Hope for People with Dilated Cardiomyopathy. If you need support, contact [email protected] or visit our website.
Joined April 2021
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The newly redesigned DCMF website helps patients & families navigate post-diagnosis with confidence—from understanding genetics and gene testing to finding support groups, educational webinars, and specialists. No one should have to figure this out alone.
dcmfoundation.org/
A DCM diagnosis is a starting point. Your medical team provides the plan, but you are the one who manages your daily heart health. Living well with DCM is about small, consistent choices that support your heart and your outlook. For details & tips: dcmfoundation.org/managing-m…
Living with PRKAG2? Your voice matters.
Interested in learning more?
Email Shauna at [email protected] to express your interest and receive additional details. #PRKAG2 #GeneticCardiomyopathy
Bo Nemelka's story makes it clear why communicating with your family about your shared health history can improve wellbeing and save lives. Read more: dcmfoundation.org/patient-su…
Cameron Butcher is back to bike racing in the Australian Transplant games showing us how much can be done after a heart transplant. Cameron was diagnosed with DCM in 2022 and had a transplant in 2024. Read Cameron's story: bicyclingaustralia.com.au/co…
Did you know? There are two support groups on Facebook for DCM patients and families to share and connect. These are great resources for anyone looking to connect with others who can understand what they're going through.
Learn more on our website: dcmfoundation.org/patient-su…
If you received a genetic test for DCM over three years ago, there's value in getting re-tested for free. Watch Megan Sutton, NP explain why you should consider getting re-tested: youtube.com/watch?v=p1Ya-RoB…
You have the power to impact the cardiomyopathy community! Sign up for the GENETIC CARDIOMYOPATHY REGISTRY. The Registry empowers those eligible to advance research to find effective treatments and potential cures for cardiomyopathies like DCM 💚
geneticcardiomyopathy.org/re…
A 7 year old's stomach pain turned out to be hybrid cardiomyopathy: she has symptoms of restrictive and dilated cardiomyopathy. She's now using a Berlin Heart Ventricular Assist Device while waiting for a transplant. Read Essie's story:
uk.style.yahoo.com/seven-old…
"You don't want it to sneak up on you. Actually knowing that there could be an issue...it's eye-opening and you can take the proper precautions."
Cardiomyopathy impacted Adam & Kaylee's family and they shared what they learned. Find more patient stories: dcmfoundation.org/patient-st…
Your care team should be centered on you! But who else is usually part of the team? These three specialists are typical:
1. Heart Failure Specialist
2. Electrophysiologist
3. Primary Care Physician
Learn more about getting the most from your care: dcmfoundation.org/partnering…
Join us October 21 at 6:00pm EST for an inspiring evening with the DCM Foundation as we celebrate progress, share what’s ahead, and explore how we can put our hearts in action for the DCM and genetic cardiomyopathy community.
Register for free: dcmfoundation.org/upcoming-w…
🧬 We’re just days away!
Join experts from Mayo Clinic and Nuevocor on September 9 at 6 PM ET to learn about NVC-001, an investigational approach to LMNA-related cardiomyopathy, and the enrolling SUNBEAM-LMNA clinical trial.
Register for FREE: geneticcardiomyopathy.org/re…
Our new website has tools & tips for every patient to find a cardiomyopathy or heart failure specialist, which can be a game changer for care. Learn more: dcmfoundation.org/find-a-car…
Join DCMF and Nuevocor for a free webinar on LMNA-related DCM, one of the most serious genetic forms of heart muscle disease. Learn about the disease, current treatment challenges, and innovative research that may help shape the future of care.
Register: dcmfoundation.org/webinars-e…
Meet Shauna Planck, a member of the cardiomyopathy community and a cherished member of the DCMF team. Her story illustrates how genetic cardiomyopathy can impact a family and how important getting specialized care can be. Read the story on our website: dcmfoundation.org/patient-su…
Join us on Sept. 9 for a free webinar on LMNA-related DCM. The webinar will cover:
1. What LMNA-related DCM is and how it affects patients and families
2. How the NVC-001 gene therapy works
3. An overview of the SUNBEAM-LMNA clinical trial
Register at dcmfoundation.org/upcoming-w…
"When I was 15 and diagnosed, they gave me 5 year to live". Watch Stephanie's inspiring story of living with cardiomyopathy: youtu.be/ezDJe4vN0xk?si=P6_f…
Researchers in New Zealand made a promising discovery when they reversed genetic cardiomyopathy in mice. Read more: 1news.co.nz/2026/08/21/heart…
Get the latest news and find ways to connect with the DCM Community. Subscribe for free and never miss a beat: dcmfoundation.org/newsletter…
