
Dinosaurs eat man. Woman inherits the earthš¦ OG Covid Long-hauler 3/2020 #TreatLongCovid #FirstWave #AirAIDS
Joined October 2017
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Happy Labor Day!
About 85 million Americans have persistent symptoms after they got a COVID infection.
Thatās called Long Covid. Thatās your reward for being a good little worker.
#LaborDay #FuckYourMild
It has been 2,345 days since March 5, 2020
ā¢6 years, 5 months, and 2 days
ā¢56,280 hours
ā¢335 weeks
IāM STILL FUCKING SICK! #FuckYourMild
šØ Long COVID Isnāt "In Your Head"āItās In Your Bone Marrow. šØ
Ever wonder why standard blood work looks "normal" while your body feels like it's on fire?
It turns out your cell factories and blood vessels are locked in a silent, explosive feedback loop. Hereās the step-by-step pathology of whatās actually happening under the microscope:
𩸠The 4-Step Chain Reaction
The Infected Factory š
SARS-CoV-2 doesn't just pass throughāit infects the megakaryocytes (the parent cells in your bone marrow).
Trojan Horse Platelets š«
These infected factory cells shed pre-armed, hyper-reactive platelets loaded with viral remnants into your bloodstream.
The Enzyme Flood (MMP-9) š§Ŗ
These rogue platelets dock onto neutrophils, forcing them to dump massive amounts of MMP-9āan enzyme that chews through connective tissue and breaks down the Blood-Brain Barrier.
The Cell Bomb (pMLKL) š„
Between microclots choking off oxygen and relentless viral signaling, the cellās safety switch breaks. pMLKL is triggeredāpunching literal holes in cell membranes so they explode (necroptosis) instead of dying quietly.
> The Result? Continuous microvascular damage, tissue remodeling, and autonomic chaos (POTS/Dysautonomia). This isn't "anxiety", itās objective, measurable pathology.
š The Receipts (References) Megakaryocyte / Bone Marrow Infection:
Bomsel et al. ā Demonstration of SARS-CoV-2 megakaryocyte infection and persistence in human bone marrow niches driving systemic platelet abnormalities.
Platelet Hyper-reactivity & Microthrombi:
Pretorius et al. ā Persistent microclots and systemic platelet activation in Post-Acute Sequelae of COVID-19 (PASC).
MMP-9 & Barrier Degradation:
Ueland et al. / Essential PASC Biomarkers ā Matrix metalloproteinase-9 (MMP-9) elevation as a primary driver of extracellular matrix degradation and endothelial damage.
pMLKL & Necroptosis (Inflammatory Cell Death):
Kaiser et al. / Wallach et al. ā RIPK3-mediated phosphorylation of MLKL (pMLKL) as the executioner threshold for membrane pore formation and necroptotic cell lysis during persistent viral inflammation.
Spread the clarity. Our community deserves answers rooted in hard science, not hand-waving and blocking.
š§¬š„
#LongCovid
#InfectedBoneMarrow
#PAISConferences
#WeNeedTestsandTreatment
#LongCovidisLongCovid
I came to try to give an update but got assaulted by the timeline before I could so instead Iām going to ask once againā¦
Are you guys sick of this yet or do you want to continue to fuck around some more? #ItsCovid for the idiot fucks in the back. 𤬠#HappyFriday
So some of you donāt have time & energy to do things that actually help people DYING from LC, but you can grift in the pay-to-play system that is killing us. Got it.
Go support actual patients doing the real work.
Oh yeah, Covid is killing everyone & giving kids dementia š
Replying to @PunkyBrewstuh
The Alphabet Soup Binder is a Long Covid & Covid Vaccine Injury Symptom Tracker and Medical Defense System. Itās a 40-page modular system made specifically FOR us, but don't worry, it's not overwhelming. It's designed for you to use only what you need.
It works perfectly on a tablet (and is fully linked for apps like GoodNotes, Notability, & Apple Notes) or it can be printed. I use it in a 3-ring binder with tabs. I like my privacy.
I genuinely believe this can make a difference in how we're treated by doctors, insurance, and the legal system. While I am using anything raised from sales to survive, if youāve lost your income to this nightmare and need this, please just click the link and email me for a hardship copy. Iām not here to sell you a miracle; Iām here to survive and maybe help you in the process.
payhip.com/b/YGm5b
Itās time to start thinking zebras not horses š
CONflation, CONfusion, and Collusion of Long Covid by ME/CFS xitter.cf/i/spaces/1qKVmmmmXNmxB
Viruses cause disease not anxiety #Psyence
CONflation, CONfusion, and Collusion of Long Covid by ME/CFS xitter.cf/i/spaces/1qKVmmmmXNmxB
Well, would you look at that. #Psyence
Itās Long Covid Awareness Day, so why is everyone still unaware of the brain damage being caused by Covid?
