Mama. Former comms/tech strategist for NPOs. Living with #MBC. Everyone fighting a battle you know nothing about. Be kind, always.

Berkeley, CA
Joined February 2020
1/3 From Leda's husband, Andy Gaines: Dear friends and loved ones, on Dec 11, our beloved Leda breathed her last breath. Diagnosed nearly five years earlier with Stage IV metastatic breast cancer, Leda drew on her core optimism and joy to embrace each day as fully as possible.
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2/3: Leda navigated her illness with the wisdom, integrity and love that characterized her entire life. I value every moment I was able to share with her and know you do as well. Please take a moment to remember what you loved about Leda and share some of it with the world.
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3/3: We’ve created a website, Rememberingleda.org, with more about Leda’s life. I hope you’ll share this sad news with community members who would want to know. With love and appreciation, Andy Gaines
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I am now eligible for a boost and am struggling with the ethical implications of getting my 3rd shot when so many have not had any. This is a fabulous thread, though. Informative & thought provoking. (a little scary, too... oh Delta you are a real bummer).
Covid (@UCSF) Chronicles,Day 521 I can't resist one more thread on boosters. I see lots of debate on data: about antibody levels, infections vs severe infctns, etc. I don't see much about the big issue: the tension between 2 perspectives – that of individuals vs. society.(1/25🧵)
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Oncologist: I'm so sorry the SEs have been so rough, but I really have nothing to offer. Palliative Care Doc: Alright, let's break this down and make a plan. Palliative Care is not hospice. Yell it from the back and if you have MBC, ask for a referral. #bcsm #MBC
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How can we even be talking about booster shots for the general population when most of the world still hasn't had a single dose. #VaccineEquity
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Per CDC Director Dr. Walensky, 97% of people in the US currently hospitalized for #COVID19 have not been #vaccinated.
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Dear #cancermuggles, yes my hair is growing back, but this doesn’t mean I’m healed or done with treatment. Awkward conversations easily avoided by not making assumptions. #MBC #bcsm
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Important to stay data-centered on this. Delta is not coming for everyone, it's coming for those who are not vaccinated. Data below seems to be mirrored nationwide.
This quoted post is unavailable.
Just picked my daughter up from outdoor camp 3 blocks from Bay (I.e. very breezy). Kids have to mask. Vaccinated adults also masked. The public health messaging in CA is scrambling everyone into ineptitude. Outdoor masks are NOT NEEDED. Don’t perpetuate anti-science behavior!
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Really great evidence-based article. I wish we could give up outdoor mask mandates for kids in CA already. Summer camps still require and schools likely will in fall. Ridiculous and not evidence-based. How has this state become so anti-science on this one?
Great article in @NYMag by @dwallacewells massively reviewing the evidence on how low risk children are of COVID infection; wondering why school closures (unlike for severe infections in children like measles, mumps, rubella, etc.) so long. I/others quoted nymag.com/intelligencer/2021…
I live the multi-layered difficulty of #mbc, but am acutely aware of how many types of pain - physical and otherwise - I don’t experience. I long for a world in which we all acknowledge this shared reality. Then, let’s show up for each other.
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Ok, I could give a frig about another billionaire and his space exploits. I mean, really, the fuss is kind of embarrassing. Those 1000 engineers? How bout they spend their time and energy solving some actual problems. (lack of a pay-to-play space program not being one of them)
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Exceedingly low risk COVID poses to children again documented. Of >600K US COVID deaths, 391 among children. 25 pediatric COVID deaths in UK. With vaccinated adults, return to pre-COVID school routines should be mandated. @GavinNewsom cnn.com/us/live-news/coronav…
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Let's be perfectly clear about the delta variant in our reporting, please- this strain is not spreading like wildfire across the US. This strain is spreading in highly unvaccinated regions without natural immunity. Please look at orange map in link below covidactnow.org/?s=2016935
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#bcsm friends, can you help me understand what it means if NTRK1-3 fusion show up as bio markers on tumor profiling report. Everything I’m reading leads to confusion — i.e super rare in breast cancer, but very targetable?
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Can we stop wit the variant hysteria. Same story keeps playing, over and over. The vaccines work. Get vaccinated.
How to build a Delta immunity wall? Israel is showing us the way, with its very high vaccination rate countering this strain, now dominant. No further case increases (today 285) or hospitalizations. Zero deaths again for multiple days.
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Yup
The attack on Critical Race theory is another glimpse into the ambition of the Right's escalating #RealityWar. They want to target any language that gets in the way of whitewashing history and ensure their politics of white grievance stay the perpetual present tense. #TruthDecay
Yesterday, when they hung the bag of a med I don’t trust, at a dosage that is flattening me, I started to cry. That was a first. My nurse asked if she could hold me (nice modeling of consent). I cried in her arms and fear I made all the other nurses cry too. #bcsm #oncoheartbreak
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