Patient advocacy, support group for Neuroendocrine cancers. Supporting NET Cancer patients and connecting specialists across the Indian subcontinent since 2014

New Delhi, India
Joined September 2015
Primary care professionals play a critical role in the early diagnosis of NENs. The #ThinkNENs program is here to help. 🧠 Just 60 minutes to earn a free CME credit 🌍 Available in 7 languages ✅ Endorsed by top NEN societies 👉 Enroll today: thinknensinprimarycare.incal… #LetsTalkAboutNETs
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📌Two inspiring days in Sofia, Bulgaria, with the 14th INCA Global NET Patient Advocate Summit! 👏Huge thanks to all INCA members and distinguished invited speakers for their indispensable contribution. ✅Read in detail: incalliance.org/inca-summit-… #LetsTalkAboutNETs
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Patient groups organized by NET patient organizations are instrumental for supporting patients and caregivers to feel understood, to be confident in their communication with doctors and to stand for their needs. 📱Watch and learn about patient groups around the world and discover how the community is becoming stronger together: incalliance.org/advocacy-ski… #LetsTalkAboutNETs
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Starting radioligand therapy can feel overwhelming. This trusted factsheet answers your questions and helps you get prepared — in your own language. 🌍 15 languages supported. 👉Download here: incalliance.org/net-info-pac… #LetsTalkAboutNETs
🤖 Made with AI
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📢Do not miss this year’s @ENETS_ORG & INCA #NETCancerDay Educational Webinar on November 12th, 2025 from 16:00 CET. 👉Join ENETS experts and NET patients to explore carcinoid syndrome, NEC and genetic syndromes. ✅Look at the agenda register for free: incalliance.org/enets-inca-n… #LetsTalkAboutNETs
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🔔6 days to #NETCancerDay on November 10th! Let’s make the voices of the NET patients heard! 📌Listen to the story of Prattusha from India: incalliance.org/stories/prat… ✅Get involved in the global #NETCancerDay campaign: incalliance.org/ncd-2025/cam… #LetsTalkAboutNETs
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🔔Still not taken the #SCAN2025 Global Survey? 🙏This #NETCancerDay, add your voice as a NET patient or an HCP to improve the NET patient journey: incalliance.org/scan2025/ 👉Questionnaires are available in 15 languages. #LetsTalkAboutNETs #MedTwitter #OncTwitter #OncoTwitter
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Why take the #SCAN2025 Global Survey? ✅ Share your personal experience ✅ Highlight challenges in care ✅ Help shape future NET research & support Your story can make a global impact. 🌐 📌Take the survey in your language: incalliance.org/scan2025/ #LetsTalkAboutNETs #WeScan #MedTwitter #OncTwitter
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#INCASummit2025 INCA Access Committee Chair Dr Sugandha Dureja @sugandhadureja reported on successful #ThinkNENs e-learning used so far by 370 HCPs, mostly GPs, from 71 countries as well as the launch of #SCAN2025 Global Survey gathering insights from NET patients and HCPs to replicate or even exceed the approx. 5000 respondents from 2019. #LetsTalkAboutNETs
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📢One voice matters. Thousands create change! The SCAN 2025 Global Survey is your opportunity to influence how NETs are understood and treated worldwide. · For NET patients and HCPs · 15 languages ✅Be a changemaker and take the survey today: incalliance.org/scan2025/ #LetsTalkAboutNETs #WeSCAN
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Among the repetitive diagnoses of common conditions, it is difficult to suspect the uncommon. We help PCPs to detect NENs with: 👉60-minutes e-learning 👉free CME credit 👉7 languages ✔️Check it out here: incalliance.org/think-nens/ #LetsTalkAboutNETs
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Our very own Exec Director, Stephanie Alband, advocating 📣 at an international level 🌎 for those affected by #NETs cancer, which includes #pheo #para #PPGL. She is truly #PHearless! 🙌🏋️‍♀️ @netcancerday #LetsTalkAboutNETs #netcancerday2024 #WorldNeuroendocrineCancerDay
🎙️ New podcast episode! Cathy talks with INCA @netcancerday President Stephanie Alband about #WorldNeuroendocrineCancerDay the work of INCA, and how the global community is pushing for faster diagnoses and better care. Listen here: ow.ly/2Lw550U27b7
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#NETCancerDay is close! 📌Dr. Elizabeth Zide, emergency physician and NEN patient, USA, has a message for her colleagues. ✅Watch PCPs speaking about NENs: incalliance.org/pcps-speak-a… 👉Take the free online CME-accredited course: incalliance.org/think-nens/ #LetsTalkAboutNETs #ThinkNENs
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Replying to @CNETSIndia
@CNETSIndia @netcancerday An accidental diagnosis is what 90% patients go through! #LetsTalkAboutNETs on #NETCancerDay Here my blog on living with the NET. Keep talking and raising awareness. netcancerandpratty.blogspot.…
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⏳10 days to #NETCancerDay 2024! 🦓This November 10th, let’s unite in one global voice to speak about neuroendocrine cancer and raise awareness: Take a closer look at neuroendocrine cancer. 📌Ample campaign resources in 11 languages are available by INCA at: incalliance.org/ncd-2024/ #LetsTalkAboutNETs #ThinkNENs #MedTwitter #MedEd #OncTwitter
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2024 INCA Summit: @NANETS1 President @OncoThor gave a thoughtful talk on meaningful involvement of pts in #NET research. With ⬆️ incidence, there is ⬆️ need & opportunities. NET pt advocacy orgs would love to help! @netcancerday @CureNETs @Globeseek @HealingNET1 @PheoPara #LetsTalkAboutNETs
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INCA Access Committee Chair @sugandhadureja Dr. Sugandha Dureja presented the launched Think NENs Educational Program for Primary Care Physicians, available in English, French, Italian, German, Spanish and Portuguese. The program is CME-accredited and free of charge. ☑️Find out more: incalliance.org/think-nens/ #LetsTalkAboutNETs #INCASummit2024
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CNETSIndia retweeted
#LetsTalkAboutNETs Thank you @netcancerday for the opportunity to discuss NET VITALS, our patient self-assessment tool.
LACNETS Director of Programs & Outreach, Lisa Yen, is at the 2024 INCA Global NET Summit in Segovia where she presented NET VITALS as an example of best practices & challenges in working with the medical community. Check out NET VITALS here: lacnets.org/netvitals @netcancerday @NANETS1 @ENETS_ORG @HealingNET1
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👉Dr. Rocio Garcia-Carbonero, ENETS Chair: 80% of NEN patients visited their GP with symptoms av. 11 times. ✅INCA and ENETS work long-term on NEN education for HCPs to address the issue. #LetsTalkAboutNETs #INCASummit2024
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📢 12th INCA Summit 2024 #Segovia #Spain 9 y 10 septiembre Ahora sí!!! Todo listo! Este año de anfitriones gracias a @netcancerday Confiamos en la fuerza de la voz global de los pacientes 🦓🦓🦓 💚
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