Cure FSHD For All (@CureFSHDForALL) header
Cure FSHD For All (@CureFSHDForALL) profile picture

Join the movement for inclusive trials.

Joined January 2025
Photo by Cure FSHD For All (@CureFSHDForALL)Photo by Cure FSHD For All (@CureFSHDForALL)Photo by Cure FSHD For All (@CureFSHDForALL)Photo by Cure FSHD For All (@CureFSHDForALL)Photo by Cure FSHD For All (@CureFSHDForALL)Photo by Cure FSHD For All (@CureFSHDForALL)Photo by Cure FSHD For All (@CureFSHDForALL)
Imagine being told there’s a treatment that could change your life, only to be turned away because you don’t fit the criteria. Today, we’re launching the #CureFSHDForALL initiative, because every person living with FSHD deserves to have access to life-changing treatments.
1
2
5
868
This is what it’s like having #FSHD, according to a 12 year old.
1
4
1,090
Together, we can make sure no one is excluded from a future free of #FSHD. Sign the petition today: bit.ly/CureFSHDForAll
1
1
1
471
Imagine there is a treatment for your family member’s muscle wasting disease, but they can’t get access to it. Sign the petition demanding that every FSHD patient—regardless of age or mobility—has a fighting chance to access a cure: bit.ly/CureFSHDForAll
180
Time is muscle. We cannot afford to wait. Sign the petition now to demand a plan for access to therapies for ALL people with FSHD. Sign it here: bit.ly/CureFSHDForAll
4
229
We started #CureFSHDForALL, so that ALL people with FSHD, regardless of age or severity, have a fighting chance to access approved therapies. Learn who we are: curefshdforall.com/who-we-ar…
2
164
Sign the #CureFSHDForALL petition to help push the FDA and pharma companies to design trials that are inclusive for ALL people with FSHD. bit.ly/CureFSHDForAll
1
95
A cure for FSHD should be accessible to ALL. Join us in advocating for clinical trials that are inclusive and equitable for the entire FSHD community. Visit our website to learn more: curefshdforall.com
1
100
Sign this petition demanding that every FSHD patient—regardless of age or mobility—has a fighting chance to access a cure! change.org/p/access-to-thera…
1
2
619