The Graves’ Disease & Thyroid Foundation provides educational and support services for patients with Graves’ disease, thyroid eye disease & related disorders.

Rancho Santa Fe, CA
Joined October 2011
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FIVE days until our survey for USA-based patients closes. Please take 20 minutes to make your voice heard! survey.us.confirmit.com/wix/…
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Our Graves' patient survey has been extended to Sept. 15th! If you don't have 20 minutes to complete the survey in one sitting, you can save your place and come back! Get started here: survey.us.confirmit.com/wix/…
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Men get Graves' disease, too - and we want to hear from you! Take our patient survey here: bit.ly/4wJhMtO
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July is Graves' Disease Awareness Month, and we'd love for you to tell your story! Learn more about our new survey project here! (Direct link to survey in next post.) youtu.be/C0tlHODd_fw
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July is Graves' Disease Awareness Month & our next major initiative is underway! We are humbly asking for you to donate 20 minutes of your time to complete an anonymous survey that covers a variety of topics on the Graves'/TED experience! #Gravesdisease survey.us.confirmit.com/wix/…
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If you are attending #AAES2026, today is the last day for the exhibit hall - stop by Ballroom 1 and say hello!
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1/2 Immunovant, Inc. has announced topline results from its Phase 3 trial of batoclimab, noting that the investigational drug failed to meet its primary endpoint (≥2mm reduction in eye bulging after 24 weeks).​ immunovant.com/investors/new…
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3/3 ...just over half of the participants in the 4-week group saw a complete resolution of double vision. A separate study is evaluating elegrobart for inactive (chronic) thyroid eye disease, with results expected later this year.
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🚨 Perhaps the most striking change in the FDA's Mar. '26 v. Aug. '25 guidance on desiccated thyroid extract is what's NOT included: all of the prior references to transitioning patients away from #DTE have been removed. Bookmark our blog post for updates! gdatf.org/u-s-food-and-drug-…
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🚨 NEW! This update from the FDA replaces the 12-month doomsday deadline on #DTE with an announcement that "draft guidance" will be prepared. Good news for patients! But would this have affected the CVS/Caremark decision to remove DTE from its formulary had it come sooner?
We thank Dr. Makary and the FDA for your leadership in protecting access to DTEs for the 1.5M Americans who depend on this vital medication every day. We look forward to continuing our work in pursuit of full FDA approval. fda.gov/drugs/enforcement-ac…
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Curiouser and curiouser: the FDA has quietly deleted its August 2025 guidance on desiccated thyroid extract and replaced it with a statement that "draft guidance" will be issued by August 2026: fda.gov/drugs/enforcement-ac…
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If you have been affected by the CVS Caremark/Aetna removal of NP Thyroid from their drug formulary, please see this statement from Acella Pharmaceuticals, LLC for suggestions regarding access and pricing. gdatf.org/wp-content/uploads…
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Thanks to @TheAAES for the shoutout and for all the excellent content this month!
Some patients with #GravesDisease feel like their thyroid is fighting against them! Get resources and connect with others in gdatf.org/ #GravesDiseaseAwarenessMonth #GDAM2025 @GDATF @AmThyroidAssn @TheAACE
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1/2 DTE Update: @RepAbeHamadeh released a statement calling on the FDA to "Cease Enforcement Action" on desiccated thyroid extract. Parts of the letter are politically charged, but we're sharing it here because of the relevance to the thyroid community. hamadeh.house.gov/media/pres…
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While @DrMakaryFDA posted on Aug. 13th that the FDA would "ensure access" to desiccated thyroid extract, the original Aug. 7th memo has not been rescinded, and the 12-month transition period is now down to <10 months! Our patient community needs clarity. @FDACBER @FDACDERDirector
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Thank you, @AmThyroidAssn! (Please note that this letter is in *addition* to the statement previously released by the ATA.)
The ATA urges the #FDA to ensure continued patient access to Desiccated Thyroid Extract while a quality control system is established. Patients deserve consistent and effective treatment options! Read the full letter: ow.ly/vlPc50X9oBe #DTE #ThyroidHealth #Thyroid @US_FDA
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Congratulations to all the recipients - and thank you for bringing us closer to fully understanding autoimmunity! For more information on this critical research, check out this excellent explainer from The Nobel Assembly at Karolinska Institutet: nobelprize.org/.../popular-m…
BREAKING NEWS The 2025 #NobelPrize in Physiology or Medicine has been awarded to Mary E. Brunkow, Fred Ramsdell and Shimon Sakaguchi “for their discoveries concerning peripheral immune tolerance.”
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The @US_FDA sent this letter re: desiccated #thyroid extract (DTE) on Aug. 6th, and recipients were required to respond w/in 30 working days. Has anyone spotted a response that's been posted publicly? If so, tag us and we'll add it to our list of updates: gdatf.org/u-s-food-and-drug-…
1/5 🚨Please Read if you take Armour Thyroid, NP Thyroid, Nature-Thyroid or other desiccated thyroid extract products.🚨 The U.S. Food & Drug Administration is targeting manufacturers, importers and distributors of DTE products, calling these products... fda.gov/drugs/enforcement-ac…
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