Professor Psychology & Digital Mental Health Care @TUM, Founder&CSO HelloBetter, life on pause since Nov 2021; #longcovid #mecfs

Berlin, Germany
Joined April 2011
Free psychological online training to cope with #stress, #anxiety or low mood during #covid now available in english. Based on @GETON_I @HelloBetter_de `s stress training that has proven to be effective in seven (!) separate RCTs #StrongerTogether bit.ly/2YSlHrV
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Prof. Dr. David Daniel Ebert retweeted
I urge you to read this beautiful, powerful, heart-wrenching piece from Jessica Slice for @NYMag @TheCut as she discusses her family's experience with PANS. Her daughter, transformed from a vibrant little girl to developing excruciating widespread pain and sudden, severe neurological symptoms. PANS is one of the most demonstrative neuroimmune conditions across complex chronic illness. For many young children, infection - in this young girl's case, strep infection - can trigger a seemingly overnight biological response, driving neurological symptoms. Treatments are indeed possible: antibiotics, IVIG, and other immunomodulatory therapies. Imagine helping these little ones (or even worse NOT helping them) and at the same time, being given clues to help the larger populations suffering from post-infectious, post-surgical, hormonally driven, post-concussive, neuroimmune conditions. We must treat and study RIGHT NOW. (PS, I know this is behind a paywall for many - that comes from the publication but if you can gain access, it's such a powerful read.)
Last fall, my daughter caught a cold and then, days later, lost her ability to function. She could no longer speak, walk, sleep, or eat. Her illness, PANS, is controversial to some in medicine, and the fight to treat it has overtaken our lives. thecut.com/article/pans-pand…
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📚 Heute erscheint das Fachbuch Long COVID. Gemeinsam mit @GrandeTilman verfassten wir das Kapitel zur Psychotherapie bei ME/CFS. Psychotherapie ist bei #MECFS #PEM nicht kurativ. Sie ist Schutzraum- und ein Korrektiv gegen die Psychologisierung einer körperlichen Erkrankung.
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1/ Der @aerztezeitung Artikel zeigt ein Problem, das viele #MECFS Betroffene betrifft, sehr klar: „Fatigue, aber keine biologische Ursache weit und breit“ - und schon steht die somatische Belastungsstörung (SDS, SBS) im Raum. Mit DSM-5/ICD-11 (1/27) verschiebt sich der Fokus:
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Long COVID hasn’t disappeared. People continue to develop it after new infections—yet the myth that it’s “over” still persists. Bára’s story shows the reality: after her 3rd COVID‑19 infection in 2025, she became house‑bound with severe fatigue and heart issues.
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2%Improved
4%No Change
3%Worsened
92%See results
258 votes • Final results
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Large survey on potentially effective supplements and medications for #longcovid & #mecfs . Let’s help to circulate that widely in order to inform subsequent research! Thanks @organichemusic for all your work!
Hi everyone! I am very excited to announce that I have finally completed a massive #ME/CFS & #LongCOVID treatment survey entitled "TREAT ME"‼️🎉🤩 If enough people respond thoughtfully, I’m confident we may push research in the field forward!🏇 🧵1/3 surveymonkey.com/r/TREATMEAN…
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Prof. Dr. David Daniel Ebert retweeted
Es ist einer der größten Gesundheitsskandale unserer Zeit, der Energiebündel in Pflegefälle verwandelt. Doch so seltsam es klingt: Corona hat Berlin zum Zentrum der Hoffnung für ME/CFS-Patienten gemacht. berliner-zeitung.de/gesundhe…
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Prof. Dr. David Daniel Ebert retweeted
How many #MECFS , #LongCovid, post-infectious disease patients, and their respective loved ones are active on Twitter? It would be great to get a rough estimate of how many folks we can mobilize. Please like and RT. Let's see if this works.
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Prof. Dr. David Daniel Ebert retweeted
⚠️ Wir brauchen #euch!!! AKTION #Liegenddemo am 19.01. im Zuge der Beratung des #Bundestags über den Antrag der #CDUCSU zur Versorgung von #MECFS - #LongCovid und #PV - Betroffenen! Bitte beteiligt euch mit ❗️30€ ❗️ via #paypal an [email protected] Details im Thread 🧵
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Replying to @Karl_Lauterbach
Viele Betroffene mit #LongCovid & #MECFS liegen im 3. Jahr isoliert zu Hause. Die Kraft fehlt vielen, um Kontakt zu halten oder an Festlichkeiten teilzunehmen. Bitte ruft bei Freunden / Bekannten / KollegInnen an, lasst sie nicht aus dem Leben verschwinden washingtonpost.com/wellness/…
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Met by coincidence @michaelfranti this year and he performed for us his new song #brighterday . It touched me deeply. I don’t know how often I have heard this the last year and how often it gave me hope on my challenging recovery journey from #longcovid.
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Yesterday I heard it again and lots of tears just ran down my face and I got the strong Impuls to share the song and this message. So for everybody who need to hear this: #dontgiveup #justkeeponfighting !!!#MerryChristmas
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Many changes are always needed, of course, but I'm seeing a specific need to shift an aspect of how mainstream media reports on #LongCOVID, #MECFS and other complex chronic illnesses. Recently there has been a slew of articles written by "learned doctors" (or even the 1/
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Male university students have walked out of their exam in protest against Taliban’s decision to BAN female students from university education. Several male professors have also resigned so far. This must happen across the country NOW!
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Bitte helft mir eine einfühlsame & zuverlässige Pflegeperson zu finden Minijob 7,5h pro Woche (30h im Monat ) - deutsch/englisch lesen können - leise/vorsichtig sein - kochen können - selbständig arbeiten - hygienisch & sauber - freundlich &höflich - keine Diskussionen
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Bitte helft mir dabei einen Arzt zu finden der mich zu Hause medizinisch versorgt #verysevereME #pallativ #hospiz #pflege #MedTwitter #Medbubble #medizin #endstadium
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HIGH-DOSE EPA for LongCovid or ME/CFS? Recently I spoke w/ an MD who has treated ~40 #pwLC with an Rx omega-3 fatty acid similar to EPA known as icosapent ethyl (IPE, brand name Vascepa) w/ promising results. Turns out, it may help #pwME too. Details👇 pharmd.substack.com/p/high-d…
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