Passionate about health&care inequalities, disability, sustainability, involvement&intersections. Living w/endometriosis. Proudly queer #LwiththeT Views my own

London
Joined April 2009
If you've just started following me, I tweet about: - supporting &improving the #NHS and #SocialCare - inequalities in many forms - #LGBTQ rights - #disability - other important things (including cats, knitting, my local community) Lovely to meet you!
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My @thameswater bill is now higher than my gas and electricity - combined! - after TWO bill increases since March. I contacted them to ask and explain flatmate has moved out and all they said was i can apply for a refund if needed later on. How is this OK @MartinSLewis?
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Dr Deborah Fenney retweeted
The #NHS recently announced a review into the health of LGBT+ people. While this is a welcome development, says Deborah Fenney in her blog, the review will need to lead to specific measurable actions. Read more ⬇️ kingsfund.org.uk/insight-and…
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Dr Deborah Fenney retweeted
📣 We’re looking for case studies for our Digital health and care conference on 15 July that showcase how digital innovation and technology are transforming health and care. Email [email protected] by Sunday 30 March outlining your case study and why you want to take part.
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Dr Deborah Fenney retweeted
We condemn in the strongest terms the arrest of my friends Mahmoud Muna and Ahmad Muna, Palestinian booksellers and owners of Jerusalem’s Educational Bookshop, by Israel’s occupation authorities. The arrests of Mahmoud and Ahmad is a stark reminder of the ongoing campaign to censor knowledge, stifle free speech and information that challenges Israel’s occupation of Palestine and in this case, Israel’s illegal colonial occupation of #Jerusalem and its oppressive measures in the city. Freedom of expression is a cornerstone of all just societies. There is no genuine peace without the freedom to read, and no freedom to read without booksellers able to carry out their work in safety. We stand firm in our support of Mahmoud and Ahmad Muna, and all Palestinian detainees, and call on our colleagues and partners in the international community, including the publishing industry and the book trade, in the U.K. and beyond, to join us in calling for their immediate release.
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This thread has comments from people who are desperate and suicidal at the news of the latest 'crackdown' on benefits. These kinds of changes are always much more harmful than helpful. It feels like 2010/11 again but worse, because things have already been cut to the bone.
I definitely feel suicidal when thinking about the Labour government taking away my PIP Disability Benefit. It was a huge amount of effort getting it. It's the only money that I don't get from my wife. I often feel as if life isn't worth living under this cruel Labour government. Does anyone else feel like this?
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Really important evidence being given by @FaziletHadi here - the medical model of disability is extremely influential in health care and it's vital medics have an understanding of the social model too, to support and value disabled people's lives. #AssistedDying
Replying to @DisRightsUK
“I find the NHS one of the organisations and institutions in this country that is least comfortable with disability. I could get better equality, probably, at my railway station” - Fazilet talks of the culture shift needed in the NHS and safeguarding concerns this raises
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In other words, somebody claiming PIP (or the old DLA, which somehow I'm still personally on) can work full time and have savings and still claim. Indeed this is not a bad thing, in many cases, it's essential, the support that some disabled people get through PIP...3
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Replying to @AvantiWestCoast
@AvantiWestCoast trying to change an advance ticket on app and getting "not possible due to technical issues" - any ideas? Hoping to travel on 11.15 man-eus
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An absolutely fascinating thread. Definitely would hate some of this (community participation in diagnosis?!) but a window in a very different way to run healthcare
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Dr Deborah Fenney retweeted
'The 18-week target is an important hospital milestone, but it is not a milestone for our overall health service,' says @swoolnough, responding to the Prime Minister's speech on its Plan for Change and the #NHS waiting list 'milestone'. Read more: kingsfund.org.uk/insight-and…
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I did a video🙈! But I'm so proud of this exhibition. As a researcher w/personal experience of disability & LTCs, I'm passionate about inclusive disability research. I hope that we can do a lot more @TheKingsFund in future. #InternationalDayofDisabledPeople #DisabilityRights
Today marks International Day of Persons with Disabilities. @kingsfund_lib have launched 'An ordinary life': an exhibition exploring The King's Fund work on services for disabled people. Explore the exhibition. features.kingsfund.org.uk/or…
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Dr Deborah Fenney retweeted
#AssistUsToLive Dignity In Dying spent £194,000 on Facebook adds to promote their campaign from August to November. I spent £3.50p. On A4 printed piece of paper, A4 piece of card and sellotape and string holding it all together.
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Replying to @PenPep
It was depressing AF to have to put together a dossier proving my "economic value" for my family in case I got seriously ill with COVID, as removing the non-consenual DNR applied simply b/c I'm on the learning disability register, took a long time.
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Dr Deborah Fenney retweeted
As someone who had a DNR without my consent during critical illness I know there are many pressures of coercion. It was expected a DNR was acceptable. Thankfully I was surrounded by loving friends who demanded it was removed. And here I am... #AssistUsToLive
Coercion in the context of assisted dying is when someone is pressured or controlled into ending their life: This is an extremely important issue that MP’s must consider carefully before they vote on 29th November Please share this Thread 🧵 #AssistUsToLive
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Today marks the beginning of UK Disability History Month💥 For us, this is an opportunity to look back on our long struggle for autonomy, against paternalism and pity. How could we not start with the Disabled People's Direct Action Network (DAN)?
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Exactly this - we need a lot more focus on the right to live well, not just to die well.
On a day that a bill to legalise assisted dying is released, I'm sat in bed with a body wracked with pain, no idea when I might be getting any treatment & if that treatment will work. Wish there'd been an announcement of a bill to provide pain management that works for all too.
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