COVID19COS (@COVID19COS) header
COVID19COS (@COVID19COS) profile picture

COVID19COS

@COVID19COS

An international project bringing together patients, the public and health professionals to establish critically important core outcomes for COVID-19

 Global
covid-19-cos.org
Joined March 2020
  • Tweets123
  • Following1.4K
  • Followers740
COVID people,clinicians & researchers: Share perspectives on Core Outcome Measures research on Long COVID/PASC/post-COVID condition pc-cos.org Int’l Collaboration @WHO @DrMunblit @Tim_R_Nicholson @COMETinitiative @DrDaleNeedham @ahandvanish & many more Pls RT
Dr Daniel Munblit (@DrMunblit) profile pictureDr Daniel Munblit@DrMunblit16 Aug 2021
New initiative launched! The Post-COVID Core Outcome Set (PC-COS) group & @WHO seek to create a core set of outcomes for Post-COVID Condition that should be evaluated in all research studies & in clinical care pc-cos.org #COVID19 #LongCovid @ISARIC1 @allisontong1
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The deadline for participating in the PC-COS study has been extended until 1st September. Visit pc-cos.org to find out how you can participate and help improve #LongCOVID research and clinical care for all @DrMunblit @Tim_R_Nicholson @DrDaleNeedham @WHO
COMET (@COMETinitiative) profile pictureCOMET@COMETinitiative18 Aug 2021
The PC-COS group & @WHO need your help to determine the most important outcomes to be measured in future #LongCOVID studies and clinical care pc-cos.org cos@pc-cos.org @ahandvanish @AthenaAkrami @Dr2NisreenAlwan @LongCovidSOS @patientled @ISARIC1 @trishgreenhalgh
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Do you have a clinical question? Your views help us to identify and prioritise questions to include in the living guideline. Review the latest suggested questions, topics and new patient groups here, or submit your question here: covid19evidence.net.au/#clin…
Image from Australian Living Evidence Collaboration (@evidence_aus)
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Our 11 living #ClinicalFlowcharts cover assessment, management & respiratory support for people with #COVID19 & those with symptoms of post acute COVID19, as well as guidance for #CPR during the pandemic in healthcare settings & the community. ow.ly/SPJq50C8CfZ #COVID19Aus
Image from Australian Living Evidence Collaboration (@evidence_aus)
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Co-producing research priorities for #COVID19 sensor technology ‼️🦠@NatureBiotech @ProfBenEggleton @TaniaSorrell @caillaudsydney @David_MM_82 @Sydney_Uni @wchrzanowski @scholes_nicki @SHPartners @NSWHealth @HCNSW @syd_health @all_isee @scholes_nicki 📄➡️ rdcu.be/cdMno – at Sydney, New South Wales
Image from Allison Jauré (@allisonjaure)
Image from Allison Jauré (@allisonjaure)
Image from Allison Jauré (@allisonjaure)
Image from Allison Jauré (@allisonjaure)
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JUST PUBLISHED! Collaborating in response to #COVID19 - editorial & methods initiatives across Cochrane - 23 inspiring reports on what’s been achieved in 2020 & lessons learnt for future preparedness: cochranelibrary.com/document… Delighted to have edited this with @JHeditor!
Image from Ella Flemyng (@EllaFlemyng)
Image from Ella Flemyng (@EllaFlemyng)
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COVID19COS retweeted
ImproveLTO (@improvelto) profile picture
ImproveLTO@improvelto7 Jan 2021
Core Outcome Measures for #COVID19 Research @CritCareMed paper: bit.ly/3nnqkmA Includes a NEW 1-item measure for Recovery Return to previous state of health & mind Uses 5-point Likert scale By @allisontong1 et al. #COVID19 COS info: bit.ly/2LatnkT
Image from ImproveLTO (@improvelto)
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COVID19COS retweeted
ImproveLTO (@improvelto) profile picture
ImproveLTO@improvelto6 Jan 2021
Core Outcome Measures for COVID19 trials New @CritCareMed paper by @allisontong1 et al.: bit.ly/3nnqkmA Recommended instruments: -WHO Clinical Progression Scale -SOFA -Modified MRC dyspnea -1-item Recovery scale More #COVID19 Core Set info: comet-initiative.org/studies…
Image from ImproveLTO (@improvelto)
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Recommendations for consistent collection of a core set of outcomes in clinical trials of #COVID19 including WHO score, SOFA, adapted MMRC @CritCareMed @allisontong1 @JonathanCCraig @MervynMer @com543 @DrDaleNeedham pdfs.journals.lww.com/ccmjou…
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#FreeArticle Tong et al: International workshops to establish core outcomes set for #COVID19 trials 👉Mortality, resp failure, multiple organ failure, shortness of breath, & recovery Link: journals.lww.com/ccmjournal/… #CritCareMed @SCCM @allisontong1 Fig: Core Outcomes Set
Image from Critical Care Medicine (@CritCareMed)
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#COVID19 #FreeArticle Evangelidis et al: International #Delphi survey to generate consensus-based, prioritized list of outcomes for #COVID_19 research trials Link: ow.ly/GXeA50CeVHP #CritCareMed @SCCM Fig: Diff in scores -pts/family, public, & health professionals.
Image from Critical Care Medicine (@CritCareMed)
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COVID19COS retweeted
COMET (@COMETinitiative) profile picture
COMET@COMETinitiative3 Nov 2020
Replying to @icurehab @Food_reward @Dr2NisreenAlwan @improvelto
The core outcome set (COS) for COVID-19 developed by @allisontong1 and colleagues includes long-term outcomes (e.g. recovery). Read more here: journals.lww.com/ccmjournal/…
Image from COMET (@COMETinitiative)
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*NEW* Core Outcomes Set (COS) for #COVID19 trials pubmed.ncbi.nlm.nih.gov/3280… Mortality Resp. failure Organ failure Shortness of breath Recovery All COVID-19 COS are here: bit.ly/3iRHpCx COS resources: improvelto.com/cos-resources…
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Lets start with co -design rather than top down talk re being patient centred blogs.bmj.com/bmj/2020/08/26…

