We met Ben in Japan and pray for him still. Such a long hard journey for so many. My daughter Annelise’s legs, after 2 DFPA and about 10 SGF treatments.

This is a repost with fewer pics because some people can’t open the original. A midway update on Patient #54 Annelise, being treated under the McCairn Edogawa protocol in Tokyo. She is the young patient mentioned by Dr. McCairn during his Aug 27 stream and Cafe Locked Out podcast. x.com/KevinMcCairnPh… She has congenital hEDS and bladder exstrophy, with severe POTS and MCAS for more than 15 years, and worse since 2020. She is progressing very well after 2 weeks. Some symptoms are gone, the worst POTS symptoms have improved, and the MCAS is TBD as she is being ultra careful with food and environment during treatment, but still flares up. We won't really know until she eventually returns home. But for someone who tried so hard, for so long, with no results at all, this just feels in this moment like a new life for her is possible, even if some symptoms remain. Given that nothing else has worked, she plans to continue with the program for 2 more weeks. The pictures is before Japan, and after 2 weeks of treatment. These treatments are painful and physically demanding, and she struggled early to get where she is. Based on imaging here at Edogawa hospital, she probably does not have the heart, spinal cord, or brain injury problems that affect some other patients. It is humbling to see people who are so injured so long, still strong enough to do what is necessary, knowing that it likely will not fully restore their health. It is also expensive. Please support those that need and ask for funds. For the hEDS/POTS, long Covid, and vax injured communities, hope is being built in Tokyo.

A midway update on Patient #54 Annelise, being treated under the McCairn Edogawa protocol in Tokyo. She is the young patient mentioned by Dr. McCairn during his Aug 27 stream and Cafe Locked Out podcast. xitter.cf/KevinMcCairnPhD/status… She has congenital hEDS and bladder exstrophy, with severe POTS and MCAS for more than 15 years, and worse since 2020. She is progressing very well after 2 weeks. Some symptoms are gone, the worst POTS symptoms have improved, and the MCAS is TBD as she is being ultra careful with food and environment during treatment, but still flares up. We won't really know until she eventually returns home. But for someone who tried so hard, for so long, with no results at all, this just feels in this moment like a new life for her is possible, even if some symptoms remain. Given that nothing else has worked, she plans to continue with the program for 2 more weeks. The pictures of her legs and face are before Japan, and after 2 weeks of treatment. The other picture is during filtration, but don't let her smile fool you. These treatments are painful and physically demanding, and she struggled early to get where she is. Based on imaging here at Edogawa hospital, she probably does not have the heart, spinal cord, or brain injury problems that affect some other patients. It is humbling to see people who are so injured so long, still strong enough to do what is necessary, knowing that it likely will not fully restore their health. It is also expensive. Please support those that need and ask for funds. For the hEDS/POTS, long Covid, and vax injured communities, hope is being built in Tokyo.

Patient #54! My daughter Annelise started treatment today under McCairn Edogawa protocol. We won't be posting interim results on X. But to document her starting point, she has limited mobility, syncope/dizzy/fainting, HR/BP/BG swings, heat/cold intolerance, tremors, peripheral neuropathy, GI dysmotility, severe food allergies, nausea, brain fog, migraines, concussions, ocular auras, elevated eye pressure, easy bruising, frequent infections and profound exhaustion. She has to stay home some days, but most days she works 3 hours at her retail bookstore. She was an opthamalogy nurse, before. There are so many and this is so tragically difficult. When these Japan patients ask for financial support, please give.

It's happening! My daughter Annelise (Li) will be treated in Japan in August for debilitating POTS, dizziness, neuropathy, headaches, brain fog, GI disruption, and crushing exhaustion, with a long history of hEDS and MCAS issues. DFPA filtration for removal of amyloidogenic clotting, and restorative treatment for the vascular system, and heart, brain, and organ tissue. Bravest and strongest person I know (other than her Mom). Bless the McCairn-Edogawa team. 🙏

The McCairn-Edogawa protocol is featured in Well Being Journal. A typical high level review for a consumer journal, but happy to see the U.S. visibility. The article is not available online that I can find, print and reprint only.

Our little bookstore - Pig City Books in Lexington, NC, has injured customers and employees. So yes we are proud to carry it. Store owner has been evaluated by Kevin McCairn and found to have a severe microclot burden, and we are hoping for her to be treated in Tokyo.