The Carcinoid Cancer Foundation is the premier resource & website for up-to-date, comprehensive carcinoid and neuroendocrine tumor (NET) information.
New York
Joined January 2010
- Tweets12K
- Following2.4K
- Followers5K
- Likes11.6K
CarcinoidCancer CCF retweeted
🔔Today is #RareDiseaseDay! 5% of the global population is on this „rare“ journey! NET is an uncommon disease.
🦓Help HCPs to mind the zebra with #NETInfo in 11 languages: incalliance.org/net-info-pac… #LetsTalkAboutNETs @rarediseaseday #EndoTwitter #OncTwitter
CarcinoidCancer CCF retweeted
Full heart, clear eyes after yesterday’s @LACNETS #NETCancerDay event. It was educational, empowering, inspiring, even life-changing. Words cannot adequately capture the magic of the day. ❤️
@JaydiDelRivero @DrHendifar @AGangiMD @DanengLi @TBajoras @CarcinoidNETs @netcancerday
CarcinoidCancer CCF retweeted
LACNETS wishes a Happy Veteran's Day to all service members.
We recognize a member of the NET community, active-duty Marine Corps Officer Major Ashley Christman, who joined the LACNETS in 2022. We honor her fighting spirit and inspiration.
Credit: Endurance Sports Photography
CarcinoidCancer CCF retweeted
#NETCancerDay is this Friday, November 10th!
NET is a difficult cancer to diagnose. Join us this NET Cancer Day to spread the word. Talk to your local healthcare professionals about NETs.
@netcancerday #LetsTalkAboutNETs #NETCancerDay #LACNETS
CarcinoidCancer CCF retweeted
You really mean it when you say, #LetsTalkAboutNets 📣!!! Thanks for including #pheo #para on this PHabulous resource!
#NETCancerDay
@netcancerday @NANETS1 @CarcinoidNETs
@CureNETs @HealingNET1 @PamelaKunzMD
@DanengLi @SmilowCancer
@SmilowCancer NET Awareness 2023 - Thank you @PamelaKunzMD for highlighting our NET VITALS tool to help people “learn to speak NET.”
lacnets.org/netvitals
#LetsTalkAboutNETs #NETCancerDay
@netcancerday @NANETS1 @CarcinoidNETs @CureNETs @HealingNET1 @PheoPara @DanengLi
CarcinoidCancer CCF retweeted
🦓 This is a must watch webinar for patients with NETs and their and caregivers! 🦓
Please join us on 11/9 @ 7pm EST to mark World NET Awareness Day. We have a fantastic lineup of speakers and will take your questions.
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CarcinoidCancer CCF retweeted
Breaking News: Histotripsy is now FDA approved to destroy liver tumors by using focused ultrasound waves, an exciting non-invasive, radiation-free option for patients. Thank you @histosonics, investigators & trial participants!
@CarcinoidNETs @netcancerday @HealingNET1 @CureNETs
Breaking News: HistoSonics Awarded FDA Clearance for Edison®Histotripsy System
@histosonics is excited to announce that the FDA has granted market authorization for our breakthrough designated platform for the non-invasive destruction of liver tumors.
businesswire.com/news/home/2…
CarcinoidCancer CCF retweeted
A very clinically relevant paper from the unstoppable @altoubaht and the Moffitt team. A minority of lung NETs have a uniform expression of SSTRs and SSTR-neg or weak tumors are common. Therefore, SSTR-directed therapy is not the solution for all.
jnm.snmjournals.org/content/…
CarcinoidCancer CCF retweeted
Are you excited for first NCAN NETs patient conference in Miami!! We definitely are!! We will discuss surgery, transplant, advances in medical management, PRRT, clinical trials and more. @PeterHoseinMD @NbmerchantMD @AbreuPhillipe @JaydiDelRivero @LowellAnthonyMD et al @SylvesterCancer @netcanceraware
@PheoPara
Link for details: Oct 14th
lnkd.in/exhUYewM
CarcinoidCancer CCF retweeted
Have you had your pheochromocytoma removed, but still don't feel "right?" 😰Dr. Hans Ghayee joins us October 4th to discuss why this might be happening. Register now to submit your questions & get the link to join the live stream!
Register 👉bit.ly/3RfYCus
#pheo #para
CarcinoidCancer CCF retweeted
@NANETS1 Bethesda - @AmanChauhanMD gives a fantastic presentation on managing the acute, subacute & LT toxicities of PRRT
@CarcinoidNETs @HealingNET1 @CureNETs @netcancerday @JaydiDelRivero
CarcinoidCancer CCF retweeted
@NANETS1 Bethesda - @AGangiMD & @NVijayvergiaMD shed light on medical & surgical management of G3 NENs
@JaydiDelRivero @CarcinoidNETs @CureNETs @HealingNET1 @netcancerday
CarcinoidCancer CCF retweeted
2023 INCA Summit - @CNETSIndia @sugandhadureja presents the Think NENs E-learning program for PCPs. Stay tuned for the launch in early 2024. Together, we can increase global awareness! #LetsTalkAboutNET @netcancerday @NANETS1 @CarcinoidNETs @CureNETs @HealingNET1 @PheoPara
CarcinoidCancer CCF retweeted
⏱️ Last chance to register!
📅Join us for a rare opportunity to gather at the @NIH in Bethesda, Maryland, for our first joint patient educational event between @theNCI, @LACNETS & @PheoPara.
➡️➡️ Register at lacnets.org/2023nci.
#LACNETS #NeuroendocrineTumor #NETcancer
CarcinoidCancer CCF retweeted
Patients with neuroendocrine tumors benefit from either complete resection or cytoreductive (most of it) resection. Long term survival is possible with expert care and treatment @CarcinoidNETs @netcancerday @LACNETS @Neuroendocrine @neuro
What a treat! Posted with permission & encouragement to share his story…My patient who I operated on 15 yrs ago @HopkinsMedicine for metastatic #PNET (2-stage Whipple/right hepatectomy & clearance of left liver) dropped by @OSUWexMed to say hello!…why we do what we do! #hope
CarcinoidCancer CCF retweeted
Our PHriends at @theAAES have posted their AMAZING 🙌#PheoParaAwarenessWeek webinar! Watch this must-see video now: 👉bit.ly/3YYncBV
#PheoParaAwarenessWeek #phutureforpheopara #pheo #para
CarcinoidCancer CCF retweeted
We like to feature patient stories on PHridays . . .
If you have #pheo #para disease, you probably have quite a story to tell. We'd love to hear from you.
📣pheopara.org/tellyourstory
CarcinoidCancer CCF retweeted
Excellent (& free!) review article by @LDiamantMD @OncoThor on combination therapy for advanced GEPNETS! Thanks for your hard work & for making it available to all! @NANETS1 @netcancerday @CarcinoidNETs @CureNETs @HealingNET1 @NETsMexico @netcancerfound #LetsTalkAboutNET
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CarcinoidCancer CCF retweeted
In case you missed it, the 2023 LACNETS Neuroendocrine Tumor Patient Conference recording is now available to watch! Visit lacnets.org/2023conference.
#NeuroendocrineCancer #NeuroendocrineTumor #NETcancer #LACNETS
@NANETS1
@CarcinoidNETs
@netcancerday
@HealingNET1
@CureNETs
CarcinoidCancer CCF retweeted
Just over 48 hours to go!!!! DM for the link
@NANETS1 @LACNETS @PheoPara @CarcinoidNETs @CureNETs @netcanceraware @netcancerday @HealingNET1
