@a-matthew@bsk.social retweeted
In my first event out since my recent brain tumour surgery, Katie & I attended a fantastic Epilepsy Action Australia event put on in Sydney on Friday night. It was fabulous, educational, supportive & fundraising & included many brilliant speakers including Dr Kaitlyn Parratt (accompanied by her husband & fellow neurologist John). Kaitlyn has superbly led the management of my (tumour-related) epileptic seizures. It was really inspiring to also meet & hear from many passionate Australians about some of the challenges they face and the excellent work being done to improve diagnosis and management. We even also got to meet the superb entertainers, The Wiggles!
@SydneyLHD
@sydney_uni
@NthSydHealth
@COBLH
@AllenAndUnwin
@TheWiggles
#epilepsy
#glioblastoma
@a-matthew@bsk.social retweeted
So the account Madre Swift Justice @JayStill4 copied this photo of mine and posted it without attribution. They have now blocked me. Very rude. It takes me a lot of time, effort and money to get these shots and I don't think it's much to ask to be acknowledged.
@a-matthew@bsk.social retweeted
Bloody hell #qantas !! This is the luggage of a friend of mine after one of your flights. Melbourne to Brisbane yesterday. Disgraceful. Wow. You have to make this right.
I entered to win $45 tix to WICKED on @TodayTix! Enter here: todaytix.com/brisbane/shows/…
@a-matthew@bsk.social retweeted
Mr Dutton has chosen Callide in Central Queensland as one of his putative 'locations' to build Federal Government nuclear power stations. Since I personally designed a number of the surface facilities on this site, thought you might be interested in a run-through.
@a-matthew@bsk.social retweeted
On the phone trying to talk my 81 yr old technically challenged mum through reconnecting her iPad to the internet & then to FaceTime her. She is insistent she hasn’t got a WiFi symbol or a camera icon. Losing the will to live when she says I’ve got a fan and a hot water bottle 🤣
@a-matthew@bsk.social retweeted
1. I’m in tears. #DissbilityTwitter pls help me call out @ThistleHotels & @agoda. I booked a wheelchair accessible room in March for my London trip to speak at @WomensPrize tomorrow. arrived in taxi to find there’s 8 steps to get in & there’s no wheelchair accessible room free.
@a-matthew@bsk.social retweeted
This is my mom.
She was an asylum seeker.
She slept in a church b/c she had nowhere else to go.
She is a housekeeper & a waitress.
She is my hero.
These degrees are for her.
Harvard Medical School, M.D. ✅
Harvard Business School, M.B.A. ✅
Harvard Kennedy School of Government, M.P.P. ✅
You made history happen, mom.
1/4
@a-matthew@bsk.social retweeted
I had hoped I wouldn't need to post this. I don't invade my sister's privacy lightly, but I have no choice.
This is the only thing I can do to help her.
A 🧵
Clare has Rett syndrome.
She can't communicate and needs 24-hour care.
Her disability means her breathing's compromised.
@a-matthew@bsk.social retweeted
Last Monday was the 1 year anniversary since my #glioblastoma presented when I had a seizure in the mountains in #Poland on 20th May 2023! It hasn't been all plain sailing but I’m pleased that things are still going well. I feel in good form physically and mentally and the recent scans were good. I had a fabulous time celebrating with family and friends on Monday night!
I am so grateful to many many people for their support on the journey especially my wonderful wife Katie, 3 amazing kids Em, Matt & Luce and many other family, friends and colleagues. I am also extremely grateful to the superb multidisciplinary medical team for what they are doing for me.
@SydneyLHD
@Sydney_Uni
@a-matthew@bsk.social retweeted
It should be illegal to make customers cancel their subscriptions by phone if you let them manage other aspects of their account online.
@a-matthew@bsk.social retweeted
I just took this photo of the Aurora Australis from my back deck.
It’s incredible!!
No filter used at all!!
Lutruwita/Tasmania
@a-matthew@bsk.social retweeted
Another photo taken at some ungodly hour.
(While my son has just taken up a position on a hill on the other side of the world to see if he can see it too!)
Blanchetown, South Australia.
#AuroraAustralis #aurora
@a-matthew@bsk.social retweeted
This morning I lay witness to perhaps 20% of the entire Swift Parrot population.
Thrill and despair in the same scene. To think they could be extinct within a decade.
We need to do more. Their value is greater than that of harvested timber.
@a-matthew@bsk.social retweeted
Hey guess what? I just checked with @SandyHorne61 & she still hasn’t been contacted by anyone at @x @support @engineering about getting her account reinstated. Her last appeal didn’t even generate an automated response. What’s going on @elonmusk?
It’s kind of ironic that @elonmusk is taking a stand for “free speech” saying that this platform should be able to show a video of a priest being stabbed but this very same platform suspended @SandyHorne61 for reporting a fake copy of her account. Go figure 🤷🏻♀️
@a-matthew@bsk.social retweeted
Fantastic news!!!!!!
Amazingly, my latest MRI brain scan shows no recurrence 10 months since my #glioblastoma presented with a seizure in #Poland. Median time to recurrence is 6 months.
I’m extremely hopeful that the novel #neoadjuvant combination #immunotherapy I’ve had & the scientific changes we demonstrated in my tumour post versus pre immunotherapy are being translated into clinical benefit! I’d be thrilled & very proud if this novel approach makes a difference for me & future #brain #cancer patients.
Thanks @ProfGLongMIA for devising & facilitating this superb approach & other members of multidisciplinary team including the @MelanomaAus team & other specialists @Dr_Brindha, Helen Wheeler, Michael Back & many others. Well done also to our @MelanomaAus translation research team including @HelenRizos! Special thanks for the ongoing support of my wife Katie, 3 kids Em, Matt & Luce, bro Mark, @subbie & many other family & friends!
@SydneyLHD
@Sydney_Uni
@MelanomaAus
@ausoftheyear




































