@CureEBorg

Raising funds for #EpidermolysisBullosa research and clinical trials. Please support us by joining our fundraising initiatives 🦋 Together we can #cureEB

 London
cure-eb.org/
Joined July 2012
  • Tweets9.1K
  • Following750
  • Followers2.3K
3.5KMedia
Enjoyed our first full day at #EB2026 #CureEB #ResearchtheCure #EpidermolysisBullosa
2
74
Prof John McGrath talks about the challenges in finding treatments and a #cure for #EB. Watch the full video on our Youtube channel: youtu.be/_JtRtRkL_sA #CureEB #ResearchtheCure #EpidermolysisBullosa
1
2
214
Fancy taking on a challenge for Cure EB this year? We've got lots of places available at events around the country - see cure-eb.org/challenges - or if you already have a place and would like to fundraise for us, please get in touch! #CureEB #FabulousFundraisers #Donate
1
46
In the video, two of last year's London marathon runners talk about why they chose to run for Cure EB. 100% of funds raised go to our research projects so we can continue to #researchthecure for #EB
38
Make 2026 the year you raise free funds for Cure EB from your online shopping! Plus, we'll get a bonus donation when you sign up before the end of February: giveasyoulive.com/join/cure-… #CureEB #ResearchtheCure #EB #Research #Donate
1
2
61
Happy New Year, from everyone at Cure EB Thank you for all your support! In 2026, we remain dedicated to finding effective treatments and a cure for #EpidermolysisBullosa. We'd love you to join us on our journey! cure-eb.org 💙🦋 #CureEB #ResearchtheCure
3
69
Cure EB is proud to be a fully research-focused charity. This year we've funded new projects and shared existing work at conferences and events. In 2026, we will continue to work towards our vision of effective treatments and a cure for EB!
1
1
2
90
Take a look at the research we fund at cure-eb.org/currentresearch #Cure EB #ResearchtheCure #EpidermolysisBullosa #EB
54
Merry Christmas from all at Cure EB x 🦋🎄🦋🎅🦋
3
67
Missed the last post? Worry not! You can still share some festive cheer by sending e-cards and donating the cost of cards and stamps to Cure EB! dontsendmeacard.com/ecards/c… #CureEB #ResearchtheCure #EB #DontSendMeACard #Donate
1
66
"I couldn’t wait to be 13. I thought that I would finally get some freedom & independence to do things by myself... One of the most frustrating things about EB is that I’m always with an adult. I love being with my parents, but sometimes I want it to just be me & my friends."
1
1
45
You can read more of Poppy's story on our website: cure-eb.org/poppy This is why we #ResearchtheCure. For a life free from pain, and a life where children like Poppy can do the things that most of us take for granted. #CureEB #FacesofEB #EBStories
22
Medical research to find a cure for EB is the only focus of our energies and of your donations. We are so grateful to our wonderful supporters. 💙 If you would love to be part of finding a cure for EB, then here are a few ways you can support us.
1
27
Or visit our website for more ideas: cure-eb.org/support-us #CureEB #ResearchtheCure #EpidermolysisBullosa 🦋

Support Us

There are a number of ways to support us, and we are immensely grateful for whatever help you are able to offer.  This could be donating, raising awareness by having a breakfast or lunch with...

cure-eb.org
18
Send Christmas e-cards this year & you can support Cure EB in the process! By making a donation through @dontsendmeacard you can choose your design and send up to 100 e-cards, either in a batch or personalised: dontsendmeacard.com/ecards/c… #CureEB #ResearchtheCure #Charity #Donate
1
2
85
A reminder that our final Research the Cure webinar of the year is this Thursday. Join Prof Jakub Tolar as he discusses his research into immune and cell therapy for RDEB-associated squamous cell carcinoma. 🦋Thursday 11th December, 2pm 🦋Register here: cure-eb.org/event/researchth…
1
3
143
Thank you all who helped us reach our match funding target in the @BigGive #ChristmasChallenge! We were able to raise an amazing £97,325, including Gift Aid, for our gene-editing research. Together, we can cure EB! #CureEB #ResearchtheCure #EpidermolysisBullosa
1
3
87
One Donation 💙 Double the Difference 💙💙 Last chance to have your donation doubled as part of @BigGive's #ChristmasChallenge Donate via donate.biggive.org/campaign/… by midday Tuesday 9th December. Together, we can cure EB! #CureEB #ResearchtheCure #EB #EpidermolysisBullosa
1
62
Don't forget our Research the Cure webinar with Jakub Tolar is this Thursday 🦋 11th December, 2pm GMT 🦋 Online 🦋 Free to attend and open to all but your must register: cure-eb.org/event/researchth… #CureEB #ResearchtheCure #EB #Research
Photo of Prof Jakub Tolar overlaid with text: Research the Cure Immune & Cell Therapy for RDEB SCC Research Webinar Thursday 11th December, 2pm GMT

ALT Photo of Prof Jakub Tolar overlaid with text: Research the Cure Immune & Cell Therapy for RDEB SCC Research Webinar Thursday 11th December, 2pm GMT

1
116
Double the #donation means double the #research spend. Until midday 9th December, you can have your donation matched when you donate to us via donate.biggive.org/campaign/… Help us to make a difference for people with #EB by donating as part of @BigGive's #ChristmasChallenge
38
Load more