
Disc Medicine is applying new insights in heme biosynthesis and iron metabolism to develop first-in-class therapies for #hematologic diseases.
Cambridge, MA
Joined October 2019
- Tweets181
- Following61
- Followers307
- Likes29
Disc and CEO John Quisel were honored to join @BloodCancerUtd for Light The Night, standing with patients, families, caregivers, and survivors. We were proud to lift our lanterns and remain committed to progress for people living with serious blood-based diseases.
Sometimes there's nothing to show. No rash, no blister — just pain that no one else can see. Ryan describes what living with EPP felt like as a child, long before anyone had a name for it. Watch the full series, Behind the Mystery of EPP, at youtube.com/playlist?list=PL…
Disc is thrilled to announce topline results from the APOLLO Phase 3 trial of bitopertin in EPP, including XLP. The trial met all its primary and secondary endpoints: ir.discmedicine.com/news-rel…
Disc will host a corporate webcast tomorrow, Monday, October 19, at 8am ET to discuss topline results from the APOLLO Phase 3 trial of bitopertin in erythropoietic protoporphyria (EPP), including X-linked protoporphyria (XLP). Register and read more: ir.discmedicine.com/news-rel…
Tonight, the Disc team joins @BloodCancerUtd for Light The Night, standing alongside those impacted by blood cancer and honoring the patients, families, and caregivers who navigate these diseases every day.
For many families, an EPP or XLP diagnosis can take more than a decade to reach, and for the patient in this series, over 20 years. Watch the full series, Behind the Mystery of EPP, at youtube.com/playlist?list=PL…
Sudden pain from sunlight. A diagnosis that can take over a decade for many people. @BalancingActTV's @btmcaresforrare of EPP is now streaming in full on @lifetimetv, telling the real story of life with erythropoietic protoporphyria (EPP). Watch here: youtube.com/playlist?list=PL…
Avoiding the mailbox. Skipping the seat by the window. That's life with erythropoietic protoporphyria (EPP) for many individuals.
Episode 2 of @BalancingActTV's Behind the Mystery of EPP airs tomorrow, 9/17 at 7:30am ET on @lifetimetv (encore 10/2).
By the time Dewey got back to the boat, his arms had blistered just from the sun. He was in 8th grade, with no name for what was happening.
Erythropoietic protoporphyria (EPP) causes severe sensitivity to light. Reactions can start in minutes and take days to resolve.
Disc announced updated data from multiple clinical programs being presented at the @SocietyofHemOnc Annual Meeting. Read more about the SOHO 2026 presentations at ir.discmedicine.com/news-rel…
Sunlight shouldn't hurt. For people living with erythropoietic protoporphyria (EPP), it can: sudden, burning pain that's often invisible to everyone else.
Behind the Mystery of EPP, from @BalancingActTV, premieres tomorrow on @lifetimetv, 9/10 at 7:30am ET (encore 9/24).
During September 9-12, Disc will present data from multiple clinical programs, including an oral presentation of initial data from the RESTORE-PV trial of DISC-3405 in patients with polycythemia vera (PV), at the @SocietyofHemOnc Annual Meeting. Read more: ir.discmedicine.com/news-rel…
Today we reported our Q2 financials and operational progress across our portfolio. Read more about our advancements in bitopertin, selcodebart (DISC-0974), and DISC-3405 in the latest press release: ir.discmedicine.com/news-rel…
Disc announced updated data from multiple clinical programs being presented at the @EHA_Hematology Annual Congress. Read more about the EHA 2026 presentations and register for the corporate call on June 15 at ir.discmedicine.com/news-rel…
Today, Disc presents updated data from the RALLY-MF Phase 2 trial of DISC-0974 in anemia of myelofibrosis at the @ASCO Annual Meeting. Read more: ir.discmedicine.com/news-rel…
Today, Disc announced the launch of an expanded access program for bitopertin for eligible patients with EPP and XLP in the U.S. Read more: ir.discmedicine.com/news-rel…
As #GlobalPorphyriaDay comes to a close, we want to extend our sincere thanks to the advocacy organizations, patients, families, and healthcare providers who continue to shape progress for people living with porphyrias like EPP and XLP.
Today, we recognize #GlobalPorphyriaDay, a moment to raise awareness of the porphyria community and the people impacted. At Disc, we’re committed to advancing understanding of EPP, including XLP. Visit porphyria.org for resources and to learn more.
What happens when avoiding pain also means avoiding everyday life? EPP and XLP extend beyond physical symptoms, shaping daily life in profound ways. At Disc, we focus on the full burden of rare diseases.
EPP isn’t just a skin condition, it can affect the liver. PPIX builds up, disrupts bile flow, and can lead to complications. At Disc, we’re focused on EPP as a systemic disease. On May 18, #GlobalPorphyriaDay highlights why it’s more than what you can see.
