@ConsortiumSleep

Sleep Consortium accelerates next-generation research and therapy development for Central Disorders of Hypersomnolence through a data collection ecosystem.

Joined February 2022
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  • Following34
  • Followers49
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In our Patient Guidelines for Central Disorder of Hypersomnolence, we also have these helpful infographics that concisely detail all the ways CDoH can bring about other health issues. sleepconsortium.org/patient-… #CDoH #centraldisordersofhypersomnolence #sleepconsortium
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Unsure about joining the DREAMS Portal? We'll be doing a series highlighting the most frequently asked questions. First, what is the Data Collection Program (DCP)? Join the DREAMS portal by registering at rare-x.org/sleepconsortium/. #DREAMSportal #BeCounted #sleepconsortium
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Thank you for joining and supporting our #IlluminateIH Adjunct Scientific Meeting! In case you missed it, view the recording at sleepconsortium.org/ih-asm & share your thoughts by February 28. A summary report is coming this spring—stay tuned! #thisisIH
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There's still time to register for the Illuminate Hypersomnia Adjunct Scientific Meeting happening February 13, 2025, from 12:00 – 2:00 p.m. EST. Learn more and register here: sleepconsortium.org/IH-ASM/. #IHPFDD #IlluminateIH #idiopathichypersomnia #sleepconsortium #thisisIH
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What is brain fog? We define brain fog and more in our Patient Guidelines for Central Disorder of Hypersomnolence. If you want to learn more, click the link in our bio to download the guidelines. Click here to access the guidelines - sleepconsortium.org/patient-… #CDoH
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Join us for the Illuminate Hypersomnia Adjunct Scientific Meeting on February 13, 2025, from 12 – 2 p.m. EST. Dr. Lynne Marie Trotti will 'Recap of Illuminate Hypersomnia EL-PFDD.' Learn more and register today: sleepconsortium.org/IH-ASM/ #IHPFDD #IlluminateIH #sleepconsortium
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Disrupted sleep can impact every aspect of a person's life. In our Impact on Quality of Life chapter, we detail the ways CDoH may impact daily life. Click here to access the guidelines - sleepconsortium.org/patient-… #CDoH #centraldisordersofhypersomnolence #sleepconsortium
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Illuminate Hypersomnia Adjunct Scientific Meeting speaker announcement! We're thrilled to include the following panelists discussing - Considerations for Recruiting and Retaining People with IH in Research Studies. Register today: sleepconsortium.org/IH-ASM/ #IHPFDD #IlluminateIH
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Our Patient Guidelines for Central Disorder of Hypersomnolence also have helpful infographics that guide us in creating a room that fosters better sleep hygiene. sleepconsortium.org/patient-… #CDoH #centraldisordersofhypersomnolence #sleepconsortium
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Join us for the Illuminate Hypersomnia Adjunct Scientific Meeting on February 13, 2025, from 12:00 – 2:00 p.m. EST Dr. Mignot will share insights into Barriers to Participation in Research Studies. Register here - sleepconsortium.org/IH-ASM/ #IHPFDD #IlluminateIH
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Do you feel that you may have a #sleepdisorder? In the Sleep Consortium's Patient Guidelines for Central Disorder of Hypersomnolence, we detail all the different types of tests available to receive a diagnosis. sleepconsortium.org/patient-… #CDoH #centraldisordersofhypersomnolence
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Illuminate Hypersomnia Adjunct Scientific Meeting speaker announcement! We're thrilled to include the following panelists discuss - Approaches to Better Defining and Measuring Brain Fog in IH. Learn more and register today: sleepconsortium.org/IH-ASM/ #IHPFDD #IlluminateIH #IH
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In 2024, the Sleep Consortium released Patient Guidelines for Central Disorder of Hypersomnolence. In the specific symptomology, etiology, and clinical presentation chapter, we define central disorders of hypersomnolence (CDoH). sleepconsortium.org/patient-… #idiopathichypersomnia
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Sleep_Consortium retweeted
Project Sleep@project_sleep15 Jan 2025
📢 Join the discussion on "Tackling the Drug Development Challenges for IH" on February 13th from 12–2 PM ET, hosted by @ConsortiumSleep. Registration is free and encouraged. Learn more: sleepconsortium.org/ih-asm/
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Join us for the Illuminate Hypersomnia Adjunct Scientific Meeting on February 13, 2025, from 12:00 – 2:00 p.m. EST. Dr. Michael Thorpy will share insights into Brain Fog. Learn more and register today: sleepconsortium.org/IH-ASM/ #IHPFDD #IlluminateIH #idiopathichypersomnia
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On April 11, 2024, the Illuminate Hypersomnia initiative will host an externally led virtual patient-focused drug development (PFDD) meeting, conducted as a parallel effort to the U.S. Food and Drug Administration’s PFDD initiative. Learn more: bit.ly/Save-the-date-IH

Illuminate Hypersomnia Initiative Shines Light on What It's Like to Live with Idiopathic Hypersomnia

/PRNewswire/ -- The Sleep Consortium, in collaboration with sleep-related patient advocacy organizations worldwide, announces the Illuminate Hypersomnia...

prnewswire.com
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Spark better understanding & a new dawn for treatment & care for #idiopathichypersomnia. Join others #livingwithidiopathichypersomnia from around the world to #IlluminateIH. Learn more at bit.ly/illuminate-IH
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Excited to present the new patient data connection and federation platform to advance research at the #hypersomniafoundation conference. #sleepresearch
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