CLOUD, Inc. is Consortium for Local Ownership & Use of Data. Tweeting from CLOUDHealth on health-related topics. General info - @ANewCLOUD

Building Future of CTML
Joined October 2009
CLOUD - Consortium for Local Ownership and Use of Data The green dots symbolize the dandelion. Like the seeds of a dandelion, the power of our data (and thus each of us as individuals) is only unleashed when spread. | General CLOUD info @ANewCLOUD
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IMHO, the only accredited medical endpoint that should share a patient’s data is… the patient.
Reasonable Objective #1 Our national health information infrastructure enables any accredited medical end point, to share protected health information, on an appropriately identified patient in common, with any other accredited medical end point. It should be as easy as selecting the other end point's identifier, selecting the patient in common, selecting the type of information to be sent, and pressing the send button. Anything else, or more complicated, is unnecessary. Health information technology vendors take note.
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It is about more than simply an option to Epic or Cerner. It goes deeper. It goes further. It is time for a complete paradigm change.
Judy Faulkner is the billionaire founder of Epic Systems, and a recent study by Dr. Christine Sinsky reveals the following time spent on Epic per 8 hours seeing patients: • Infectious Disease 8.4 Hours • Endocrinology 7.7 Hours • Nephrology 7.5 Hours • Primary Care 7.3 Hours • Hematology 7.2 Hours This is why Epic Systems has decreased productivity and caused burnout of physicians. Much of this time spent is pajama time and not reimbursed. Physicians need to be reimbursed for all of the time spent on Epic. If we want to increase patient access to care, we need to find an alternative to Epic Systems! @EpicShares @mass_marion @ViewsProfit @DutchRojas @AaronGoodman33 @DrDiGiorgio @DrLizaMD
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Seems to me that the solution to siloed data is not simply a much larger silo! 😂😂
One of the biggest healthcare issues is patients don’t have all their health data in one place. So many siloed systems. What if someone built a super app that pulled in all their data? They’d pay a monthly fee. Payors would push to their members. Is anyone building this?
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Day 135/262 of my virtual "tour" of @BCRFcure funded researchers brings me to @MarkRobsonMD (@WeillCornell) "Most breast cancers are not the result of inherited mutations in cancer causing genes. For families with a high incidence of #breastcancer..." 1/3
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"...however, a genetic component may underlie an inherited risk." Dr. Robson and his team "employ advanced technologies that incorporate information from genetic tests to enhance the precision... 2/3 #bcsm bcrf.org/researchers/mark-e-…
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"...of genetic risk assessment in women with mutations in BRCA or other susceptibility gene." Out of every 100 people with #breastcancer, 5 cases are a rare subtype. Check out @MSKCancerCenter Rare Breast Cancer Center... fascinating work. 3/3 mskcc.org/cancer-care/types/…
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Sometimes called “reasoning from first principles,” first principles thinking is the practice of questioning every assumption you think you know about a given problem, then creating new solutions from scratch.
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Day 122/250 of my "tour" of @BCRFcure funded researchers brings me to @Neil_Iyengar (@MSKCancerCenter) He's developed a digitized intervention. The Healthy Living Program offers individualized lifestyle prescriptions to improve #breastcancer outcomes. bcrf.org/researchers/neil-iy…
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As I return to my "tour" of @BCRFcure funded researchers, I am compelled to tweet once more on the enduring impact of @DrSusanLove One way we can honor Susan is her Love Research Army... to be sure all with #breastcancer have answers as unique as them. ❤️drsusanloveresearch.org/love…
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Day 108/250 of my "tour" of @BCRFcure funded researchers brings me to @Elizabeth_Comen work at @MSKCancerCenter who is "developing a minimally invasive blood test that can detect and classify early-stage #breastcancer and predict response to treatment."
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Dr. Feinman at @lombardic aims "to identify novel microbiota-associated biomarkers that predict poor outcome which could lead to ... personalized microbial-based therapies to harness the immune system of #TNBC patients to ... defeat this disease." 2/2 bcrf.org/researchers/rena-fe…
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Day 101/250 of my "tour" of @BCRFcure funded researchers. Today's "visit" brings me to NJ. All research inspires me, but when it relates to #TNBC or #metastaticbreastcancer it always catches my eye. Maureen passed from pleural effusions due to this on 10.21.2014 #ASCO23 1/2
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Written in the 1980s, the Third Wave by Alvin (and Heidi) Toffler was prescient. It is one thing to be a futurist, quite another to be right. I wish they were both still alive to see what was once the future in the present. 1/2 #ASCO23
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This still rings true. "Another thing that appears to have happened — especially with regard to the techno-sphere — is that the egalitarian & emancipating trappings of the Third Wave have been co-opted, commodified, or otherwise transfigured by Second Wave practices." 2/2 #ASCO23
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Using a history of phones as a template, we are currently in the "princess" phone stage of evolution with #EHR development... we still have to have "ring tone" to connect to our data. When Steve announced the iPhone, he introduced it this way... 1/2
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Steve didn't introduce a phone. "Ringtone" was just one of three functions on a reimagined device that we held in our hand. We have do what Steve did and reimagine the future of #healthit first then build a pathway from the #ehr to that new future. 2/2
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Diving into Super Pumped over the Thanksgiving weekend. Good show. Interesting to look back over the early days of Uber... step one... changing its name from ubercab to just Uber. To avoid regulatory capture. #LookingBackToLookForward
Imagine if email worked like social media right now... we'd need a different email address for every mail application. Twitter 2.0 needs to add new functionality... the rest needs to be like POP/IMAP where we can email/connect/tweet any old way we please.
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Just had a lovely chat via DM based on a recent tweet exchange. A few lessons: 1) always remember there is a real human being behind the avatar 2) our stories are more similar than a tweet may reveal, and 3) messaging is messed up. Every DM triggers an email about the DM!!! 🧐🤔
Saw a tweet in my personal feed from a UX/UI designer for Epic. With these images. No disrespect to the person here at all. But the problem with #EHRs can be seen clearly. Replicating a clipboard with a digital replica is simply the wrong starting point for change. #HLTH2022
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