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Groundbreaking legislation for Illinois families living with #epilepsy has passed the IL General Assembly & awaits the Governor's signature! Once signed, it will expand access to FDA-cleared seizure detection devices through both IL Medicaid & private insurance coverage (1 of 3)
Danny Did Foundation retweeted
It was an inspiring evening at the @DannyDidOrg annual Hearts and Hugs gala last weekend! We’re grateful for the opportunity to support the Foundation as they work to assist families in the epilepsy community.
Learn more about how we partner with advocacy organizations: xenon-pharma.com/patients#co…
Always Men For Others, thank you @LAMensBBall !
We appreciate Our Guys taking the time to help out Our Friends @DannyDidOrg at their annual Gala tonight!! Great tradition of service to help out a great cause. Reiner, VanderZwan, Caldwell, Stumm, P Alvarez, Livatino, Faddis and McGinnis.
The 1st Annual John Scanlon Memorial Golf Outing benefiting @dannydidorg on Oct 8th is is officially SOLD OUT!
🏌️ We are seeking family or business sponsors to participate at $250, $500, or $1,000
👉 Details at tinyurl.com/scansmemorial
@LAMensBBall @BenetHoops @DePaulPrepMBB
We are grateful for this partnership! 💜
Northwestern Medicine is proud to sponsor the Danny Did Foundation’s (@DannyDidOrg) 17th Annual Benefit to Fight Epilepsy and SUDEP, supporting greater awareness of #SUDEP.
Join friends, supporters and people with #epilepsy from 6:00 to 10:30 pm on Friday, September 25, at Theater on the Lake (@ThtrOnTheLake) in Chicago, Illinois, for live music, raffles, auctions and breathtaking views of the skyline. Register now: dannydid.org/17th-annual-eve…
Danny Did Foundation retweeted
We hope you can join us at The John Scanlon Memorial Golf Outing. October 8th at Wilmette GC benefitting @DannyDidOrg and Celebrating Our Friend John Scanlon. Registration info below. @michaelsobrien @joehoopsreport @NestoHoops
tinyurl.com/scansmemorial
Danny Did Foundation retweeted
Why do I talk about Epilepsy and SUDEP?
To shatter stigmas, educate and to let others know worldwide that they are not alone.
Grateful to EpilepsyHu for publishing.
epilepsydisease.com/stories/…
Danny Did Foundation retweeted
This week, @GovPritzker signed my bill, SB2762, into law, extending insurance coverage for life-saving seizure detection devices and capping patient costs at $50 per year. (1/3)
#healthcare #insurance #Illinois
@replilly78 @EpilepsyFdn @EpilepsyChicago @DannyDidOrg
Danny Did Foundation retweeted
I was diagnosed with epilepsy at 18, during my first year of college. Those early days were scary and overwhelming, but I learned to take life one day at a time, lean on support, and find strength I didn’t know I had. Living with epilepsy is hard, but you are not alone.
Danny Did Foundation retweeted
Losing her son, JaCorey, to SUDEP changed Tiffany’s life forever. She wants to ensure other families are better informed than she was. Join her to #ChangeOurEpilepsyStory by raising awareness, challenging stigma, and starting conversations about epilepsy. ow.ly/8w7h50ZcqqI
We're incredibly grateful to the advocacy partners, families, clinicians, and community members who helped make this possible. In addition, we celebrate the chief sponsors of this legislation: Senator @SenatorMorrison and @RepBobMorgan, for their tireless efforts. (2 of 3)
This expanded device access helps to close a critical gap in epilepsy care—and we are excited for the impact this will have for thousands of Illinois residents in the years ahead. (3 of 3)
#chicagoepilepsycommunity #EpilepsyAwareness #AdvocacyWorks #DannyDid #SeizureSafety
Danny Did Foundation retweeted
Thank you WHS for surprising me with a graduation ceremony!
To everyone who helped me get through senior year at home THANK YOU!
To anyone who is dealing with health stuff, don’t ever give up….
YOU CAN DO IT!
#epilepsyawarness
Danny Did Foundation retweeted
#ICYMI: An international team of scientists has identified critical #RiskFactors that could help predict sudden unexpected death in #Epilepsy (#SUDEP), according to a study published in @TheLancet.
The findings offer new hope for early intervention and improved monitoring strategies, says study co-author and @NorthwesternMed Neurologist Stephan Schuele, MD, MPH. @NUFeinbergMed
Learn the risk factors: breakthroughsforphysicians.n…
Danny Did Foundation retweeted
I was honored last week to present joint sponsor testimony on House Bill 758, the Brenna Brossard SUDEP Awareness Act.
Grateful to stand alongside Louis Brossard, @RepBrideSweeney, and the many advocates and organizations working to raise awareness.
Danny Did Foundation retweeted
This #PurpleDay, let's honor Cassidy Megan's vision and spread epilepsy awareness! Since 2008, her initiative has grown into a global movement to empower and unite. 💜 Visit CNF's Epilepsy Education Hub for resources and support!
Learn More: bit.ly/3PE9Lng
It’s Purple Day! 💜🎉 Let’s see your purple pride! Snap a selfie, take a photo with our printable sign, and share it on social media to help raise epilepsy awareness. Grab your sign at epilepsy.com/purpleday?utm_c… #PurpleDay #EpilepsyAwareness
It would not be Hustle & Heart without the Ramblers!
#EpilepsyAwareness #Enjoylife
We are always excited to work @DannyDidOrg Hustle and Heart Youth Basketball Clinic!!! Our Guys do a great job of coaching and interacting with the young players and We LOVE Danny Did!!
Always great to have the Dons with us!
#EpilepsyAwareness #EnjoyLife
The @NDCP_Hoops program spent this morning volunteering at the Hustle & Heart Basketball Clinic to benefit our friends @DannyDidOrg.
