Cancer52 represents more than 100 organisations united in their aim to improve the future for everyone affected by rare and less common cancers
Joined November 2012
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Today we’re looking forward to hosting the #BigCancer52Conversation - focusing on how we can work together to support research and innovation to improve outcomes for those affected by rare and less common cancers.
This Healthwatch England survey also applies to carers - if you look after someone who had a bad hospital discharge in the last year 👇
The CQC's inpatient survey shows patient satisfaction continues to grow. But there's still room for improvement in hospital discharge.
If you or someone you care for had a poor hospital discharge experience in the last 12 months, tell us about it: smartsurvey.co.uk/s/hwehospi…
ALT A dark blue infographic. White Healthwatch logo in top right. Pink and green curved ribbons bottom left. White text says Did you have a bad hospital discharge experience? Tell us more.
Cancer52 is pleased to welcome its latest member, the UK Acute Oncology Society (UKAOS).
A multidisciplinary group of health professionals with an aim that acute needs of cancer patients are recognised, assessed and managed at the right time & place, and by the appropriate team.
ALT The UKAOS logo, featuring blue dots and UKAOS and UK Acute Oncology Society written in black letters.
Real change starts with real experiences.
Have you been affected by a rare and less common cancer (all cancers except breast, bowel, lung, or prostate) either as a patient or a carer?
Please take our anonymous online survey to share your experience: bit.ly/43pRy33
ALT Visual asset saying Cancer52 rare and less common cancer patient survey. Survey closes 10th July 2026.
We are pleased to welcome Cancer52’s newest member, The Joshua Tree.
The charity provides bespoke emotional health and wellbeing support to families affected by childhood cancer across the UK.
Learn more: thejoshuatree.org.uk
ALT The Joshua Tree logo featuring an illustration of a tree against a green background. The tagline underneath the tree says Supporting families affected by childhood cancers.
Cancer52 has a new member! @CahonasScotland supports men with testicular cancer and their families, from diagnosis through treatment and beyond. Through education programmes, awareness campaigns, and peer support.
Read more: cahonasscotland.org
ALT Cahonas Scotland logo, featuring the name in white font on a blue background. The strapline beneath reads: The lowdown on testicular cancer.
Well done! Thank you so much for your support. 👏👏
A truly epic day. Very proud to have run the London marathon in exactly 4 hours (to the second according to the official race timing), albeit my watch thought I was slightly quicker!
Thanks to everyone who’s sponsored me so far, many of you will know I ran the marathon for cancer charities in memory of my brother who I lost last year.
There is still time to sponsor me and anything you can do to get me closer to my target would mean a lot. 2026tcslondonmarathon.enthus…
Welcome to Cancer52's newest member; @LynchSyndromeUK, a national, patient-led charity committed to improving awareness, advancing equitable access to genetic testing, and supporting individuals and families affected by hereditary cancer risk.
See: lynch-syndrome-uk.org
ALT Lynch Syndrome UK logo featuring an outline map of the UK with colourful spots in a helix shape.
Welcome to Cancer52!
We’re pleased to share that EGFR+ UK is now a member of @Cancer52org.
Cancer52 brings together charities working across rare & less common cancers.
Being part of this network means joining a wider collective voice calling for better diagnosis, treatment, support & access for people affected by #lungcancer.
We’re looking forward to working alongside others & helping make sure EGFR+ is part of those conversations. #LCSM
Thank you to our excellent #BigCancer52Conversation speakers and panellists for sharing valuable insights aligned with the commitments in the new Cancer Plan.
Fantastic to come together with a shared goal - improving outcomes for everyone affected by rare & less common cancers
Today we’re hosting the #BigCancer52Conversation in Manchester focusing on how we can work together to support implementation of the National Cancer Plan, in relation to rare and less common cancers.
Our newest member, Leiomyosarcoma Research UK’s mission is to support research, provide education, and foster a strong community for leiomyosarcoma patients and their families across the UK.
Learn more: lmsruk.org
ALT Leiomyosarcoma Research UK’s logo featuring a purple flower with LMS Research UK written in purple capital letters.
Our newest member, @BardoFoundation is an international childhood cancer charity founded in memory of Bernardo “Bardo” Eggesbø.
They fund research, support patients and families, and lead Osteosarcoma Now, accelerating progress through collaboration to improve outcomes.
Cancer52 sends our best wishes to Ashley Dalton MP as she steps back from her ministerial duties for health reasons. Our thanks for her brilliant work, alongside her colleagues in the DHSC, in developing the National Cancer Plan for England recently.
Cancer52 also on Bluesky @cancer52org.bsky.social retweeted
55% of cancer deaths in the UK are caused by rare and less common cancers — yet these cancers remain underrepresented and underfunded.
That’s why we're a proud member of @Cancer52org, an alliance of charities working together to address this inequality.
#RareDiseaseDay
As the voice for rare and less common cancers in the UK, we join the call on Rare Disease Day 2026 for equity in social opportunities, healthcare, and access to diagnosis and therapies.
This year’s @GeneticAll_UK #RareDiseaseDay focuses on equity and why it matters more than ever.
@WaldenChris, CEO of @Cancer52, reflects on what equity means in practice.
Read the full Q&A on the ABPI rare disease hub:
👉abpi.org.uk/rare-diseases/
MOVE Against Cancer has joined Cancer52!
They deliver evidence-based support through 5k Your Way community groups, tailored online programmes and accessible resources, improving wellbeing & supporting health outcomes during and after treatment.
See: bit.ly/4bMLl6U