Patient centred care in a post-covid world - The BMJ

Like our sickest covid-19 patients, the NHS has been on life support since March. Many routine and necessary health services were put on hold. Retired nurses and doctors returned to the [...]More...

blogs.bmj.com
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Core outcomes 4 #covid19 trials now online! @CritCareMed tinyurl.com/y6q9jxos @JonathanCCraig @jhjelliott @andymoz78 @allisontong1 @azevedo_lcp @EllaFlemyng @COMETinitiative @sally_crowe @DrJohnCMarshall @Cervantes_Lily1 @WHO @DocWoc71 @medicalaxioms @a_viecelli @tpinto_stats
Image from COVID19COS (@COVID19COS)
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In awe of the amazing ideas arising from #codesign4covid sensor tech workshop!! Thx+ @ProfBenEggleton @SydneyNano @MarieBashirInst @David_MM_82 @wchrzanowski @caillaudsydney & all the patients/public, clinicians, scientists @scholes_nicki @garryjennings @Iredell_Lab @OmidKavehei – at Sydney, New South Wales
Image from Allison Jauré (@allisonjaure)
Image from Allison Jauré (@allisonjaure)
Image from Allison Jauré (@allisonjaure)
Image from Allison Jauré (@allisonjaure)
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We continue working around the clock to track global COVID-19 research and inform weekly updates to national clinical guidelines and flowcharts. Access them here: covid19evidence.net.au/ #COVID19Aus
Image from Australian Living Evidence Collaboration (@evidence_aus)
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Amanda Baumgart: @COVID19COS no existing measure captures recovery in a way that is relevant to the experience of ppl with #covid19 @jhjelliott @JonathanCCraig @JaguarJonze @emhodson70 @ChandanaGuha @ellie_hannan22 @allisontong1 @Cervantes_Lily1 @COMETinitiative – at Sydney, New South Wales
Image from PACER Network (@pacernetwork)
Image from PACER Network (@pacernetwork)
Image from PACER Network (@pacernetwork)
Image from PACER Network (@pacernetwork)
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Many thanks to @allisontong1 @shauntreweek for facilitating this discussion. Great ideas emerging for building on #COS development during and beyond #COVID19 #trialmethodology @hrbtmrn @decdevane @GalvinSadie
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Excellent Q&A session by moderator Prof @shauntreweek @Trial_Forge talking about not compromising in #trials in a #pandemic, collaboration, #coreoutcomesets &how the responsibility is on all of us to stop the spread of fake news @iHealthFacts1 #TrialMethodology @hrbtmrn #covid19
Image from The Peoples Trial (@ThePeoplesTrial)
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