@ChectUK

Childhood Eye Cancer Trust - a charity dedicated to helping people affected by retinoblastoma. We provide support, raise awareness and fund research.

 London / Birmingham
chect.org.uk
Joined July 2011
  • Tweets12.4K
  • Following2.3K
  • Followers2.8K
5.6KMedia
At SightCare Live last month, we were delighted to give @ChectUK a platform to raise awareness of retinoblastoma — a rare eye cancer affecting children. Read more: buff.ly/I75CdOR
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Annual figures released by @chectuk reveal the key role optometrists can play in the early diagnosis of the rare eye cancer retinoblastoma (Rb): buff.ly/4Scjyk2
This infographic from the Childhood Eye Cancer Trust (CHECT) shows urgent referral rates among healthcare professionals who saw a child later diagnosed with retinoblastoma in 2025. Healthcare ProfessionalUrgent Referral RateOptometrist81%A&E67%GP34% A few key takeaways: Optometrists had the highest rate of urgent referral, correctly escalating 4 in 5 cases. A&E departments also performed relatively well, urgently referring two-thirds of children. GPs had the lowest rate, urgently referring only around 1 in 3 children — suggesting a significant gap in recognition or response at the primary care level. The data is based on 39 children diagnosed with retinoblastoma (Rb) during 2025, sourced from CHECT's records. The disparity between GPs and other professionals likely reflects differences in training, access to eye examination equipment, and familiarity with the condition's warning signs (such as leucocoria — white pupil reflex).

ALT This infographic from the Childhood Eye Cancer Trust (CHECT) shows urgent referral rates among healthcare professionals who saw a child later diagnosed with retinoblastoma in 2025. Healthcare ProfessionalUrgent Referral RateOptometrist81%A&E67%GP34% A few key takeaways: Optometrists had the highest rate of urgent referral, correctly escalating 4 in 5 cases. A&E departments also performed relatively well, urgently referring two-thirds of children. GPs had the lowest rate, urgently referring only around 1 in 3 children — suggesting a significant gap in recognition or response at the primary care level. The data is based on 39 children diagnosed with retinoblastoma (Rb) during 2025, sourced from CHECT's records. The disparity between GPs and other professionals likely reflects differences in training, access to eye examination equipment, and familiarity with the condition's warning signs (such as leucocoria — white pupil reflex).

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To mark World Retinoblastoma Awareness Week @ChectUK highlighted the “crucial” role optometrists play. The charity found in 2025, 81% of optometrists who examined a child with retinoblastoma made the appropriate urgent referral. Learn more ➡️ ow.ly/s1We50YZrgg
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Our charity partner @chectuk are raising awareness of retinoblastoma this World Retinoblastoma Awareness Week. Find out how your practice can get involved over on our blog: buff.ly/znxcnFY
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If you see a white glow in the eye, a white pupil or white reflection in a photo where a flash has been used, or when your child is in artificial light or a darkish room, visit a GP or optometrist ASAP as this is the most common sign of retinoblastoma @chectuk #RbWeek
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Today marks the start of World Retinoblastoma Awareness Week! Would you know the signs and symptoms of retinoblastoma (childhood eye cancer)? Learn more at chect.org.uk @chectuk #RbWeek
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CHECT UK retweeted
CHECT UK@ChectUKApr 10
World Retinoblastoma Awareness Week is happening in May! Head over to our website to learn how you can get involved: buff.ly/2ykITGf
A CHECT logo with the added words 'World Retinoblastoma Awareness Week'

ALT A CHECT logo with the added words 'World Retinoblastoma Awareness Week'

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CHECT UK retweeted
CCLG@cclgukMar 23
#Measles update 🚨 We know the rise in measles cases, especially in London and the West Midlands, is worrying for families of young people with cancer. We’ve worked with the UK Health Security Agency (UKHSA) to provide trusted information. Read more: bit.ly/4lR2Jum

Measles outbreak 2026

We know that many parents and carers of children and young people with cancer will be concerned about the rise in measles cases recently, particularly in London and the West Midlands. Immunosuppres...

