Passionate fundraiser Mum of 4, Gran of 4. I love to travel, enjoy gardening. Independent travel agent balancing work around my grandson’s complex needs.
yorkshire
Joined July 2012
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Two brothers, two very broken hearts. It’s heart month please retweet to raise awareness. Thank you ❤️@Ligero1 @davidwalliams @CharlotteHawkns @piersmorgan @ashoztd @astro_timpeake @TAToussaint @PCSO3580Ruth
I looked after George’s little brother yesterday while his mummy attended the Walton Centre. She has end-stage diabetic neuropathy and IIH, has been told she’ll lose her sight soon and is now on oxygen at home. She hoped for pain injections; they now plan nine injections into her head to try to help but will need to be in hospital for the day. So back to Liverpool to the Walton centre next week.
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Thank you to all my new followers. I thought I’d share a little about my G 💙
He turns 15 in January and lives with complex heart disease, lung disease, complete heart block and gastroparesis. He has a pacemaker, and his stomach only works at around 10%, so he receives his milk through a tube into his jejunum.
G is ventilated every night and takes lots of medication, but he never moans. I’m so proud of him, and I’m also an advocate for children living with heart conditions. I’ll be sharing more about G and our life together here.
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@FenwickStores After a trip to the RVI for his cousin’s tube, fitted by the incredible radiology team, we took Theo to see the Fenwick Christmas window. He was so excited! 🎄❤️ ❤️
#FenwickChristmasWindow #Newcastle #ChristmasMagic #GrandsonTime #Theo
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Please share in any heart groups you’re part of 💗
Do you know a grandparent whose grandchild has a heart condition? Join Nicola ( me) and other heart grandparents for a friendly, informal online chat.
📅 Wednesday 11 November, 7:30pm
Register here: eventbrite.co.uk/e/grandpare…
@HeartlineUK @CHUFOfficial @CHeartLink
George’s tube went in within 30 minutes, so we were able to grab some lunch and take my grandson Theodore to see the Fenwick window before making the 2½-hour drive home.
I’m eternally grateful to the wonderful teams at both the RVI and Freeman hospitals. Thank you so much for all your good wishes.
@NewcastleHosps
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Tomorrow we’re taking G back to Newcastle for his jej tube. Last week it took over two hours to get in, then it came out the next day. His tummy absorbs only around 10%, so he relies on feeding beyond his stomach. He goes through so much and never moans. Wish us luck .. he’s been taping it up all week.
We’re so lucky to have one of the best consultants at the RVI in Newcastle looking after G. He’s known George since he was tiny, and G trusts him completely. He always talks to G at his level, and that makes such a difference.
It’s a two-and-a-half-hour drive, but Newcastle means so much to us. G supports Newcastle United now, after all — it’s the city that saved him. 🖤🤍⚽
Again thank you !
George and I want to say a huge thank you. We’re so close to our target, and he’s been excited watching the donations come in. Thank you to everyone who’s donated or shared 💙
George’s feeding tube came out the same evening it was fitted on Friday, so we now need to make the two-hour drive to Newcastle for a replacement. We appreciate you all so much.
@LittleMix
gofund.me/91cad542a
Nicola retweeted
Supporting a family with financial pressures, benefit applications or equipment needs? Refer them to the WellChild Family Welfare Service for practical, compassionate support. wellchild.org.uk/get-support…
#FamilyWelfare #ProfessionalReferral #WellChild
From when G was tiny, I’ve always been his advocate. As long as he has life in him, I’ll keep fighting for him.
I fought to get him to a new hospital when we were told to take him home to die. I fought for him to get a place at primary school when no school in our area would take him. And now I’m fighting not only for him, but for others affected by heart disease and disability.
He shouldn’t have to worry about funding or where the money is coming from. He should just be able to enjoy being a child.
Thank you to everybody who has supported us. It means more than you know. ❤️
This is him every night .. some people think I’m making this up.
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Noah took the youngest member of our family to the beautiful nature reserve in Embsay, where there’s a bench in memory of my late dad. He was clerk to the parish council for over 30 years. It’s a very special place to our family ❤️
#Embsay #GreenSpace #NatureReserve #FamilyMemory
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We just want to say a huge thank you to all that have donated ! Thank you !
Hi, I wanted to share George’s fundraiser with you 💙 He lives with heart failure, a pacemaker, a tracheostomy, tube feeding, and complex medical needs, and needs trained carers at £1,500 each to make his dream trip to Iceland possible. It’s already made strong progress toward its goal, so please donate or share if you can to help keep the momentum going.
gofund.me/cf54e9ea2
People are asking if we are ‘real’ a few years ago he won an award for bravery you can see it here .. since then however he’s now in heart failure and on a trial from America. Please do watch.. we are eternally grateful 🙏 he loves @NUFC as it’s the city that saved him. youtu.be/092JtXR0I7k?si=vvEx…
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gofund.me/91cad542a
Just want to say a huge thank you !
George and I want to say a huge thank you. We’re so close to our target, and he’s been excited watching the donations come in. Thank you to everyone who’s donated or shared 💙
George’s feeding tube came out the same evening it was fitted on Friday, so we now need to make the two-hour drive to Newcastle for a replacement. We appreciate you all so much.
@LittleMix
gofund.me/91cad542a
