We’re proud to support NEW research from Jacob Witten, PhD at @mit using artificial intelligence to rapidly screen and identify next-generation lipid nanoparticles (LNPs) designed specifically for inhaled #cysticfibrosis gene therapy. 👉 Learn more: emilysentourage.org/emilys-e… #CF

🦠 New EE-funded research @ucsdmedschool to develop inhaled therapy combining phages + antibiotics to target drug-resistant infections. For people with #CF, this could help restore effectiveness of antibiotics; expand options. 👉 Learn more: emilysentourage.org/new-emil…

Join us on October 22 for the 2026 EE gala, The Crystal Palace: A Feat of Innovation ✨🌿 📍NEW indoor venue: Fairmount Park Horticulture Center 💻 In-person or virtual 🔗 Purchase tickets: emilysentourage.org/phillyga… #EECrystalPalace #CureCF #CysticFibrosis

What if we could get gene editing through #CF mucus… not stuck in it? ❌➡️🧬 That’s exactly what our newly funded research grant, awarded to researchers at @JohnsHopkins is tackling. 👉 Learn more: emilysentourage.org/new-2026… @HopkinsMedicine #CureCF #CysticFibrosis #CFResearch

🚨New #CysticFibrosis Grant Announcement 🚨 We're thrilled to announce new funding for researchers from @nationwidekids & @ucsf focused on making gene therapies for #CF more durable. 👉 Learn more: emilysentourage.org/emilys-e… #CureCF #GeneTherapy

🧬 Join us for our inaugural State of the Science: EE Edition webinar—an exclusive opportunity to hear about the research, strategy, and scientific roadmap driving hope forward for the final 10% of people w/ #CF. 📅 9/1/26 🕢 7:30pm ET Register today: us02web.zoom.us/webinar/regi…

🚨🧬 A #CF #clinicaltrial opportunity has been added to Emily’s Entourage CF Clinical Trial Connect (CTC)! If you’re already registered, check your inbox 📩 Not part of the CTC yet? This is your sign to join. 🔗 Learn more + sign up: emilysentourage.org/CTC #CureCF

Lifesaving breakthroughs don’t happen by chance. They’re cultivated. 🏡🪴✨ On Oct. 22, join us for the 2026 EE Gala as we create the precise conditions for progress for the final 10%. 🔗 Add to calendar: addevent.com/event/y5ff4cz3c… #EECrystalPalace #CureCF #CysticFibrosis #CF

While #CysticFibrosisAwareness Month may be ending, our resolve here at Emily’s Entourage is stronger than ever. We’ll keep racing until we #CrossOutCF—for every single person living with #cysticfibrosis and the people who love them. 100%, full stop! ❌💜 #CureCF #CF

🔎 #FactFriday: Advanced In 2024, more than 97.3% of individuals with advanced lung disease were adults, with a median age of just 36.8 years. Progress has changed what’s possible. But for many in the #cysticfibrosis community, progress is still beyond reach. #CrossOutCF

🔎 #FactFriday: On average, people with #CF spend nearly two weeks per year hospitalized due to pulmonary exacerbations. That’s time away from work, family, and living life to its fullest. 💜 Share to help raise awareness this #CFAwarenessMonth as we work to #CrossOutCF.

🔎 #FactFriday: According to EE's Final 10% Survey, 70.4% of adults with #CF spend 1–4 hours every day on treatments to open their airways and help move mucus in their lungs.🤯 That’s up to 25% of waking hours spent tethered to medical treatments—just to breathe!!! #CrossOutCF

#SpeakUpCF: From constant worry and insidious "what ifs" to the quiet calculations behind everyday decisions, #cysticfibrosis is an exhausting disease. 🫩 💬 What’s something no one talks about when it comes to life with #CF? Share with us ⬇️ #CrossOutCF #CureCF

🔎 #FactFriday: There are nearly 40,000 individuals living with #cysticfibrosis in the U.S. and 105,000 worldwide. That’s 105,000 reasons to move faster. Time is of the essence. 100% or bust. 💜 Share to help raise awareness this #CFAwarenessMonth as we work to #CrossOutCF.

It’s May 1—#CysticFibrosisAwareness Month begins! Join us as we #CrossOutCF by peeling back assumptions and reveal what life with #cysticfibrosis really looks like. ❌💜 🔗 Learn more: emilysentourage.org/cf-unsee… #CureCF #CF #CFAwareness

A powerful perspective: rare disease is one of the largest unmet medical needs—and this moment is different because we finally have the tools to act. We’re working to bring this progress to #CF. Read more >>> nytimes.com/2026/04/09/opini… #CureCF #CysticFibrosis #RareDisease

💥 Big news from Emily’s Entourage! We’ve appointed David A. Waltz, MD, as our first-ever Chief Medical Officer—accelerating progress toward new therapies for the final 10% with #cysticfibrosis. Learn more: emilysentourage.org/?p=26121… #CureCF #CFAwareness #CFScience

Bold ideas. Relentless tenacity. Unstoppable women. 💜 Today, on #nternationalWomensDay, we celebrate the passion, leadership, & determination of the remarkable women in the #cysticfibrosis community. We are endlessly grateful—& forever inspired. 💪💜 #CureCF

That’s a wrap! #RareDiseaseWeek has come to a close— but don’t get it twisted: the work doesn’t end here. Because the rare community doesn’t stop at “almost.” That’s the thing about those of us who are #MadeThisWay: we refuse to leave anyone behind.💥 #CureCF #RareDisease

✨ Today, rare takes center stage. It’s #RareDiseaseDay—a moment to honor the grit, heart, & connection of the #raredisease community. At EE, rare isn’t hidden. It’s carried with pride. It fuels our push for lifesaving change. You are #ExtraordinRARE. You are #MadeThisWay. 💜