Mild COVID = no hospitalization. Mild long COVID = no home health aide. MS Computer Science BS Biological Sciences BA Economics @Stanford
San Francisco Bay Area
Joined November 2009
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Antiphospholipid antibodies positive 2X & >12 wks apart.
Already had rec for aspirin to reduce risk of colon cancer recurrence. It's treatment for APS too so..
1 aspirin on 10/3. New record walk speed next day, though many variables.. night walk, different path during heatwave.
When I put degrees in my Twitter bio, I stopped getting comments such as, you can't argue 1+1=2 or anything because you're anonymous.
However, mind you, I'm still anonymous and you can't verify my degrees.
Now I'm imagining putting MCAT scores on my forehead when I see doctors.
To "level with" me means she's not afraid that I can read research papers and figure out biology, send her references that she can consider in her own problem solving.
And doesn't need to say/do something illogical to prove they're smarter than a patient saying something logical
Can't stand all the Teslas around here.
You vote with your money.
Silicon Valley stopped being entrepreneurial ~15 yrs ago. Sadly it's the same people who in dot-com days would've been in their garages since day 1 of the pandemic inventing air cleaning systems to replace masks.
Well, I haven't met a doctor or nurse at UCSF that doesn't look at me like an alien if I mention Long COVID (except one specially tasked for "mystery illnesses" (except they are only trying to test & find anything other than ME/CFS after saying it's most likely actually ME/CFS)).
“The tissue samples from long COVID patients revealed severe muscle damage, a disturbed immune response, and a buildup of microclots.”
The evidence of #LongCovid is all there.
Doctors who continue to ignore it should no longer be working in medicine. npr.org/sections/health-shot…
Cure ME/CFS (and Long COVID) retweeted
⚠️BREAKING
COVID/LongCovid is causing an explosion of dizziness, tiredness and tachycardia in young people. The incidence of Postural Orthostatic Tachycardia Syndrome (POTS) has increased 15 fold.
healio.com/news/cardiology/2…
Cure ME/CFS (and Long COVID) retweeted
#MedTwitter
Researchers asked people w/ & w/o #longCovid to 🚲 & performed muscle biopsies:
Tissue from people w/ LC had “severe muscle damage, a disturbed immune response, & a buildup of microclots…& immense amounts of cell death, or necrosis.” 😞
npr.org/sections/health-shot…
Cure ME/CFS (and Long COVID) retweeted
Hey so if you have long covid or ME, or suspect you do, and your doctor suggests you take up graded exercise as a key part of therapy, please direct them to the Nature Communications paper published 4th Jan on Post exercise malaise. Here's the NPR write up
npr.org/sections/health-shot…
Yes I want to know if it was COVID that led to cardiac arrest & death of famed Vietnamese chef.
But we've been systematically relegated to Bob & Jetelina & co's people-don't-need-to-know if it was COVID. So don't mind if they die.
Are the Slanted Door bao in my freezer the last
Random Tweets.
I ordered from @GoodEggs on Christmas Eve at 11am & got my delivery at 3pm.
Handy if you have ME/CFS & going to Whole Foods 2 blocks away is sometimes too much.
Though $5 / medium sized bao from Slanted Door & needs to be steamed + delivery & subscriptions fees.
Cure ME/CFS (and Long COVID) retweeted
IFL Science: 'People Who’ve Had COVID Could Be Almost 8 Times As Likely To Develop ME/CFS'
'New research finds levels of the chronic condition are now 15 times higher than pre-pandemic'
“'..underscores the urgency..to recognize post-COVID-19 ME/CFS'
iflscience.com/people-whove-…
The number of people in the circle of my mom's best friends is ~1-3.
xitter.cf/CureCFS/status/1756652…
If she weren't my realtor or the timing were different, I might never have heard of this (probable severe COVID & PASC) in the closest 2nd degree connection possible.
So 99% of the time, you aren't going to hear of your friends' brain fog, anosmia, heart condition, pain, or PEM.
I haven't taken a Twitter hiatus because COVID is less of an issue. Rather, COVID brain damage has become a full time job from each person that appears to have it. E.g. my ex-landlord turned every micro-interaction into multi-dimensional abuse including severe water damage & mold
Cure ME/CFS (and Long COVID) retweeted
13) UPDATE—“Combining nasal and throat specimens increased sensitivity for HCW- and self-collected specimens by 21.4 and 15.5 percentage points, respectively, compared with a single nasal specimen”
“Adding a throat specimen to the standard practice of collecting a single nasal specimen could improve sensitivity for rapid antigen testing in health care and home-based settings.”
Finally, validation… the arc of the moral universe is long, but it does bend. Now when will FDA admit they were wrong / apologize for having their head in the sand?
jamanetwork.com/journals/jam…
Cure ME/CFS (and Long COVID) retweeted
BREAKING: This brilliant speech yesterday by a Columbia professor on the cowardice of the university administration in calling in police to arrest students will be cited throughout history -– and will inspire generations of students for decades to come.
Columbia still on lockdown two days later.⤵️
There's an increasingly frequent trend in my neighborhood of usually white women or men accelerating into crosswalks when they see people in it. I'm thinking about my immense Asian female privilege as I respond by making huge hand gestures that they're loco & saying things loudly
My neighborhood is around 60% Asian, 30% white, 5% black and brown, & 5% mixed. Among white, it's actually 5% middle eastern & 5% European immigrant, so maybe 20% white American.
Why now... is there a group that needs to prove their right to go wherever they want and be violent?
Cure ME/CFS (and Long COVID) retweeted
Working today due to an overflow of patients and here is a very important case:
👉 49-year-old old previously healthy man who ends up with #NSTEMI. Cardiac cath is negative, he is discharged on a beta blocker only.
👉 Following this event, he developed daily symptoms of headache, paresthesia, presyncope, dyspnea and fatigue.
👉 I asked him if he had Covid in the weeks preceding this: sure enough he did - about 12 weeks before the heart attack.
👉 I reviewed all medical records, including from a university hospital in the South ➡️ no mention of #COVID_19 or post-Covid conditions anywhere.
👉 Treatment of this patient did not include any management of #LongCovid and post-Covid cardiovascular conditions.
What do we learn from this case?
🫀 Cardiovascular, autonomic and neurologic manifestations of #Covid are widespread and are often not recognized or coded as such ➡️ will not be tracked in the electronic medical records.
🧠 People are having heart attacks, strokes and blood clots at a young age, which are not counted as post-Covid sequelae ➡️ thus, the real incidence and prevalence of Long Covid and post-Covid conditions are largely underestimated.
💊 Patients are not started on aspirin because "there is no blockage in the arteries," but many patients are in hypercoagulable state (his d-dimer on admission was high) ➡️ at least a daily aspirin might be beneficial
‼️ #LongCovid is a major public health issue that is under-reported, under-counted, under-recognized and under-treated.
#MedTwitter #CardioTwitter #NeuroTwitter
Cure ME/CFS (and Long COVID) retweeted
Emory professor and philosophy department chair who was arrested wasn’t even there to protest - she was concerned about student safety and wanted to simply observe what was going on. She denies the university president’s claim it was outside agitators - she was with Emory students - and says police swarmed and became violent with zero cause.
