We are honored that the FOXG1 Research Foundation has been nominated for @GalienFdn inaugural 2026 Prix Galien Patient First Award in Honor of Michael J. Fox, in the Patient-Led Initiatives category. Read the announcement: bit.ly/4hmn4Xu

We are are so deeply grateful to the California Institute for Regenerative Medicine (CIRM) for awarding our parent-led foundation $4.9 m to advance FRF-001 - our FOXG1 gene therapy clinical trial. #cirm #foxg1 #genetherapy

We refused to believe that nothing could be done and took developing a treatment into our own hands! #foxg1syndrome Make history with us! Foxg1research.org/donate

This summer, the #FOXG1 #genetherapy clinical trial begins! Every dollar donated gets us closer to bringing the first treatment to FOXG1 children across the world. youtu.be/8RYCp5j9oRg

The summer it begins — our midyear newsletter is here 🦊 - mailchi.mp/foxg1research.org…

FOXG1 is heading to the Sports Emmys! The @espn @CollegeGameDay piece about Lawson Luckie and his brother Cannon is nominated! This beautiful story deserves to win - it shows what a brother’s love really means. 🧡🦊👊🏻🏈@lawson_luckie @TomBrady @UGAAthletics

Breaking News! The FDA has cleared the #FOXG1 #GeneTherapy clinical trial to begin! Watch as our co-founders Nasha and Nicole announce this news, and share what this means and what comes next. youtube.com/watch?v=csZHyk6B…

Hot off the press! 🗞️ The 2025 Impact Report is here! 2025 marked a pivotal year for the #FOXG1 Research Foundation. #genetherapy #raredisease 👉 Read our 2025 Impact Report: foxg1research.org/news/2025-…

If you want to understand the thinking behind the FOXG1 Research Foundation and our approach to sponsoring our own gene therapy clinical trial, this conversation is a can’t miss. Thank you BridgeBio for diving deep into Nasha’s story and for your focus on rare.

Our community is grieving the loss of our beautiful FOXG1 warrior, Cadence. It is just unfair and heartbreaking to say goodbye to such a bright light. To her amazing parents, you will always be our family and we will always honor sweet Cadence with our relentless work. 🧡🙏🏼

2025 is almost over! There’s still time to make a difference. Your #DAF gift today fuels tomorrow’s change. Give now: secure.qgiv.com/for/foxg1res… @givinblockdonor #nonprofit

Tonight’s plans can change a child’s future. Dine in and donate to a #FOXG1 fundraising team for your gift to be doubled! secure.qgiv.com/event/foxg1r…

Giving Tuesday Match! All donations to a FOXG1 child’s team will be doubled up to $500k! Thank you for helping! secure.qgiv.com/event/foxg1r…

Help bring a promising gene therapy to FOXG1 children worldwide with your #GivingTuesday2025 gift youtu.be/OgEaVQiC_qs?si=m96k…

Your gift today brings us closer to delivering the FOXG1 Gene Therapy to children worldwide. secure.qgiv.com/event/foxg1r… #GivinTuesday2025 g

It’s @GivingTuesday! This #GivingTuesday, your gift to any FOXG1 fundraising team is DOUBLED. We’re close bring the first treatment to children with #FOXG1syndrome — and we can’t do it without you. Help us reach $500,000 today. Give now. 🔗 bit.ly/4iuHjS5

We’re thrilled to announce that our wonderful supporter, Fondation Thot, is generously matching all donations up to $500,000! That means every dollar raised will now go twice as far to help bring our gene therapy to children worldwide. secure.qgiv.com/event/foxg1r…

Yesterday was an EPIC day for the #FOXG1 community. @TomBrady shared our FOXG1 #genetherapy with the world and the support has been incredible. Every share and every donation brings us closer to bringing the #FOXG1genetherapy to children worldwide. secure.qgiv.com/.../foxg1res…