The global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease
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Joined February 2021
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ME/CFS: Top Tips Handout for Doctors doctorswith.me/me-cfs-top-ti…
Doctors with M.E. retweeted
It's time that everyone stopped gaslighting ME and Long Covid patients. These are real and devastating conditions, however politically convenient it might be to deny them (and to deny benefit payments to the patients!).
Those who attack and mock pile suffering upon suffering.
Doctors with M.E. retweeted
ME Association receive apology from @OUHospitals regarding 'offensive’ job advert
We have now received an apology from the Oxford University Hospitals Trust NHS Foundation Trust and Dr Shepherd will be writing to thank them for taking this action.
meassociation.org.uk/6s4y
Doctors with M.E. retweeted
CONTENT WARNING:
A decision made for death rather than life with myalgic encephalomyelitis (ME).
My heart is with Celine's family and all those who are affected by this, particularly those who still continue to live with ME.
Dank je wel Céline Corsius!
De ME-community heeft de afgelopen tijd intens meegeleefd met Céline Corsius die vandaag op 32-jarige leeftijd is overleden. Céline was open over haar euthanasiewens en deelde de fases die ze in dit proces doorliep. Een moedige stap.
Haar activisme en dat van haar familie heeft indruk gemaakt. Zo gaf ze onlangs nog een indrukwekkend interview bij Argos. Ieder jaar liet ze zich op Wereld ME-dag zien in een Millions Missing T-shirt en haar oude school in Etten-Leur stond in de blauwe spotlights. Eerder gaf Céline interviews aan onder andere de NOS en De Groene Amsterdammer. Zo gaf ze ons een gezicht en een stem.
Célines droom om met haar prachtige stem jazz zangeres te worden is helaas niet uitgekomen. Vanuit haar bed nam ze ons met mooie foto’s mee op virtuele reis naar Italië en droomden we even weg. Een jong leven is beëindigd omdat er geen uitzicht op verbetering was. Het onrecht dat er zo weinig is geïnvesteerd in onderzoek naar een biomedische behandeling voor ME waar Céline van had kunnen profiteren, is niet te verteren.
We zijn dankbaar voor wat Céline voor onze community heeft betekend en wensen haar familie en vrienden veel sterkte toe in deze moeilijke tijd.
Interview Argos: vpro.nl/argos/lees/onderwerp…
Radio uitzending Argos: vpro.nl/argos/media/luister/…
Céline inzending voor de actie #ZiekBOOS: corsius.wordpress.com/2022/1…
Interview NOS Nieuws: nos.nl/video/2223330-ik-ben-…
Interview De Groene Amsterdammer: groene.nl/artikel/ziek-door-…
Optreden Céline 2008: youtube.com/watch?v=NpvzcRvr…
Blog oud-leraar Céline: sjaakjansen.nl/2018/02/26/vo…
▶️Dit bericht staat ook op Facebook: bit.ly/3rb24vU◀️
#MillionsMissing #ME #MECVS #MECFS #MyalgicE #pwME
ALT Céline Corsius in een Millions Missing T-shirt.
ALT Blauw oplichtende school in Etten-Leur.
ALT Lantaarn met een hart voor Céline.
Doctors with M.E. retweeted
My mini-review on the viral origin of ME/CFS is now available in PLOS Pathogens tinyurl.com/mskfbuzu. Special thanks to
@cstroeckw and @Tempi_Stiftung for helping to fund my enterovirus research.
Doctors with M.E. retweeted
New free short module on severe ME by Dr. Nina Muirhead @DoctorsWithME
mecfs-med-ed.org/2023/08/09/…
Doctors with M.E. retweeted
📢 Join us on #SevereMEAwarenessDay and take part in our FREE educational activity featuring 5 MCQs on Severe Myalgic Encephalomyelitis (ME).
Expand your understanding of this condition and receive a 0.5 Hour #CPDCertificate.
👉🏽 bit.ly/47meeCq
#ClinicalKnowledge xitter.cf/StudyPRN/status/168882…
Doctors with M.E. retweeted
This year's theme for #WorldMEDay centers around #PEM.
