Double Blind Randomised Control Trial looking at early use of IVIG to improve recovery in adults with autoimmune Encephalitis. Funded by NIHR EME programme
Joined February 2021
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Enceph-IG Trial retweeted
Tonight, #Cardiff Castle will shine red to mark World Encephalitis Day, a day to raise awareness of encephalitis, a life-threatening brain condition. ❤️
Learn more: orlo.uk/K7TPU
#WorldEncephalitisDay @encephalitis
ALT Cardiff Castle lit up red. Castell Caerdydd - wedi'i oleuo'n goch.
Doing research on such a rare disease can be challenging and we have learned a lot along the way.
To find out more check out our blog from last year for Rare disease day: blogs.biomedcentral.com/on-m…
#WorldEncephalitisDay @NIHRCRN_nwcoast
#WorldEncephalitisDay is about raising awareness of the disease.
The Enceph-IG Trial is doing our part and trying to answer the question: Does IVIG help patients with autoimmune encephalitis?
To find out more: youtube.com/watch?v=8VZMkUUc…
@RunningMadProf @NIHRresearch
Enceph-IG Trial retweeted
📢 A #WorldEncephalitisDay message from our Chief Executive, @encephalitisava
This year we are talking about the impact that delayed diagnosis can have on people's chances of survival and their recovery from #encephalitis.
Find out more: bit.ly/4bGQIC8
#Red4WED
Enceph-IG Trial retweeted
What a fab Encephalitis Conf 2023: Tarun Dua, on @WHO Neurological Disorders Plan; super Neurological Covid talk - @gkwood3 of @InfectNeuroLab; amazing debate; plus our long-awaited study of steroids in HSV encephalitis @dexenceph hopefully published soon. 👏to @encephalitisava
Enceph-IG Trial retweeted
It's great to have some @CTRCardiffUni representation at the @encephalitis conference. Great poster by intercalated med student, Anahat, looking at what the research says about the impact of IVIG on autoimmune encephalitis. #encephalitis2023
The Enceph and Liverpool Uni team are ready to go at the @encephalitis conference!! Come and say hi!! #encephalitis2023
Enceph-IG Trial retweeted
The first patients have been recruited in the @EncephIG Trial which is investigating whether IVIG improves recovery in adults with autoimmune #encephalitis.
Secondary and tertiary care centres are needed to take part in the trial - email encephIG@cardiff.co.uk to find out more
Amazing work from the team at @StGeorgesTrust to recruit their second participant. @egalizia @ResNetLondon @encephalitis @RunningMadProf
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Fantastic! Food for thought
@EncephIG here is our attempt at the chocolate brain challenge - we think they came out pretty well!! 🍫🧠 The question is which hashtag works best, #brainfood or #foodforthought ?
ALT Image shows brain shaped chocolate treats - part of the Chocolate Brain Challenge
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Enceph-IG Trial retweeted
Can you help?
Researchers with @EncephIG are seeking secondary or tertiary care centres to help their trial establish whether intravenous immunoglobulin improves recovery in adults with autoimmune #encephalitis.
For more information, visit bit.ly/3oElWpk
Enceph-IG Trial retweeted
Update on progress of the English Surveillance Programme for Antimicrobial Utilisation and Resistance (ESPAUR), focusing on key highlights from the latest report published in Nov 2022:
doi.org/10.1093/jac/dkad248
@DrDianeAshiru @cstewartb @SMHopkins @DrNeil_C @SuperbugKiller #JACNews
Also a warm welcome to @LivHospitals who were green lighted yesterday! Good luck with recruitment and we look forward to supporting you with @EncephIG
Delighted to report we have recruited 3 more participants over August. Thank you and well done to @WaltonCentre and Aberdeen @NHSGrampian.
We need to keep recruitment up and see 1-2 a month up until Christmas.
We’re still accepting EOIs too. Contact EncephIG@cardiff.ac.uk
Enceph-IG Trial retweeted
Autoimmune encephalitis, inflammation and swelling of the brain caused by the body’s own immune defence system, affects about 1 in 100,000 people per year in the UK.
Could you help improve treatment for autoimmune encephalitis by joining our trial?
liverpool.ac.uk/infection-ve…
We are still looking for research sites to open to our trial. If you have capacity, can open quickly, we want to hear from you! Click the link to find out more about @EncephIG:
cardiff.ac.uk/centre-for-tri…
@encephalitis @NIHRresearch @NIHRCRN_nwcoast @LivUni @CTRCardiffUni
Enceph-IG Trial retweeted
We are delighted to be at the Liverpool Neurological Diseases Course - aka #NeuroID - today.
This is a great opportunity to talk to clinicians about #encephalitis and recruit them to our cause!
Since 2007, this two-day course has trained over 1000 delegates about brain infections.
liverpool.ac.uk/neuroidcours… – at Malton, England
If you’re at the NeuroID course in Liverpool today, you may see our @EncephIG trial manager, Paula, there with the fabulous @CarrolEnitan. If you’re interested in joining our study, and being a recruitment site for this rare disease, go and chat to Paul and @RunningMadProf!