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Consumer genetic testing services raise unique privacy concerns that consumers should be aware of and companies should address. Thanks @i24NEWS_EN for the opportunity to discuss my work at @futureofprivacy!
Genetic testing kits like #23andMe pose unique privacy risks and challenges. @DerrickeDennis talks to @CarsonMart about how to safeguard the industry of genetic data collection and how customers can protect themselves:
Carson Martinez retweeted
Kudos to all involved on the passage of Genetic Information Privacy Act, now law. 💯
cc: @CarsonMart @k_ringrose @BuffyWicks @TomUmbergCA @Ancestry @23andMe @EFF @ConsumerReports @EPICprivacy
Carson Martinez retweeted
FPF is seeking to hire a Policy Counsel or Senior Counsel (dependent upon experience) to lead its work on emerging questions of privacy and data protection related to health data. Learn more at the link below. fpf.org/health-policy-counse…
Carson Martinez retweeted
Thanks for the shoutout @womenknowlaw! #WomenDoKnowLaw — and tons of them are killing it in the privacy/genetic privacy arena @qramjee, @elizabeth_joh, @CarsonMart, @kingjen and more. 🧬💙
Check out @k_ringrose's piece in @BerkeleyTechLJ on the new DHS/CPB/ICE DNA collection policy: buff.ly/318vrxE
Shout out to my incredible mother, @JPMNOLA, as she wraps up her term as President of the @ABAesq today. I am so very proud to be your daughter. Watch her inspiring closing remarks here: americanbar.org/news/abanews…
Check out a white paper I authored with @privacyanalytic while at @futureofprivacy related to today's genetic de-identification challenges. Many thanks to all those who collaborated and helped bring it to life! #DNAprivacy #NationalDNADay fpf.org/wp-content/uploads/2…
Out today: FPF & @privacyanalytic published a white paper on #geneticprivacy! The paper highlights the personal nature of genetic data, existing regulatory requirements, practices org. are taking to safeguard genomic data & more. Details: bit.ly/2x22qbV #NationalDNADay
So incredibly proud of my inspiring mother, @JPMNOLA, on being inducted as ABA president. I can’t wait to see what you accomplish!
"We must not be an insular profession, removed from the people we serve. We are a people's profession, committed to liberty and pursuing justice...our purpose is to provide greater access to justice."#ABAAnnual
Carson Martinez retweeted
The evolving health data ecosystem poses new challenges for policymakers and industry. FPF & @iaf_org have released "A Taxonomy of Definitions for the Health Data Ecosystem" to enable a more nuanced conversation around these issues. Read more: fpf.org/2019/05/29/fpf-and-i…
Carson Martinez retweeted
Packed room for “The Ethics of Geo-Location” with @futureofprivacy ‘s Jeremy Greenberg & expert panelists - dozens or more being turned away outside. Location privacy undoubtedly one of the most prominent topics of 2019. Wow! :) #GPS19
Carson Martinez retweeted
What an incredible policy team assembled @futureofprivacy . Amazing work being done to showcase how privacy can be done while making innovative use of data. @JulesPolonetsky @CarsonMart @BrendaKLeong @gabrielazanfir @staceygraydc
Carson Martinez retweeted
Happy to share our commentary, accompanying the cover article in Nature today on part-revived pig brains. "Part-revived pig brains raise slew of ethical quandaries" nature.com/articles/d41586-0…
Carson Martinez retweeted
Start with fairness in shaping #privacy policies for data.
The “Fair Information Practices” framework has stood the test of time for 40+ years per @SavageLucia #HDpalooza
Carson Martinez retweeted
#3. Research: AG should evaluate impact of #CCPA on beneficial research w non-HIPAA data e.g. wearables; apps; genetics. While these companies should be subject to data privacy rules, some req's may pose particular challenges for researchers. 5/9
Carson Martinez retweeted
On Friday @futureofprivacy submitted comments from @ameliaivance, @CarsonMart and myself to @AGBecerra and team on the California Consumer Privacy Act (#CCPA). Read our highlights & comments here: fpf.org/2019/03/11/fpf-comme… Specifically we highlighted five areas: 1/9
The security of connected brain implants will need to be addressed to ensure patient trust in these devices and to prevent the potential for "brainjacking" #CyberSecurity #Neuroethics
Could hackers 'brainjack' your memories in future? bbc.co.uk/news/business-4727…
Carson Martinez retweeted
.@astepanovich talks with @daniellecitron about her new paper, Sexual #Privacy @futureofprivacy #PPPM
FamilyTreeDNA’s agreement with the FBI conflicts with user expectations, @futureofprivacy's Best Practices, and industry norms. #geneticprivacy Read more here: fpf.org/2019/02/06/familytre…
Carson Martinez retweeted
.@FamilyTreeDNA program to provide consumer genetic data to law enforcement without legal process is unwise and risky. No real choice for users. Out of line with consensus best practices of industry leaders. More here: xitter.cf/johnverdi/status/10913…
The future success of IoT and the equitable participation of people with disabilities in the technological revolution will depend on addressing privacy challenges faced by people with disabilities #DisabilityInclusion #IoTPrivacy
Today we released our new report, "The Internet of Things and People with Disabilities: Exploring the Benefits, Challenges, and Privacy Tensions." Read the full release and report: fpf.org/2019/01/31/iot-devic… #DisabilityInclusion #IoTPrivacy