@WorldMEAlliance co-chair and Solve M.E. CEO Oved Amitay notes, “To avoid prolonging and intensifying the suffering of millions, providers must listen to and believe those who experience PEM.”
#WorldMEDay #LearnFromME
Doctors with M.E. retweeted
Amazing seeing so many buildings lit blue for #WorldMEDay and #WorldFibromyalgiaDay 💙💙💙
🌎 As an act of support for #WorldFibromyalgiaDay, #TorreGlòries will be lit up from 20h onwards to help raise awareness for this chronic condition and those affected by it. #SFCEm #SSC #SQM #EHS
@ACAFssc
Doctors with M.E. retweeted
Excited to join the Cornell ME/CFS Center in examining the skeletal muscle cellular basis of chronic fatigue. Thanks to our PI @DrMaureenHanson and many collaborators in NYC and Ithaca, and to @NIH @NIAIDFunding for supporting critical research on this understudied syndrome.
A @Cornell multidisciplinary research center that studies chronic fatigue syndrome has received a $9.5M grant from @NIH – funding that will enable experts to continue work on the mysterious and debilitating condition. @NIAIDFunding @KrishnaWriter news.cornell.edu/stories/202…
Doctors with M.E. retweeted
Results of a collaboration between the Cornell and Columbia NIH ME/CFS Centers have now been published in JTM. Analysis of plasma proteins and extracellular vesicle cytokines distinguishes ME/CFS from healthy at 86% accuracy. tinyurl.com/2yjjavdj
Doctors with M.E. retweeted
This evening I had the pleasure of hosting the @hope4mefibroni conf., which ended w/ an amazing joint-announcement from @QUBelfast & @UlsterUni that they will be including ME into their medicine courses. Seismic for patients who have campaigned for greater understanding of ME!
ALT Paula with representatives of Hope 4 ME
Doctors with M.E. retweeted
ME/CFS is a highly debilitating neurological disease affecting systems throughout the body. 25% of people with ME are housebound or bedbound, and only ~13% are able to work full-time. People with severe ME are often forced to exist in their beds in isolation for years. #SevereME
ALT Over a red background featuring an image of a person lying in bed, the words in white: 25% of people with ME are housebound or bedbound, and only ~13% are able to work fulltime. People with severe ME are often forced to exist in their beds in isolation for years. The #MillionsMissing 2023 logo, #MEAction logo, and Body Politic logs are in white and at the bottom of the square.
Doctors with M.E. retweeted
[TW: story about severe ME/CFS]
Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)
Doctors with M.E. retweeted
May 12 is #MECFS International Awareness Day. We stand together with the millions of people who suffer from ME/CFS & other chronic illnesses. Learn more about ME/CFS bit.ly/3p2bng6 #MECFSAwarenessDay
ALT Medical doctor holding up a purple-blue ribbon
Doctors with M.E. retweeted
Nice to see this from the prestigious US Centers for Disease Control & Prevention
"On May 12, 2023, CDC will “light up” its Atlanta campus in blue in recognition of ME/CFS International Awareness Day".
Also has its own CDC page
cdc.gov/me-cfs/resources/awa…
#WorldMEDay #MEcfs #PwME
ALT Screenshot of top of page at link
Doctors with M.E. retweeted
Really excellent resource from @LongCOVIDPhysio @WHO
On SAFE #Rehab post #Covid
#LongCovid
#MedTwitter #PhysioTwitter
Safe Long COVID Rehabilitation — Long COVID Physio longcovid.physio/long-covid-…
Doctors with M.E. retweeted
Come and join me tomorrow to learn more about #EDS #hEDS/#HSD #MCAS and the risk of being falsely accused of #FII. It will be recorded and available later if you are busy!
#FIIAwarenessWeek2023
@ehlersdanlosuk @TheTroubleClub @HMSACharity @MastCellAction @Andy_Bilson @DrHannahBB
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Doctors with M.E. retweeted
No words can describe the pain of loss I feel today.
I am tired.
I'm tired of people with power destroying the dreams of thousands that they don't even understand.
I'm tired of lying in bed as a supplicant trying everything to humanize our situation.
#MECFSAwarenessDay #mecfs -SHARE-
ALT ME is in the most severe condition.