca Wilbanks.
us06web.zoom.us/webinar/regi…
Striking results from the UK #CitizensAssembly on #Democracy just released by @ConUnit_UCL & @involveUK.
E.g. members say they're "disappointed with how democracy is working...because there are not enough ‘ordinary people’ in parliament & government"
ucl.ac.uk/constitution-unit/…
Roundtable on the ethics of genome editing, coming up on Jan 20!
Moderated by our brilliant project partner, Prof. Hervé Chneiweiss and featuring @FrancoiseBaylis, Hidenori Akutsu and @MartinaCrispo.
#bioethics #genomeediting #crispr
events.unesco.org/event?id=1…
"much more creative work is needed on how to integrate [climate assemblies] into the political system"
@Smith1966G reflects on where the #delibwave is at and where it might be going...
fdsd.org/blog-gs-climate-ass…
Today on Twitter, @NHGRI_Director Dr. Eric Green and Dr. Ben Berkman answer your questions on #bioethics and #genetics! 🧬
Join me and Dr. Ben Berkman on Wednesday, Jan. 13 at 2:00 pm ET as we answer your questions about genomics and bioethics -- right here on Twitter! We are excited to converse with all of you. Send us your questions now using #AskDrGenome!
Global Citizens Assembly retweeted
Are you from a Black heritage background and thinking about developing your social science research career? Interested in genomics? We @ethicsWCS are part of a great Fellowship opportunity with our @sangerinstitute colleagues! 👇
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Two years ago, Victoria Gray volunteered to become the first sickle cell patient in the US treated with #CRISPR gene-editing. Here she shares a really positive update on how the treatment has transformed her life since then.
npr.org/sections/health-shot…
A glorious end of year wrap from our partners @DelDemUCan 🤩💫
Research projects, hiking achievements, and Covid-safe celebrations. Our year unwrapped 📸
From us, in Canberra, we wish you a happy new year 🥳
@UCBGL @UniCanberra
Will be reading @hastingscenter's new Special Edition cover to cover!
Thanks to eds @gusmano_mk @KaebnickG Karen J Maschke @carolynpneuhaus & Ben Curran Wills for bringing us a range of perspectives on public deliberation about #geneediting in the wild.
onlinelibrary.wiley.com/toc/…
What can the empirical and conceptual analysis of eugenics tell us about the use of new genetic technologies?
A fascinating discussion coming up on Jan 14, hosted by @ELSIhub:
us06web.zoom.us/webinar/regi…
Global Citizens Assembly retweeted
Day 15 of #bioethicsadvent
What are the ethical issues raised by #wholegenomesequencing sequencing in newborns?
Join the discussion at this @BioNewsUK event, tonight: pet.secure.force.com/PETEven…
But make sure you've read our briefing note first! 👇nuffieldbioethics.org/public…
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Fantastic to hear about the launch of the #KavliCentres for Ethics, Science and the Public!
The Centres aim to engage the public in discussions on ethical considerations born from scientific discovery: kcesp.ac.uk/. Follow @EthicsSciPublic
youtu.be/5WgkLSHbPdY
"Every one of us will be shown to be subtly suboptimal."
A thought-provoking piece by @dandavis101, on the implications of genetic data becoming more accessible.
theguardian.com/books/2021/d…
On "seeing like a citizen".
Don't miss @Boswell_JC's fascinating reflections on how being selected for a #CitizensAssembly upended many of his prior assumptions grounded in scholarship and having been an observer/facilitator/organiser of #minipublics.
delibdemjournal.org/article/…
Global Citizens Assembly retweeted
The preliminary report from our Australian Citizens' Jury on Genome Editing is out now @GlobalCitzAssem. Cheers to @simonniemeyer @diannenicol1 Rebecca Paxton and Kath Fischer for leading the write-up.
australiancitizensjury.org/i…
OUT NOW: @Nuffbioethics new report examining the social and ethical issues raised by the potential use of #genomeediting technologies in farmed animal breeding.
nuffieldbioethics.org/public…
Global Citizens Assembly retweeted
This webinar with Susan and Eva is the ideal primer to understanding the complexity and humanity of the #GlobalAssembly Please do watch and please do consider sending this around your networks vimeo.com/649477350
The 'CRISPR babies' are now toddlers. A new article by @metricausa for @NatureBiotech asks important questions about how their edited genomes might affect their lives?
nature.com/articles/s41587-0…