#LongCovidAwarenessDay #LongCovidAwareness
Caffeinated Toddler retweeted
Itās Long Covid Awareness Day so letās Brunch!
Sunday Brunch is a space for Long Covid patients to talk about their lived experiences with Long Covid. Please join us. š©µ
Set a reminder for my upcoming Space! xitter.cf/i/spaces/1XxygmBdlENGM
Caffeinated Toddler retweeted
I knew my brain was toast within months of my first infection. It took years to get a doctor to listen and run test to prove what I already knew.
This is going to happen to so many people. This is just the beginning.
Caffeinated Toddler retweeted
Neurological complications caused by SARS-CoV-2 | Clinical Microbiology Reviews journals.asm.org/doi/10.1128ā¦
Caffeinated Toddler retweeted
Replying to @NewsHour
Covid causes brain damage with every infection. This is a known fact that the media continues to ignore leaving the vast majority ignorant to what Covid really is. Itās a SARS virus and itās causing dementia in millions of people including kids. Thereās no treatment or cures. The only thing we can do is not get Covid. Stop being stupid. Stop spreading Covid.
Caffeinated Toddler retweeted
Covid broke my brain in ways that I canāt even explain. Its heartbreaking watching people I care about experience the same things. They do not see me and they donāt hear my warnings.
I know what the future holds. I know the pain and suffering that is coming for so many people and I do not have the strength to watch.
Caffeinated Toddler retweeted
COVID-19 infection has been linked to a range of lasting neurological and psychological disorders, including depression, memory problems, and Parkinsonās-like disorders, within the first year following infection.
#longcovid #notrecovered
neurosciencenews.com/covid-1ā¦
Caffeinated Toddler retweeted
These findings suggest that neuroinflammation could play a key role in the cognitive decline seen in ālong COVID,ā stressing the need for ongoing monitoring and targeted therapies for survivors.
COVIDās Inflammation Linked to Long-Term Brain Effects - neurosciencenews.com/neuroinā¦
Caffeinated Toddler retweeted
Using ultra-high-resolution scanners that can see the living brain in fine detail, researchers from the Universities of Cambridge and Oxford were able to observe the damaging effects COVID-19 can have on the brain.
Damage to brainās ācontrol centreā behind long-lasting Covid-19 symptoms, MRI scans show oxfordbrc.nihr.ac.uk/damage-ā¦
Caffeinated Toddler retweeted
Getting covid increases your risk of developing some form of mental illness or psychiatric disorder.
Guess what increases your chances of getting neuro Long Covid?
So get the virus that gives you the comorbidities that cause you to develop degenerative brain disease. Yeah that sounds like a good plan š
Vaccination prior to SARS-CoV-2 infection does not prevent the neurologic manifestations of long COVID academic.oup.com/braincomms/ā¦
Caffeinated Toddler retweeted
I wish that I could convey the seriousness of what is happening, but it seems that no matter how many times I keep telling my story, no matter how many times I share stories of others like me, people still donāt understand.
The brain stuff is like being stuck in your body while someone else is in charge.
The pain and discomfort caused is immeasurable.
Just trying to do anything that requires more than a couple steps to complete is so exhausting for my brain that it will force me to have to lay down after.
Sometimes I forget how to read or write or do math.
Some days I canāt walk or stand because my brain canāt talk to the rest of my body so my legs donāt work.
Sometimes my mouth wonāt make words when I talk but I canāt tell that Iām not making real words.
Some days I canāt recognize peopleās face or everyone looks the same.
Some days I canāt understand people when they speak. My brain cannot process it.
This doesnāt even scratch the surface of what is happening.
My brain thinks everything is normal. But itās not.
This is not normal. None of this.
It has been 5 years since the Covid infection that destroyed my smell & taste, made my brain burn for months, & erased my emotions (& decadeslong anxiety/PTSD symptoms, which seems pretty not normal). When I was cooking yesterday, I accidentally placed a hand towel on a burner. I was standing next to it & I still couldnāt smell it burning. The smoke detector finally alerted me to the burning towel so I addressed it. Later, I realized I put the butter up in the microwave instead of the fridge. My brain is not well. I am completely numb all the time & nothing fazes me. I know this is all very, very wrong but itās like Iām outside my body & nothing matters. I saw neurology once & they were insulting & dismissive & it was EXTREMELY uncomfortable, so I will probably not be getting help for these issues. Apparently this is all normal in The New Normal. Iām-43 years-old. The number of Americans reporting only a cognitive disability has increased 43% since 2019. We are in so much trouble.
Caffeinated Toddler retweeted
Why is PEM the only symptom anyone seems to focus on?
People should be way more worried about the brain fusing that leads to Alzheimerās and Parkinsonās.
But sure, get some rest I guess š¤¦āāļø
A Great Idea for People With a Terrible Disease: Letās Find a Cure Ourselves nytimes.com/2024/11/26/opiniā¦
















