Dad. HITAdvocate. Superhero. Defender of Patients Everywhere. Life Goal: Freeing the Data. Capt BB says --Sharing health data is the American way!

United States
Joined January 2015
Captain Blue Button retweeted
The ONC & CMS rules are officially LATE. OMB has 90 days to review regs w/ a 30 day extension possible. At the earliest they come out Monday. That’s 124 days for CMS (submitted 9/26) & 92 days for ONC (submitted 10/28). Unclear if either got an extension; CMS overdue regardless
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Attendee at #InteropForum put everything is perspective speaking of 200-400K Americans dying of medical errors/yr. humetrix.com/post-be-39.html
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Captain Blue Button retweeted
Replying to @janieappleseed
@janieappleseed: issue preventing sharing data isn't the sharing it's folks doing nefarious things w/ the data to earn a $. #InteropForum
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Captain Blue Button retweeted
So many groups, so little interoperability. #InteropForum
Captain Blue Button retweeted
The 17 yrs it takes new medical knowledge to become adopted in clinical practice, in truly informed MDs&pt decisions ncbi.nlm.nih.gov/pmc/article… xitter.cf/naveen101/status/89756…
Need some help with a project: What are some of your favorite/most damning statistics in healthcare? Preferably w link to evidence!
Captain Blue Button retweeted
@NeHIIorg HIE w/schools is great. Does to do list include a FHIR App for patients to get their immunization data from you? #InteropForum
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Captain Blue Button retweeted
Why patients must demand that providers enable them to authorize who can and cannot access their health information. healthcareitnews.com/news/be…
Captain Blue Button retweeted
FACT: Patients can get their own Direct addresses TODAY from a multitude of PHR apps! Best ones in #NBB4C trust bundle! #InteropForum
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Captain Blue Button retweeted
Query: whose PCPs office staff knows what their Direct address is? #InteropForum
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Captain Blue Button retweeted
Lisa Nelson is calling out unwillingness of HC to receive data. But as @lesliekellyhall said, all healthdata is #PGHD #InteropForum
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Captain Blue Button retweeted
Replying to @SavageLucia
This is exactly the problem! NATE #BlueButton Directory prototype specifically developed to fix it: nate-trust.org/prototypes #InteropForum
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Captain Blue Button retweeted
Consumers aren’t limited by 42CFR; they’re actually more likely to share MH records w others @Cerner @ONC_HealthIT #InteropForum
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Captain Blue Button retweeted
Fantastic examples of real life hurdles for consumers from @janieappleseed! #InteropForum
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Captain Blue Button retweeted
"The patient has been left out of the standards" Leslie Kelly Hall @ONC_HealthIT #healthit
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Captain Blue Button retweeted
#interopforum A: First step is pt being able to go anywhere and all patient data they share is available (good point)
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Captain Blue Button retweeted
#interopforum A: Also - Goal is to make patients healthier and improve efficiency of system
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Captain Blue Button retweeted
Kendrick wish list: Policy to incl nonHIPAA parties in HIE. #InteropForum A: Start w adoption of the @nate_trust NBB4C trust bundle!
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Captain Blue Button retweeted
Great Q: How do patients pull their data from HIE networks?#InteropForum Sad that there wasn't a satisfactory answer from the panel
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Captain Blue Button retweeted
Replying to @Surescripts
@Surescripts: "Nothing happens until something moves. The. Data. Has. To. Move." AGREED! Let patients help data move! #InteropForum
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