I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey
Codicote, East
Joined November 2017
- Tweets369
- Following336
- Followers176
- Likes384
I would like to #ThankATeacherDay today to all the wonderful staff @highfieldschool who have made my Year 7 journey such an amazing one. Huge shout out to my teachers and especially the SEND team 🙌
Finally back to hydrotherapy - cannot explain how amazing it is to be able to be FREE of my chair 💙
instagram.com/reel/DErpnN0oT…
Defending William Against DMD retweeted
Janet Hoskin has published a new paper: ‘More than a just a physical condition’ – recognising the educational and emotional needs of children and young adults with Duchenne muscular dystrophy (DMD).
You can read the paper here: tandfonline.com/doi/full/10.…
Defending William Against DMD retweeted
BREAKING NEWS
A new medicine for DMD, funded by Joining Jack, @DuchenneUK & @DuchenneRF has become the first approved treatment in the UK for all patients with Duchenne!
NICE has approved vamorolone for use on the NHS to treat Duchenne - read full story
duchenneuk.org/new-medicine-…
Thank you @kevinbonavia for taking the time to speak to me today about William, DMD & why we need your support. Let's get #Givinostat available to 1. Boys who achieve the EAP and 2. All boys with DMD like William.
@duchenneuk #italfarmaco #MHRA #NHS #accessforall @BBC3CR
Its just so frustrating to book through @PassengerAssist & do all the ticks for an early app @GreatOrmondSt. Leave our departure station & then arrive @StPancrasInt 25 mins later to be told the lift has broken on both sides of the station @TLRailUK @Tanni_GT @sophmorgTV #fedup
I met Spiderman today!!! @Tbrotherstrust thank you so much, #TomHolland was such a nice guy. The private film screening of #uncharted was brilliant. I am still buzzing. #dmd #duchenne #findacure #makeeverymomentcount @jo_eames @MEames1
Just posted a photo @ Addenbrooke's Hospital instagram.com/p/Cn41j9irBPL/… – at Cambridge, England
I turned 10 and have had the best birthday party ever!
Thanks to my lovely friends for coming and gaming the day away!
Topped off with a sleepover with my bestie cousin Jack too 💙 instagram.com/p/Cnt0CecL9zu/…
Excited today to represent @stevenageSFT in the @Herts_SGOs for Inclusive cricket 🏏 😀
We did it!! Triathlon success! defendingwilliamagainstduche…
It’s a village affair in Triathlon for William defendingwilliamagainstduche…
Defending William Against DMD retweeted
One of mummy's lovely friends is walking the Jurassic Coast today raising money for @duchenneuk
Good luck @kaytwhite 🥰💙👊🏻💙 instagram.com/p/CdiDBUyolF6/…
Triathlon anyone?? defendingwilliamagainstduche…
Defending William Against DMD retweeted
Huge thank you to our partners @Saracens for supporting us at their pre-season friendly Vs @UlsterRugby tonight and giving William the chance to take the ball out!
Catch up on the match here and text TACKLEDMD to 70085 to donate £10 saracens.com/live-streams/li…
Donate a Day
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