@FamDys
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FD Foundation is the leader in FD treatment and research. Our mission is to raise funds & operate programs with best medical treatment & sci. research for FD
New York
Joined September 2009
- Tweets877
- Following222
- Followers279
- Likes408
🎉 75 years of hope, progress, and community.
From 1951 to today — 75 years of advancing care, research, and hope for Familial Dysautonomia. Thank you for being part of the journey. 💙
#FD75 #FamilialDysautonomia #RareDisease #HopeThroughResearch
✨ You’re Invited! ✨
Join the Goldberger family for an exclusive evening of #shopping, style & philanthropy at @aliceandolivia Madison Avenue 🌸
🛍️ 15% of your purchase will benefit @FamDys supporting longer & better lives for those living with this rare neurological disorder.
The 28th Annual FD Golf Classic is coming up SOON. Secure Your Spot Today! 🏌️♂️🏌️♂️🏌️♂️
bit.ly/FDgolf
#familialdysautonomia #community #raredisease #golflife #golfswing
FD Golf Classic is ONE month Away!!!
Register, Sponsor or Donate Today
bit.ly/FDgolf
#golf #golflife #golf4FD #jewish #familialdysautonomia #raredisease #community
It’s time for the Familial Dysautonomia’s 28th Annual Golf Classic, at Glen Oaks Country Club on August 18
To Register, Sponsor or Donate visit bit.ly/FDgolf
#golflife #golfcourse #silentauction #raffle #familialdysautonomia #jewish #raredisease #newyorkcity
We earned a 2025 Candid Platinum Seal of Transparency!
Keep up with our work in the community: tinyurl.com/fdCandid
#nonprofitprofile #familialdysautonomia #raredisease #jewish
FD Day will be held on Sunday, June 8
Hear from #physicians, #scientists & others collaborating to ensure longer & better lives for ppl with FD. Learn about the latest #research initiatives underway, new advances in FD medical care & more!
#familialdysautonomia #raredisease
We are delighted to announce that TEAMFD will participate in the 2025 #TD Five Boro #Bike Tour
Members of TeamFD are expected to:
- Fundraise a minimum of $1000 (but the sky’s the limit!)
- Have fun!!
bit.ly/FDbike
#bikelovers #nyc #sport #familialdysautonomia
Join the FD Family in Showing Your Stripes for Rare Disease Day TODAY!
Help raise awareness for FD by rocking your stripes too!
#FDisRare #ShowYourStripes #RareDiseaseDay #FamilialDysautonomia
Celebrate Rare Disease Day by Showing Your Stripes Today!
The #Zebra is the symbol for rare diseases, so wear your striped shirt, socks, suit, pjs, etc. to help raise awareness for FD!
#FDisRare #ShowYourStripes #RareDiseaseDay #FamilialDysautonomia
For this year's Rare Disease Day on Feb. 28th, let's proudly display our stripes to raise awareness for #familialdysautonomia
Send us your photo so we can share it on our SM platforms to promote awareness for FD bit.ly/FDisRare
#Stripes4FD #FDisRare #ShowYourStripes
FD Foundation retweeted
ICYMI: A number of Jewish runners supported a variety of causes at @nycmarathon. Rabbi Joshua Franklin raised funds for @FamDys, among many other runners who fundraised and supported other Jewish organizations and causes.
jta.org/2024/11/01/ny/at-the…
#didyouknow?
To learn more or donate visit famdys.org
#familialdysautonomia #raredisease #health #fdfoundation
.@famdys and @NYU Dysautonomia Center are hosting FD Day on Sunday, Sept 15.
Tune in to discover the latest research initiatives underway, new advances in FD medical care and more!
Register at famdys.org/fdday24
#fdday24 #familialdysautonomia #raredisease #jewish
Stay in the Loop on FD research, foundation events & community news.
Don't miss out on the chance to stay informed and entertained with our latest news.
#Newsletter #FDResearch #StayConnected #FDCommunity #fdfoundation
An easy way to double your contribution is through employee giving programs.
See if your employer will match your donation and double your contribution to support individuals with #FamilialDysautonomia.💙
familialdysautonomia.org/dou…
The FD Foundation event is almost here! Have you:
Registered?
Sent your "I'M/WE'RE WATCHING FROM" video?
Submitted your artwork?
If not, visit famdys.org/fdday24 or click our bio link to get it done. See you Sunday, September 15, 2024, from 11 AM to 2 PM EDT!
Send in your “I'm/We’re Watching From” video by Sept. 3!!!
We invite families and other members of our community to send in a video message to be shown during the FD Day program telling us from where YOU will be watching FD Day.
Submit video here: shorturl.at/KVaLg
The Foundation seeks sponsorship support. To explore sponsorship options or make a donation, you can visit the FD website famdys.org/fdday24
#sponsor #familialdysautonomia #raredisease #jewish #support #tuesdaymotivations
TeamFD will run 26.2 miles through all five boroughs of New York City to raise funds and awareness for the #FamilialDysautonomia (FD) community.
Support TeamFD Today!
p2p.onecause.com/fd24maratho…
#familialdysautonomia #runforlife #run #nycmarathon #tcsnycmarathon #marathon
