Director Endometriosis & Pelvic Pain education and coaching; Principal World Endometriosis Organisations; WES Board Member; Founder Endometriosis NZ; speaker.
Christchurch City, New Zealand
Joined March 2013
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Latest #WEO newsletter published now. A must read with focus on #menstrual health and endometriosis education for young people, research, #WESinar overview with @MathewLeonardi and more.
endometriosis.org/support/wo…
@Endometriosis.org
Our social media research is published. Alarming data found only 18.9% of comments about surgery for #endometriosis were scientifically accurate. Very concerning! #endometriosis.”
@drmikenz @HannahR_Adler
lnkd.in/g5_FWwS8
Bravo to all attending @APPG_WH event on this key #informedchoice initiative. – at Christchurch City, New Zealand
At @APPG_WH event to determine key asks of UK government to improve #informedchoice to make a difference to women’s experience of barriers within the healthcare system, in particular for #endometriosis, #PCOS, and #fibroids.
What solutions shall we ask for?
Deborah Bush, MNZM, QSM retweeted
The World Endometriosis Organisations (#WEO) are delighted to share the #WEBinar, where @UlrikBKirk and @DeborahBush_NZ talk about what @FEMaLeEUProject is achieving to improve the lives of those affected by #endometriosis: bit.ly/WEO-webinars #womenshealthmatters #FEMaLe
This very valuable study proves further the need for strategies to address early onset of endometriosis in young people. periodhealth.nz – at Christchurch City, New Zealand
Study published by @eshre shows those w #endometriosis have higher use of healthcare resources in 10 years prior to diagnosis + healthcare utilisation increased per year until diagnosis. We MUST address #diagnosticdelay + reduce personal/societal burden bit.ly/3YXyRAT
Jumping online at 1am Saturday morning in NZ to present at the #reframing #endometriosis conference in Birmingham. ‘#endometriosis cannot be framed in a way that sits comfortably with those with the disease nor those who wait in a queue for years to get a diagnosis & treatment.’
Deborah Bush, MNZM, QSM retweeted
On Thursday July 6 Reframing #Endometriosis: Power, Politics and Potential Futures, an event well represented with FEMaLers and collaborators!
Conference website for registration and more information:
thebritishacademy.ac.uk/even…
Programme:
thebritishacademy.ac.uk/docu…
See you there?
Deborah Bush, MNZM, QSM retweeted
The World Endometriosis Organisations (#WEO) continue to expand and now include Endometriosis Society Bangladesh, @endoturkiye, and Endometriosis New Zealand. This global #collaboration of #endometriosis advocates are making a difference!
endometriosis.org/support/wo…
Deborah Bush, MNZM, QSM retweeted
.@BritishAcademy_ + @MyBCU are hosting #endometriosis event on 6 - 7 July bringing together social science and biomedical researchers for panel discussions on how to "reframe endometriosis" addressing #power, #politics, and potential futures.
thebritishacademy.ac.uk/even…
Deborah Bush, MNZM, QSM retweeted
Excellent to have yet another good #patientvoice on the board of the World #Endometriosis Society following in the capable foot steps of @DeborahBush_NZ
#womenshealth #MakingADifference #livedexperience #womenshealthmatters – at Hackney, London
We're really proud ( 🎉 ) that Adrienn Salamon, FEMaLer and president of the Hungarian #endometriosis patient association, was elected to board of directors of The World Endometriosis Society (@WorldEndoSoc), a position that lasts until May 2025
#WCE2023 Genetics: identifying markers and mapping #genetic risk factors for #endometriosis and the #geneexpression for #endometriosis. Great to see progress in target gene identification. Congratulations to Sally Mortlock, Grant Montgomery
& the collaborative research teams.
#WCE2023 ‘The many facets of #endometriosis ’ looking forward to presenting with a great team tomorrow morning - early - at the Myovant Sciences breakfast symposium. See you there!
#WCE2023 At the #posterpresentation
with #Whataboutme?
Loads of interest in how we educate young people to encourage early intervention. 25 years experience / research has allowed us to develop the first online resource for young people. #menstrualhealthendometriosis
#me – at Edinburgh, Scotland
WCW2023 highly successful #WEO pre-congress meeting. The challenges, successes, and actions of the World Endometriosis Organisations debated global issues, support, advocacy and campaigns, all shared collectively in the highly supportive #endometriosis community. Bravo #weo
Deborah Bush, MNZM, QSM retweeted
So proud and happy to finally being able to meet in person again in the @FEMaLeEUProject. Oh, how we have missed this interaction among the fantastic team of FEMaLers, targeting and pushing the neglected #endometriosis agenda forward! – at Edinburgh, Scotland
#WCE2023 #WES
15th World Congress on Endometriosis in Edinburgh. 3-5 May
When disappointment strikes and you can’t make it in person, keep in touch with @WorldEndoSoc and social media channels for congress updates.
Deborah Bush, MNZM, QSM retweeted
FEMaLer Karina Ejgaard Hansen has led and published a new study from @AarhusUni which shows that women with #endometriosis who undergo both medical treatment and a course of psychological therapy experience fewer symptoms and have a better quality of life.
link.springer.com/article/10…