cclg.org.uk
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CHECT UK retweeted
CCLG@cclgukFeb 9
Did you catch Professor Bob Phillips on @BBCBreakfast? 📺 He spoke about the children and young people’s section in England’s new #NationalCancerPlan, highlighting how #ChildCancerSmart is working to improve early diagnosis. @DHSCgovuk Find out more at bit.ly/4ak9Vd1
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CHECT UK retweeted
CCLG@cclgukFeb 4
📢 Breaking: The National #CancerPlan for England is out today - and for the first time, it includes a dedicated section on children and young people with cancer 👏 A huge milestone after years of collaboration and campaigning! bit.ly/4tezG70 #WorldCancerDay @DHSCgovuk
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We are delighted to share the winners of our Festive Window Display Competition 🎄✨ A huge congratulations to Christopher Young Opticians, Stephen Hewitt Opticians, and Respectacle Company for their truly delightful and eye-catching displays, as chosen by @chectuk
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This one’s close to home ❤️ Fundraising Race Night for Oliver Furnival – son of our manager Tom – who’s bravely fighting Retinoblastoma. 📅 Sat 1 Nov, 7pm 🎟️ £5 | 8 races, raffle & more 🎁 Raffle prizes welcome Tickets/donations via Collectiv (click don’t support Collective)
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URGENT: I need 8k more signatures on my petition to ensure all cancer patients get mental health support. Please share & sign: Thank u @MaggiesCentres @macmillancancer @ChectUK @AnthonyNolan @DKMS_uk @bloodcancer_uk @ncukcharity & others for yr support petition.parliament.uk/petit…

Petition: Fund access to Holistic Needs Assessment for all NHS cancer patients & follow-up

As a 45-year-old battling cancer, I know it is the toughest ordeal many will face. It's as much a mental battle as it is physical. We believe the NHS should ensure mental health support. So we're...

petition.parliament.uk
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September is Childhood Cancer Awareness Month! The internationally recognised symbol of childhood cancer is the gold ribbon, which is why this September our charity partner @ChectUK is ‘going for gold’! Get involved: buff.ly/hiuAyxT
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A village concert raised nearly £1k for a cancer charity and the local historic church. Report here from Burrough-on-the-hill : meltontimes.co.uk/community/… #Burrough #Melton @ChectUK

The Church of St Mary the Virgin hosted a performance of country, folk, and pop songs sung by The...

A concert at Burrough-on-the-hill raised nearly £1,000 for a cancer charity and the upkeep of the village’s historic church.

meltontimes.co.uk
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This week @ChectUK is raising awareness for World Retinoblastoma Awareness Week. According to CHECT 75% of optometrists who examined a child with retinoblastoma made urgent onward referrals. Read more here: ow.ly/UqYI50VSn9Q #RbWeek #OT
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The Childhood Eye Cancer Trust @ChectUK is encouraging optometry practices to participate in World Retinoblastoma Awareness Week, from 11–17 May. Find out how you can get involved here: ow.ly/QeGp50VMb8e #OT
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"Vital initiative by @ChectUK. Raising awareness of retinoblastoma can save children's sight and lives. Optometry practices, your participation during #WorldRetinoblastomaAwarenessWeek (11–17 May) can make a real difference. Let's spread the word. 👁️💙 #OT #ChildhoodCancer"
@OptometryToday@OptometryToday5 May 2025
The Childhood Eye Cancer Trust @ChectUK is encouraging optometry practices to participate in World Retinoblastoma Awareness Week, from 11–17 May. Find out how you can get involved here: ow.ly/QeGp50VMb8e #OT
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Replying to @ChectUK
@chectuk is calling upon optical practices across the UK to join forces in raising awareness for World Retinoblastoma Awareness Week, taking place from 11th to 17th May 2025. This annual event aims to spotlight retinoblastoma, a rare eye cancer buff.ly/tvTXFN2
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Do you have a #ProstheticEye, corneal anesthesia, retinoblastoma, or strabismus? Are you at least 8 years of age? If so, consider joining a #SKResearch study to help test a questionnaire📋! To learn and participate, please visit 👉 f8hn.short.gy/6RmStJ
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