@DecodeMEstudy

The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing

 United Kingdom
decodeme.ed.ac.uk
Joined November 2019
  • Tweets1.8K
  • Following645
  • Followers7.8K
There’s still time to participate in Action for ME’s Big Survey! To take part and find out more, head to Action for ME’s website: actionforme.org.uk/research-… Thank you for supporting ME/CFS research.
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📢Action for ME has launched The Big Survey We’re sharing this from DecodeME as we think many of you may be interested in taking part - but please note, this survey is separate from DecodeME’s research. For more information, FAQs, and to take part: tinyurl.com/yzfb8uhw
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As we move into the next phase of our study, we would like to say a huge thank you. Going forwards, we will no longer be able to respond to emails & check social media. Stay up to date through our email list - sign up at the bottom of our new homepage: shorturl.at/46QSk
DecodeME graphic. In the centre it says 'Thank you' in white cursive writing and beneath it 'from DecodeME'.

ALT DecodeME graphic. In the centre it says 'Thank you' in white cursive writing and beneath it 'from DecodeME'.

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If you took part in DecodeME, your data will continue to be held securely by Edinburgh Uni. To update your details/ consent, please email decodeme@ed.ac.uk. For general info or support, please contact Action for ME at infosupport@actionforme.org.uk or 0117 927 9551.
DecodeME graphic. In the centre it says 'Your data and consent. If you took part in DecodeME, your data will continue to be held securely by the University of Edinburgh. Any consents you gave, for wider use or recontact, remain valid'. Beneath this in a speech bubble it says 'To update your details or consent, please email decodeme.ed.ac.uk'.

ALT DecodeME graphic. In the centre it says 'Your data and consent. If you took part in DecodeME, your data will continue to be held securely by the University of Edinburgh. Any consents you gave, for wider use or recontact, remain valid'. Beneath this in a speech bubble it says 'To update your details or consent, please email decodeme.ed.ac.uk'.

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We shared our initial DNA results over the past few weeks to a wonderful response & widespread media coverage. Now, we are moving into the next phase of the study & have updates to share. Check out our blog post to find out what’s next for DecodeME: shorturl.at/Y1hXm
DecodeME 'New Blog Post'. Titled: 'What's next for DecodeME?'. 'We shared our initial DNA results over the past few weeks to a wonderful response and widespread media coverage. Now, we are moving into the next phase of the study and have some updates to share.' There is an image of a scientist wearing goggles and pointing to a blackboard with a DNA helix.

ALT DecodeME 'New Blog Post'. Titled: 'What's next for DecodeME?'. 'We shared our initial DNA results over the past few weeks to a wonderful response and widespread media coverage. Now, we are moving into the next phase of the study and have some updates to share.' There is an image of a scientist wearing goggles and pointing to a blackboard with a DNA helix.

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Interested in supporting future ME/CFS research? @EdinburghUni & @actionforme are expanding on DecodeME’s research through projects like SequenceME & Long Covid, which will use DecodeME data to study the entire genome. Help support future ME/CFS research: shorturl.at/rRFD9
DecodeME post titled 'Support future ME/CFS research'. There is a picture of two hands and in between it is a green heart that says 'donate'. At the bottom of the graphic it says 'Donations will be used towards research projects such as the Genetics Centre of Excellence and Sequence ME and Long Covid.

ALT DecodeME post titled 'Support future ME/CFS research'. There is a picture of two hands and in between it is a green heart that says 'donate'. At the bottom of the graphic it says 'Donations will be used towards research projects such as the Genetics Centre of Excellence and Sequence ME and Long Covid.

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Check out @davidtuller1 's interview with DecodeME investigator Prof Chris Ponting to hear more about our Initial DNA results.⬇️ youtu.be/CGUmcB_YIaA?si=pwDA…

Interview with Professor Chris Ponting about the DecodeME results.

People with ME/CFS differ genetically from the general population, ...

youtube.com
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Our genetics results webinar recording is now available! Thank you to the 2500+ people who joined us live last week. For those who want to watch back, or who couldn’t attend you can find it on our new website, here: shorturl.at/Uh8xb
DecodeME 'The Results'. Post reads: 'Our Genetic Results webinar video and transcript are now available!'. Beneath this is an image of a clapperboard and an image of a transcript.

ALT DecodeME 'The Results'. Post reads: 'Our Genetic Results webinar video and transcript are now available!'. Beneath this is an image of a clapperboard and an image of a transcript.

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As we approach the end of August, the new DecodeME website, over on the University of Edinburgh, will now be the central place for our updates and contact information. You can find our new website here: decodeme.ed.ac.uk
New website! DecodeME's website has moved to the University of Edinburgh's site. Find the link in our bio.

ALT New website! DecodeME's website has moved to the University of Edinburgh's site. Find the link in our bio.

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“This solid scientific data from DecodeME brings new hope. I look forward to seeing where these discoveries lead for pwME, & their families & carers.” -Claire Tripp, DecodeME PPI. A huge thanks to our participants & supporters for making DecodeME possible.
Image of Claire from DecodeME's PPI. Claire has fair skin, brown hair and is grinning. She is quoted saying "For DecodeME to show evidence validating ME as a physiological disease is enormously satisfying. My sense of pride and achievement at being part of this groundbreaking study is immeasurable. This solid scientific data from DecodeME brings new hope. I look forward to seeing where these discoveries lead for people with ME, and their families and carers."

ALT Image of Claire from DecodeME's PPI. Claire has fair skin, brown hair and is grinning. She is quoted saying "For DecodeME to show evidence validating ME as a physiological disease is enormously satisfying. My sense of pride and achievement at being part of this groundbreaking study is immeasurable. This solid scientific data from DecodeME brings new hope. I look forward to seeing where these discoveries lead for people with ME, and their families and carers."

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