Stories that uncover what it means to be chronically ill and disabled. Part of the Invisible Not Podcast Network. Hosted by @JasonHerterich (he/him)
Toronto, Ontario
Joined November 2018
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My story on chronic illness, facing stigma and disbelief, and reconciling with family members is live! 🎙️#NEISvoid #DisabilityTwitter
Some professional news: my first freelance podcast story is out on @DocProjectCBC! I live with an #invisibleillness called #fibromyalgia. For years, my family didn’t believe my pain was real. We’ve never spoken about that period of disbelief…until now.
Discomfort Zone Podcast retweeted
TTC wants to cut costs.
The number of disabled people needing Wheel-Trans is increasing.
The solution?
Deny them service. After degrading, ableist OT assessment.
This is really horrible.
thelocal.to/wheel-trans-acce…
Discomfort Zone Podcast retweeted
the ttc is about to become even more inaccessible and problematic for its disabled users. the talented @JasonHerterich explains how through a powerful set of stories in his expertly woven deep dive:
Back in February, I learned of a transit accessibility issue that will have devastating implications for disabled Torontonians in the coming years: Wheel-Trans’ Family of Services program (FOS). I investigated this issue for @TheLocal_TO 🧵 (1/8)
thelocal.to/wheel-trans-acce…
Discomfort Zone Podcast retweeted
Back in February, I learned of a transit accessibility issue that will have devastating implications for disabled Torontonians in the coming years: Wheel-Trans’ Family of Services program (FOS). I investigated this issue for @TheLocal_TO 🧵 (1/8)
thelocal.to/wheel-trans-acce…
Discomfort Zone Podcast retweeted
Fibromyalgia is often referred to as an “invisible illness”. On @DocProjectCBC, @JasonHerterich has several candid conversations with his family on their disbelief and the stigma surrounding chronic pain. Listen here: cbc.ca/amp/1.6339795
Discomfort Zone Podcast retweeted
Congrats to #painwarrior @JasonHerterich on his @DocProjectCBC story! Jason asks his family a question that has been nagging at him for years...why didn't you believe my pain was real?
Jason Herterich lives with fibromyalgia, a chronic condition that causes pain throughout his entire body.
But along with the physical pain, something else has hurt Jason too: disbelief. What happens when the people you love most don’t believe you’re sick? cbc.ca/1.6339795
Discomfort Zone Podcast retweeted
I'm really excited for this event by @thewalrus tonight! Tune in to hear the speakers discuss how individual resilience is useful and helpful and how it's harmful when used to inform policy decisions impacting equity-seeking groups. #DisabilityTwitter #NEISvoid
Tonight at 7 p.m. ET! @TD_Canada presents The Walrus Talks at Home: Reimagining Resilience, featuring @seanleelee1, Dr. Roberta Timothy, @alliespins, and Anne Spice. Moderated by Sheyfali Saujani. reimagining-resilience.event…
#ReimaginingResilience
Here's a video I recorded to help break the stigmas on #ChronicIllness and #Disability for the #RollingThroughBarriers
Breaking down the perceived barriers and real barriers I face as a #disabled person.
You can help build a barrier-free Ontario by supporting me in my #RollingThroughBarriers Campaign with @sci_ontario by making a donation: secure3.convio.net/cpao/site…
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Here’s a list of things you should do if you suspect someone is faking their chronic illness:
1) LISTEN to them
2) BELIEVE them
Discomfort Zone Podcast retweeted
Last year, I interviewed Karina Sturm where we discussed Munchausen’s by proxy. Doctors misinterpreted the chronic illness symptoms of a mother’s children as parental abuse. Even after the allegations were disproven, they continued to follow and haunt her.
invisiblenotbroken.com/disco…
Discomfort Zone Podcast retweeted
Now imagine going through that while people are accusing you of faking it to gain attention or to get out of work. I wasn't believed by some people until I grew so weak that I struggled to get out of bed. It's really traumatizing.
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Living with a chronic illness is not enviable. It's waking up every day to the worst hangover of your life, minus the party. It's having to rest all the time but never feeling rested. It's having everything you've ever worked for taken away from you through no fault of your own.
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CW: ableism, chronic illness & disbelief
Presenting this story as double-sided is dangerous. Why give a platform to a group whose sole purpose is to spread hate speech and to further stigmatize an already marginalized population?
This quoted post is unavailable.
#NEISVoid this is for anyone who's been or is currently a chronic illness student
I am looking to interview students (past or present) that have experienced difficulties throughout college & have lived with a chronic illness, for a large project I am working on.
Please send me a dm if you are or have been a chronically ill student.
[email protected]
Discomfort Zone Podcast retweeted
New Blog Post:
Parenting, Guilt, Shame, and What To Expect When You Have Teens and add Anxiety Disorders. — @Invisiblenotbrk
buff.ly/3wujdO8
#MentalHealthMatters #parenting #bloggerlife #chronicpain #disabilities #spoonie
#NEISvoid I'm curious if anyone knows of a term that describes being gaslighted while talking with someone about their history of gaslighting you.
Double-gaslighting?
Recursive-gaslighting?
Meta-gaslighting?
?
#DisabilityTwitter
Just ordered Chronic Profit written by @alliespins! It's about building a business while managing chronic pain. I'm so excited to read this! It is such an ongoing struggle to manage work with an unreliable body. Can't wait to learn from Alison's insights
amazon.ca/Chronic-Profit-Bui…
Discomfort Zone Podcast retweeted
Tinu & Monica Michelle Catch Up : Raising Teens in Pandemic, LiveIn Care A new Way, SelfWorth, & Solving the World's Problems
A #Disability #ChronicIllness Podcast @Invisiblenotbrk
buff.ly/3i1acrV
@Tinu #Mentalhealth #spoonie #chronicpain #podcast #DisabilityTwitter
