I'm just a girl tweeting and blogging about life with #endometriosis and #adenomyosis. Trying to figure out how to lead a good life despite chronic illness.
England, United Kingdom
Joined October 2014
- Tweets4.4K
- Following1.5K
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I blog about life with #endometriosis and living well despite #chronicillness on my site: 'The Endo The World?': theendotheworld.com.
It's been 8 years of bliss since my surgery, but now my shoulder tip pain is back. I think I'm having symptoms from the #endometriosis on my diaphragm again. Hoping it's just a random fluke 😭
Endo The World? retweeted
170 million women suffer from #Endometriosis worldwide, yet it can take years to diagnose. We lift the lid on this debilitating & mysterious condition on tonight’s episode of #YourBodyUncovered w/ @KateGarraway. If you’re looking for answers, join us at 8pm on @BBCTwo.
Endo The World? retweeted
Oh gosh, this is so good. It’s incredible. To visualise the “invisible”. And Miriam is speaking so well. It’s finally breaking into homes!
@kategarraway #yourbodyuncovered #Endometriosis @DrGuddiSingh @BBCTwo @EndometriosisUK
Endo The World? retweeted
Watch BBC2 at 8pm this Wednesday. We used augmented reality to walk around 3D images of one of my patients severe #endometriosis. They followed Miriam’s journey and came to theatres and filmed the surgery too. I haven’t seen the final cut myself. Looking forwards to it.
March is #EndometriosisAwarenessMonth.
I was able to share some of my story with Herts Live, along with some other incredible women from Hertfordshire, about my experience with #endometriosis.
Article below 👇
(Oh and I am THAT women in the headline!)
hertfordshiremercury.co.uk/n…
Endo The World? retweeted
"I can’t remember what it’s like to wake up not in pain."
Thank you to Lauren, a new member of one of our support groups who has been waiting for two years for surgery for #endometriosis, for speaking to Good Morning Britain (@GMB) on ITV on Friday.
itv.com/hub/good-morning-bri…
ALT Screenshot of ITV's Good Morning Britain programme. Woman sat on sofa, speaking to camera. Caption says: "Paying the price for health - GMB poll reveales patients on NHS waiting list get into debt to fund private treatment. Endometriosis UK logo underneath
Endo The World? retweeted
This #WorldBookDay please let me recommend this book to anyone who has #endometriosis.
A perfect mix of medical and patient personal. It’s blooming great 🙌🏻
@EndometriosisUK @exppect @horne_research
#endometriosisactionmonth
#EndometriosisAwarenessMonth
Endo The World? retweeted
During #EndometriosisActionMonth, we call on healthcare practitioners to take the opportunity to learn more about #endometriosis, and share relevant resources with their peers and colleagues.
ALT The text End the pain: healthcare practitioner awareness, Endometriosis Action Month on a red and yellow graphic with the logo of Endometriosis UK
Endo The World? retweeted
Endometriosis is one of the most painful health conditions which affects more than 1 in 10 women in the world. More needs to be done for this chronic condition.
#EndometriosisAwarenessMonth #Endometriosis – at London, England
Can't decide whether my worst pre #endometriosis diagnosis story is a consultant telling me my *chronic* pain was likely the result of 'eating a dodgy kebab' or being told by my GP at 13 years old that my symptoms would improve after having a baby 🤪
#EndometriosisAwarenessMonth
It's #EndometriosisAwarenessMonth.
As a sufferer of 20+ years I can tell you #endometriosis is excruciating and can impact every aspect of your life.
But please know, especially if you're new sufferer, there is hope and living well with this disease is possible. Tips below 👇🧵
4. Tell people what you're going though.
I promise they won't faint. You can't expect anyone to be supportive or your cheerleader if they don't know what's going on. 10 years post diagnosis it's amazing the people who enquire after my #endometriosis when I'm out in public 🤣
5. Be VERY kind to yourself.
A lot of heartache could have been saved for me if someone had told me, or I'd realised, that having #endometriosis is not my fault, I don't deserve it, and I'm not a burden to my loved ones. Do what you need to do to take care of you and keep going.
Endo The World? retweeted
End the silence.
End the pain.
It's time for Action.
We're launching our list of actions to be taken during #EndometriosisActionMonth - whoever you are, if you want support those with the disease, find out what you can do here: endometriosis-uk.org/actions
Proud of my Endo bestie Rosie for sharing her #endometriosis story to raise awareness this week 👋
"The pain was constant - it hurt to sit, it hurt to stand, it hurt to walk. But people live with that day in, day out. The debate on research is so important."
A big thanks to our supporter Rosie Longman for speaking to @BBCLookEast about the #PCOSandEndoDebate #PCOSEndoDebate
ALT Rosie Longman, Endometriosis patient, standing in garden being interviewed by BBC
ALT Emma Cox, CEO, Endometriosis UK, is interviewed by BBC Look East